About hibernationnow.wordpress.com

Hibernationnow belongs to a woman who loves adopting dogs from shelters, pizza with grape jelly and her family. She has Fibromyalgia and Hashimoto's Thyroditis and she writes about that as well as writing about Food, Pop Cop, (Celebrities,) Feelings, and every day Life. She is warm, honest and laughs at her own jokes. She is very honest and sometimes too much so, which still at her ripe old age, gets her in trouble with her mom. She worries too much, but hey, it's genetic. She loves Life, hates cold winters, dreams about living near the ocean, sand and seashells. A perfect life.

Happy Yellow Friday

In the past there were groups on favorite colors with deadlines and stress. This Happy Yellow Friday is for anyone who loves the color yellow like I do. Once a week, on Fridays I will post something that has yellow in it.

Feel free to post photos you like with yellow in it here too. I do this at the very start of Winter which really makes me Blue.

Friday, October 31, 2014, # 1

Yum, candy corn.

…And You Thought I Was Anxious Before??

Dear Psychiatrists,

Telling anxious patients that their anti anxiety meds are going to probably give them Alzheimers disease in the future is really not the way to go. I mean it, I should know, I am a patient that suffers from anxiety and I really don’t want to hear this, it’s making me even MORE anxious.  Now I can’t use my medication? What’s the point? You can’t take away medication without substitution? Don’t tell us this without coming up with a different plan at the same time.

Don’t tell me there is a link and then say good-bye, see you in two weeks. That is all sorts of wrong. Telling us that anti anxiety meds are going to give us Alzheimer’s disease in the future is like handing over loaded guns and hundreds of dangerous pills to someone threatening suicide.

Apparently, there’s this new article out that people are getting anxious about, you can feel the tremors in the air, a cup of wiggling orange jello in a steel cup.

The psychiatrists, all over, are desperately copying the article that says the anti-anxiety medicines are strongly linked to gettng Alzheimers disease. Do you think that information is something that we need to hear without a …But…Or  we will try…..? We  come to you, worried and afraid and we fear pain, illness, madness, flying on planes or driving and getting lost and…the list continues and is different for everyone.

Of course I told this to my friend who suffers from anxiety and much more and then he got anxious (but he wouldn’t admit it) and he asked

a professor at college and sent me some research that the study is completely inconclusive. Hmmm. That sounds good but should I believe him? Not yet. Only when I hear it from MY doctor will I feel more relaxed.By the way, I think my psychiatrist was anxious about this study as well, I thought of that today. I did not get a sense of calmness from her at all. I am going to ask her some day.

As usual, I’ve decided to cut my prescription in half (my doctors are not fond of me self-prescribing) but hey, in this case I think it’s perfectly reasonable. I didn’t go cold turkey and I added a Benadryl. In good faith I sent all this information in an email to my lovely psychiatrist. She is a goddess.

The other medicine is only use as needed

English: Xanax 0.25, 0.5 and 1 mg scored tablets

and I haven’t needed it for a while. However, I have been practicing mindful meditation and now I will commit to doing it twice a day.

So, before we all panic, let’s think of this as a new beginning. I’m not going to lie I feel the first rumblings in my stomach, that’s where it starts for me. I stop typing, I take three deep, long breaths to calm myself down. I didn’t open a prescription bottle that has little orange pills in it. I am trying to say good-bye to you, Xanax, even though I will probably will miss you but I will feel cleaner and stronger without you. I hope.

*Alzheimers/Dementia is a very serious disease.For information:

24/7 Helpline | Alzheimer’s Association

http://www.alz.orgWe Can Help

Alzheimer’s Association
 

Call us toll-free anytime day or night at 1.800.272.3900.

Living With Sweet Denial

I refuse to believe that in the next few days snow is in the forecast. Yes, I am in the ultimate denial stage. I’ve heard from multiple sources that the temperature is going to drop quickly and that the predicted heavy rain will fall and turn into snow. Yes, SNOW.

