Fibro UnFriendly

English: A zombie

Image via Wikipedia

If Fibromyalgia was a mood and not a chronic illness, it would be grumpy, mean, hateful and cranky. It would be the scariest monster that rages everywhere, over my bed, not even bothering to hide but willfully taunting me in the open. Once constant factor is the weather and its changes, enemies.  I want to set up all the old green plastic soldiers that my son used to play with constantly and place them on the Batmobile and fire truck and police cars and surge through dividing lines. I want to storm the troops of Fibromyalgia pain and run them over completely. In my fantasy, all that would be left in their place would be peace and pain-free living.

I know, I’m living in a dream world but it is better than the one that I am living in now. At night, which used to be my savior, snugly asleep under the covers, has now become another battleground. Pain wakes me up, the newest pain is in my arms and elbows and I never feel well-rested. I try to ignore it at night but minutes later it wakes me up again. I imagine the enemy mocking me, sneering at me as if to say “you thought I was only going to appear once then go away for the rest of the night? HAHAHAHA” ‘That is what I was hoping for’ I try to mumble under my breath.”FOOL” they spit blood right back in my face.

Why do all these new pains seem to intensify after my visit to the Rheumatologist when the blood work is in? Liver function? A little high? Sediment rate? A little high?  Auto-immune disease? Yes, I have that too, an auto-immune disease of the thyroid, known as Hashimoto’s Thyroiditis. When is it too high and what do they do about it? A question that has never been answered so far. Should I take Tramadol, “you could give it a try.” I don’t want to give anything a try, I’m frustrated and tired and inflamed and I just want a definitive answer which I know logically I won’t get. The answer is “let’s recheck your blood in two weeks.”

I’m frustrated, even the small flight of stairs in our house seems insurmountable. My ten-year old dog can come up and down those stairs better than I can when I am in a Fibromyalgia Flare (if that’s what this is, we rarely know for sure.) I have to grab unto the shaky metal banister and pull myself up, hear myself groan out loud, the sounds coming from me are more animal-like than I would care to admit. I try not to emit these sounds when my children are home but sometimes I can’t help it. They know I have this illness, but it doesn’t mean I don’t want to protect them as much as I can.

I drove away their monsters when they were little, why can’t I drive away my own?

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8 thoughts on “Fibro UnFriendly

  1. Pingback: My Friend Fibro « Ginger Couturier: Trapped in Suburbia

  2. This is going to sound strange…but sometimes, not often mind you, but I have gotten in a tanning bed, and it helped. Surprisingly.
    I didn’t go regularly mind you, just like 2 or 3 times during a bad winter.
    Then I did try the infrared sauna…even better, and you can go in it often. It warms you to the bones. I think I may need to do that now.
    Lately I’ve been trying to just do Epsom Salt baths, but it’s not working.
    I didn’t think I had Fibro. after I gave up gluten most of the symptoms went away, but this year has been brutal the pains…oh the aches, I feel like I have the flu all the time just like I used to. I just don’t know any more.
    I get so cold, cold from my bones out. I shakes my teeth rattle, it takes so much to just get me warm…it’s like a hot flash in reverse!!! What is wrong with me?
    What ever it’s called,
    I don’t care, I just want to feel better.
    So I think I’ll seek out the infrared spa. That sounds like a very good idea….perhaps with a place that has a hot tub…
    oh…I better ask my brain doc, it may not be good for my high CSF….ugh! cant get the water my brain is floating in too hot!

    Please tell me it isn’t so!

    good luck my friend.
    wendy

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  3. Laurie, Why must we suffer? Who dealt us these cards? Sometimes I get so pissed off….but it doesn’t help. Hope tomorrow is better.
    xoxotwin

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  4. Nothing helps especially when a flare hits and sometimes there seems no light at the end of the tunnel.I hope your tunnel is short and till then stay warm ,maybe sleep on the sofa instead of taking the stairs and just know that you are not alone…gentle hugzzz !

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  5. That is one scary photo!
    Does sun light help you?
    I have arthrits and have gone the same route of testing as you probably have. Sometimes I am much better than others. I try to get outdoors for atleast half an hour a day, and it does seem to help.

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