Eppiglottitis, Esophagus, Hernia? HELP!

Cirugìa de hiato, HERNIA PARA ESOFAGICA

Cirugìa de hiato, HERNIA PARA ESOFAGICA (Photo credit: Antonio@GDL)

Last week I went for the dreaded barium test (forgive me if I gag just thinking about it) although it wasn’t as bad as I thought it would be. I imagined slugging  the entire thick, chalky mess down in two or three large gulps and finishing it but that was not the case. Luckily it was more like take two sips and swallow. This type was not even that thick. It’s not that I would order it in a restaurant but it was manageable. I highly recommend the radiologist who was soothing and comforting and told me “it wasn’t a big deal.” Thank you.

When I finished Dr. Radiologist came out and told me I had a hernia in my esophagus. Huh? Yes I had a hernia in my esophagus which was fairly common and probably could account for me swallowing the wrong way, quite often and coughing a lot. But, oh, my epiglottitis followers, what automatically came to mind??? There has to be a connection between the eppiglottitis and esophagus hernia, no? It seemed genius to me. Could this be a clue in solving the mysteriously painful illness that we know so much about? Of course I thought I was brilliant and could tell my people (YOU, my fellow eppiglottitis sufferers)  that we could prevent eppiglottits in the future but sadly that is not the case as far as I know.

I have an appointment scheduled with my ENT (ear, nose and throat specialist) on Monday and yes, I will beg him for a correlation even though I’m pretty sure there isn’t one. I just wanted to give all of us some hope. If there is ANY I will post the results on Monday, I PROMISE. Wouldn’t you think there would be a connection? I mean it does sound nutty enough.

Leave it to me to have the weird diagnosis, but believe me I am NOT complaining. With all the testing that they did, I am gloriously happy that the only thing wrong with me is this hernia. After losing forty pounds, having digestive issues (really bad digestive issues) and looking gaunt and pale as a ghost, I can cheerfully deal with this. I’m having a colonoscopy in a few weeks, maybe an endoscopy is needed as well? I have no idea. But if there is any hope of a connection between the dreaded eppiglottitis and this hernia in my esophagus, I want to be the first to tell you. And, you know I will. Let’s keep the faith although even I know the odds are against us. Let’s wish each other LUCK. We need it.

My Fellow Epiglottitis Peeps- A Follow Up

throat diagram

Image via Wikipedia

When I first had my two bouts with Epiglottitis (OUCH)  no one had ever  heard of it. Even my ENT said and I quote: “how the hell did you get that?”  If I could have spoken in spite of the pain I may have said ” How do I know? You’re the doctor.” But speaking, swallowing, breathing was pure torture and being in such intense pain makes you less than quick with a comeback. When I first posted “Calling Epiglottitis A Bitch Is A Vast Understatement” I wrote it for myself. Why did I have to get this pain? But, if it’s something unusual, it softly calls my name.

When I had Epiglottitis I told people it was the worst pain I had ever had, that childbirth was a cinch in comparison. When my two awful experiences had finally passed I asked every Dr. and medical person, if I could SOMEHOW prevent this from happening again. The answer was an unequivical “NO.” I scheduled an appointment with my internist just to discuss this and begged, pleaded and cried for the vaccine that is given to children. Another “NO.”  She said it was for infants only. That seemed drastically unfair. After all, if those babies could have it why couldn’t iI have it? Give me 100 times the dose if you want, anything not to have to go through horrific, burning, stabbing, knife-in-the-back-of-the-throat pain again.

How does one get it? What is it? Apparently, it’s a virus. I know, when there is something doctors don’t know for sure they call it a virus but apparently this is one and a nasty one at that. It could be related to the Herpes Simplex virus, I was told, but maybe not…..It is frustrating and painful and so far this year (fingers crossed) I didn’t get it but I do live in constant fear of getting it again. No joke.

Did anyone get it this year? I  hope you didn’t or if you did that it was a mild case (oh, who am I kidding there is no such thing as a mild case, it’s outright torture.) My ENT treated it with Prednisone, Valtrex and some special rinse, (and maybe something else, not sure) it helped…..after what seemed like an eternity.  It will not go away on its own, beg for pain medication.

For those of you who wrote back to me with your comments, thanks. We helped each other. Never before had I heard of this bolt of lightning in the back-end of the throat, and hearing from you made me feel better, validated. Unbelievably, my blog post “Calling Epiglottis A Bitch Is A Mild Understatement” gets so many hits on my blog consistently. As you know, I blog about everything: food, Fibromyalgia, feelings, fun, Hashimoto’s Thyroiditis, Chronic Pain,TV, music, food, children, parents, grief, love and loathing. I blog when I am happy or sad, about funny things, family (they are not too happy when I write about them) my dog and dessert. But, this post about Epiglottitis constantly and consistently gets hits and I’m wondering why. Do more people have it now? Did it become an epidemic? I thought I was the only one in the world that had it, (clearing my throat) twice.

Here’s to you, my Epiglottitis Peeps, If anyone has any updates or insights, let me know. Or if you have had it recently, I am here to commiserate. I wish I could offer you a magic cure, I wish I could offer myself a magic cure  but none exist. I’m here, though, to share your pain. Believe me, I understand it completely!

p.s. One important tip: if you have had this once, and feel a bad sore throat coming on, go directly to an ENT and not an Internist. My ENT gave me that advice, don’t wait around a week, like I did, waiting for it to get better. Get it scoped, diagnosed and treated before it gets any worse.