I am not going to believe it nor will I think about it.  Instead I am going to live in my world of fantasy for a few minutes, at least, and dream or reminisce about something nice that happened in my past. Let’s see how long I last with this new coping technique…

I once went on a trip to visit my grandparents with my dad in Vienna, Austria. ( Remember we always had free airline tickets.) Do I remember the time I spent with my grandparents? Honestly, no.I remember that my Opa was grumpy but he did love me best and Oma made incredible, moist schnitzel, the best I’ve had in my entire life. Naturally, I remembered food. I also remembered the desserts that my dad and I shared. Both of us had the worst sweet addiction in the world.

I can’t remember what I had for dinner last night but I do remember desserts I have had when I was a teenager. On that trip to Vienna we had a red currant pie that when you took a bite the currants would explode in your mouth. I’ve looked, searching for something similar now for forty years. The other dessert we called “The Swan” filled with vanilla cream, a delicate white meringue, shaped into a swan, covered in aluminum to take home.

Roasted pear creme brulee tart.

Many years later we would look at each other and just say..”remember the swan?” My father is long deceased but when I think of these moments that we shared together they make me feel close to him.  I have not disappointed him in my pursuit of sweets. In fact, I have carried that trait on to my now grown-up children.

My daughter is a chocolate fan, definitely inherited from her dad’s side of the family. It’s chocolate, dark chocolate and nothing else. It could be ice cream or cake but it has to be chocolate, once in a while they will have coffee mixed in but that’s all.

Ah, but my son comes from my side of the family with the love of fruit, custard tarts, crème brûlée and all things vanilla. Sure, we won’t turn down a brownie but our main focus is definitely NOT on chocolate, just the opposite. We like pear tarts and apple crumbles, strawberry fruit tarts with vanilla custard, blueberry pies and for me, anything with coconut or lemon.

Dessert makes a sad day or a bad day happier. It doesn’t have to be big, and it doesn’t have to be a large serving but in our family it does indeed have to exist. My husband and I, since the kids are in college, have a new ritual in the evening: after dinner and cleaning up, working/writing for a while around 8:30 we start to watch television on our bed. Our dog, Lexi is always at our feet. A half hour goes by and instinctively we look at each other and smile.

We know by our stomachs, not a clock, that it is time for dessert. My husband goes down to the kitchen and prepares two small bowls of ice cream, frozen yogurt or a combination, maybe a cookie with it and a few M & M’s. I think we both get the same amount of pleasure from it, I am thrilled with the anticipation and he is thrilled that he is doing something so incredibly kind and I appreciate it. (Not to mention the fact that we are about to have “D” the nickname for dessert in our house.)

We continue watching our show, we eat our desserts slowly (well, I do) and that makes the world a little brighter. Compared to some people it’s not a big deal but for us it’s not only  enough, it’s heavenly sweet.

In memory of my dad.

#Haiku Horizons, Hope

Dismal,  black, steel clouds

stiched with silver-threaded hope

look up, not down, joy!

***************************************************************************

 

Little girl, smiles, hopes

big brown eyes, waiting, watching

Adopt me, please, grins.

 

*******************************************************************************************

Hope, is no longer

Bereft of tears, I am rock

Living to learn this.

 

 

 

 

 

#Free Write Friday, Kellie Elmore

Well, little one,” said a Tree to a Reed that was growing at its foot, “why do you not plant your feet deeply in the ground, and raise your head boldly in the air as I do?”

 

“I am contented with my lot,” said the Reed. “I may not be so grand, but I think I am safer.”

 

“Safe!” sneered the Tree. “Who shall pluck me up by the roots or bow my head to the ground?” But, it soon had to repent of its boasting, for a hurricane arose which tore it up from its roots, and cast it a mere, gigantic and useless log on the ground, while the little Reed,
bending to the force of the wind,  back and forward, soon stood upright again when the storm had passed.

 

Moral of Aesops Fable: Obscurity often brings security.

Nobody felt safe, we knew the world had changed and the power of us poppies were strengthened by the support of having one another. Sometimes, close friends would whisper their fears amongst themselves but mostly, we walked with our heads lowered, burrowed in heavy winter jackets as if their jackets were shields, our hoods covering our faces, of course they were. We hid beneath as many layers as we possibly could because deep inside we are scared to death, our new reality. We couldn’t lie, we were all in this together and that brought comfort to us.

Even when we didn’t watch the news or read the papers, the news would slip out like oily black ink and it would stain our petals, our brains and those images never, ever would go away. Fear was imprinted on our souls and there was nothing we could do to forget what we had seen or heard.

It was the devil’s handshake, some people called it, those who thought they knew better or pretended that they weren’t afraid, those boasting about how much money they had, their egos, over-inflated, grown-up bullies.

One old, grand big tree, we called “the monster” was mean to everyone,

English: a tree

a child, an elder grandmother, sweet white puppies. There was no excuse for that, the fat cow could not ever explain that away even if anyone wanted to listen but nobody did. Her justice will come in her own way, in tepid waters of muddy grass, sloshing through messy brown mud endlessly, never finding her way back. Homeless. Alone. Thinking she was smarter, because of her size and depth, stronger, more powerful than everyone else. All bluster, self-deprecating to hide the cruel reality of knowing not who she really was but how others truly saw her.

It escaped no one but herself. One day, even she, would look up from the ground and see herself, still strong, roots planted, with wildflowers all around her, petals of rose, pink,

yellow, and blue, laughing together, the sound of sweet angels in a club, chirpy birds were invited but the club had no room for her.

The tables had turned, it taken a long time but eventually karma had caught up. Our soft willows, loose wildflowers, dancing in the wind, singing songs, perhaps not in harmony, but with delight and passion, having fun, we felt sorry for that big old maid, that over-critical stump.

Alone, all alone in the middle of the forest, away from everyone else, while the rest of us could bend with the wind, smile at the sunshine with the lovely wind and whistles as a mere game of promise and friendship and love.

English: Old tree stump, Beaulieu Wood The rem...

We were all friends, together, except for Her, that snobby tree, who criticized everybody, yet never looked inside her rotten, ugly, stump, its decay on the inside visible to those outside, its scent slowly, insidiously, reeking of week old trash, of judgment, of her.

The fragile willows, we,  bent together, laughing, this way and that, in abundance, we knew we were all equal, all the same not better than one another,

that kept us together, happy. We trusted one another.

We were one united bunch of laughing flowers,our heads gloriously pointed to sun. The old, big tree stump, callous and mean, sat in shambles on the ground, broken, alone. we walked over its pieces and never looked back.When it rained all of us just bent a little lower and in the distance you could hear us not breaking but singing, quiet songs, happy songs in unison.

 

 

 

The Family Of Foodies

When our kids come home from college for a visit, suddenly our kitchen is bursting with the smell of my freshly baked banana bread with raisins and chocolate chips, soon afterwards dark chocolate brownies are left to cool waiting for me to slather on the thick, creamy dark chocolate frosting.

Their dad and I have both gone to the supermarket to stock up on their favorite foods, they could stay four weeks, even though they are only here for four days or is it one day? It doesn’t matter. We pack the leftovers so the kids can take them to share with their friends.

 

I stood in the freezer section getting frost bite while choosing six quarts of ice cream, all different flavors.  We have Ben and Jerry’s Coffee, Coffee Buzz, Graeter’s Black Cherry Chip,

 

Graeter's

Graeter’s (Photo credit: Wikipedia)

 

Black Raspberry Chip, and Chocolate, Chocolate Chip. We also have Mango Sorbet, Blood Orange Sorbet and Haagen Daas’ Pistachio ice cream (which to me, is a great disappointment, vanilla with a couple of shelled pistachio nuts in it. I won’t buy it again.) Any suggestions of another brand of pistachio ice cream?

 

 

 

 

 

We have rainbow cookies, molasses cookies.

 

 

amaretto cookies, and of course, Double Stuffed “Oreos.”(Thank you, Nabisco)

 

We don’t live like this all the time, believe me, we only stock up when our college kids come home to visit. Our daughter’s description of the ideal break is: “watching, (streaming episodes) of her favorite television shows on her computer and eating her home-cooked favorite foods and I quote.” Isn’t that what coming home is all about?”

My husband made a delicious eggplant parmegian/ parmesan, I made guacamole, and a tomato, mozzarella, olive oil, basil salad, we had

 

English: Guacamole in a bowl. Photograph taken...

 

chips, pizza, huge salads, creative salads with lettuce and arugula, cranberries, goat cheese, string beans, grapes, and cucumbers (and anything else I found) with no meat (for our daughter “the vegetarian.”) Yes, she DOES get plenty of protein, she never liked meat and never ate it as a baby. I’m anticipating the questions that will follow…

BOTH of my grown-up children came home a day early as a surprise and I consider myself deeply blessed. I am truly grateful to be able to have one night together with my whole family, where we eat will be up to them, with our approval, and bound by price range and affordability.

Tonight, we will eat leftovers with no complaints and if there are complaints, that’s okay, the only other option is…no other option. I do regret how lenient we were with our children when they were small. I felt like a short order cook, a grilled cheese for one, spaghetti with meatballs for the other….the things you learn in hindsight.


We all make mistakes as parents but if that’s the worst mistake we made then I think we did pretty well. We have super nice, polite kind, kids, independent, loving, street smart and compassionate. What more could a mother and a father want? NOTHING.

Are they perfect?  No.  Are we? Heck no. Do we wish they would change certain things?  Sometimes. No, I am NOT going to argue with you about this!! (you- know -who) I know that they wish the same for us. We’re a family, we all need to work together. Every single one of us needs to learn how to compromise and accept not always being right. Accepting someone’s difference is harder than deciding to disagree. Respect another person’s position without judgment. Try.

What would you rather be, a very old friend asked me thirty years ago, right or at peace?

My answer thirty years ago was” right,” I changed my answer in the years to come. The kids will learn that, in time. Or, they won’t. That is entirely up to them. It took me a long time to see it, peace wins for me now, every single time.

We all grow-up, we make mistakes, we fall down, we get up and we fall down again. Children, like adults, learn, from their mistakes. Let them make them.

When our kids went back to school a few days ago my husband and I went right back to eating very simple meals. Scrambled eggs with cheese and toast, pasta with meat sauce, home-made pea soup, chunky with carrots, ham, spices and a salad and french bread. A roasted chicken, rice and freshly cut vegetables with a yogurt dill sauce. After dinner, we often go upstairs, lie on our bed, watch our television set with a small (ok, medium) bowl of ice cream in our hands (with rainbow-colored sprinkles for me) to watch the Jimmy Fallon show from the night before. A simpler life, quieter, we accept what we have, what we can’t change and that’s okay. Love what you have today, understand and accept that you will see your children less, yesterday is gone and we don’t know what the future will bring.

Enjoy the moment. Be Thankful. Breathe.

 

 

 

 

 

 

 

Epppiglottitis, No Cure? MY Ass

Give. Me. The. Shot. The Vaccine. I want it. I want it NOW. No, not in a few minutes, not in a month or two. I can’t wait another second. Find someone, someone with authority to approve it. I can’t beg or grovel anymore. I know the kids’ vaccination exists, I know you have it in your back pediatric room. Stick it to me. In my arm or in my behind, just do it. Trust me, I will not cry, unless the tears are of relief.

The only pediatrician I know to have a kind and open heart is Dr. Batman, he thinks outside the box, he cares. No, he was not my children’s pediatrician at the big Medical Group not far from NYC but that’s okay. We called him Batman when my children were little, he had all kinds of Batman gear and toys in his office, every time he saw us he smiled. Even when my daughter, wearing her sweet pink dress, white tights and black shiny shoes kicked him in his shin, he was nice. I was mortified.

It was one of those horrific mother moments. I wanted to move to another country or enroll my daughter in juvenile hall but I made her write an apology note at home and more importantly I marched her back in and made her give it to him. Lesson learned.

After my first essay called “CALLING EPPIGLOTTITIS IS A BITCH IS A VAST UNDERSTATEMENT” (EARLIER ON THIS BLOG)

A reader wrote to me recently and said:” Lastly, since many posters seem to be getting this horrible illness more than once, go get vaccinated! Vaccinations started somewhere between 1988 and 1990. Prior to that time, most cases of epiglottitis were pediatric, but now it is more often found in adults (albeit still rare) who were born before vaccinations started.”

I’m starting a revolution, a Vaccinate Eppiglottitis revoution.  WHY can’t we have it. “Because” is NOT an answer. “Because it’s just for kids does NOT HELP.

English: Acute epiglottitis; Lateral view in X...

English: Acute epiglottitis; Lateral view in X-ray imaging (Photo credit: Wikipedia)

Spell it out. Why are you torturing so many thousands of people every day and leaving them at risk of dying? Of their throats swelling up, unable to breathe, causing them the worst pain that they have ever had? Trust me, giving birth was like a walk in the park compared to this.

I wouldn’t wish this on my worst enemy, well, maybe one or two.

We deserve an answer. All of us who have had Eppiglottitis deserve an answer and “no” and “Cuz” is not acceptable anymore. Why can’t we use the children’s vaccination in some way to help us adults that are suffering, many times over, with this life threatening illness?

Please find out we need to know, doctors and hospitals and The American Medical Association needs to know. We deserve an answer. It’s our right. Plus, we are begging and we are at your mercy. Ok?

 

Haiku Horizons, Release

 

Release pain, sadness

brittle bones, fluid in lungs

let my body fly.

************************************************************
Curled inside myself
Shrouded, alone, thick black gloom
Release sobbing tears.
************************************************************

Bobbing laughter, rolls

aching cheeks, mouths wide as O’s

Release happiness.

*********************************************************************

 

Looking For Dr. Lisa Sanders, Dr. House, The Mayo Clinic?

Dear Dr. Lisa Sanders, Dr. House, New York Times, The Mayo Clinic or any doctor, active or retired that wants to save a life and help a really nice, frustrated, sick woman.  If you are looking for just the money, trust me, you are not the doctor, if you are looking to make someone who is desperate, happier, even if there is no answer, you’re my person. My medical person.  (if you watch Gray’s Anatomy you would understand this, if not ask someone who does.)

I am desperately seeking a miracle, yes, a doctor or a team of doctors who will put all my different symptoms together (for the last eight years) and try, just try, to figure out the root cause. Believe, I have an idea but not the credentials. I don’t have the knowledge or the education, just an inner voice. That leaves me with nothing. If there is nothing that comes out of it, I UNDERSTAND but I will know, someone really tried.

I have an internist who gives me 7-8 minutes and two specialists who are absolutely amazing but they send me to different specialists and it is too much for me to handle and take in. You understand, right?

The Mayo Clinic in Rochester.

The Mayo Clinic in Rochester. (Photo credit: Wikipedia)

 

 

 

 

 

 

I know the Mayo Clinic would take me! I have about six doctors who would gratefully write a letter to get me inside the Mayo Clinic and off their backs. Do they have the equivalent of financial aid?  I probably would be the most interesting and mystifying patient they have seen in a long time. Trust me, I’m not bragging. Living in my body and brain is pure hell.

 

I asked, okay, begged, two of my nicest specialists today, my cardiologist and my nephrologist if they could assign me to a medical student to take on my case, you know the way they charmingly do in Gray’s Anatomy. They both shook their head within a second and laughed. Sure, they would like to help but they can’t. Of course if I had A LOT of money (which I don’t at all) I could hire a private concierge doctor and maybe that would help me, yet break us financially and there’s no guarantee. Honestly, I never heard the word “concierge doctor” in my life. As for random medical students to assign them to my case alone, they laughed out loud. Gray’s Anatomy is truly a fictional fantasy. I want to be someone’s person. (Ask a friend.)

 

I’ve thought of the Mayo Clinic, Johns Hopkins and I need to do more research on that this week. At today’s nephrologist’s appointment he literally ( a 58-year-old) referred me to a pediatrician. Yes, it is not a typo. Supposedly, there a doctor who specializes in low blood pressure and syncope who sees children and on occasion, if begged, a woman of thirty, helps. My doctor is going to talk to him and plead with him to see me. P.S. he said no  but referred me to a pediatric neurologist,  (what?)

DO YOU SEE WHY I NEED HELP?

He also suggested a fat biopsy. A FAT BIOPSY? What on earth is that? I googled it and it really made no sense to me plus it’s always a bad idea when I research something, a very bad idea. He also recommended Hormone Replacement Therapy. My jaw dropped. He said what?

Yep, the dreaded  (my own personal view) of adding more medicine to my body?

I also have Eppiglottitis, and have had this three times already. Figure that one out. I have posted many articles about it, it’s deathly pain, its sword-like plunge  beneath your throat. Many readers have read this article and many ask me questions. I know there is a vaccine to prevent this for infants, I’ve asked several doctors about giving it to me. There answer is a confused look on their faces and they say “we can’t.” Why, I pursue, “because it’s for children.” Take a chance, do some research, you can’t even try?? Have you ever had that horrific pain? I also fall down from low blood pressure (we think) and randomly shake.

I have more symptoms but I don’t want to scare you away!

Does anyone have any connections? I’m realistic, not stupid. Please forward to anyone you may know at The New York Times or Dr. Lisa Sanders or The Mayo Clinic.

Please.

Thank you in advance.

 

 

 

 

mammogram monday

fell asleep with a headache, woke up with a headache. not too bad yet, refuse to call them migraines. how am I supposed to know trigger points or if it is the start of a migraine vs. a regular headache, this is all new to me.

the house is cluttered, my room overflowing with trash and in disarray. i keep saying i will do it tomorrow when i don’t have a headache yet that day hasn’t come yet. it’s been about two weeks in a row. yes, I am seeing my doctor on monday after my mammogram and ultrasound, yippee.

English: Woman undergoing a mammogram of the r...

English: Woman undergoing a mammogram of the right breast (Photo credit: Wikipedia)

really looking forward to that day….to be over. how could it be another year? how many posts have i written about measuring the time going by so quickly by the time in the pink-purple room of the waiting room in the mammogram section. i should count them or maybe you can. they are all in this blog, i’m sure saying the same thing over and over like the warnings not to use deodorant or baby powder.

it’s always the same, not the outcome, but the process. I worry, I know everyone worries, most people can hide it, i can’t. there’s a shocker. i try to make light conversation and people seem so grateful. we are all the same in this room, in every mammogram room, we breathe the same nervous air, we give each other half smiles laden with fear, we wink, we nod. when someone leaves happily, there is always the thumbs up for them, spreading fear within.

this time i will try to do mindful meditation, it helped during my dentist appointment and i didn’t need nitrous oxide, i was so proud of myself, the dentist so proud of me. will it help on monday? i have no idea but at least i know this much, i know it won’t hurt.

a universal feeling, women in their robes, waiting to be called in. we smile encouragingly to each other. one by one we go in, we leave, sometimes through different doors.

*IF YOU DON’T SEE IMAGES, I DON’T EITHER. I ALREADY TOLD ZEMANTA/GETTY SUPPORT. I’M SO TIRED OF THIS HAPPENING.  THANKS FOR YOUR PATIENCE.