Smelling Change, Part 2 (2 weeks ago)

Illustration of the Devil in the Codex Gigas, ...

Illustration of the Devil in the Codex Gigas, folio 270 recto (Photo credit: Wikipedia)

A follow-up to “Smelling Change” where I was highly optimistic….

It was a long week or two that followed that one amazing day of innocence.

 

WHAT THE HELL WAS I  THINKING?

 

At least I thought things were going to change for the better.

I know, nice try. The thought of happiness and joy, like being enveloped in a soft pink cotton shawl didn’t work at all. Maybe it was a lot of bull—-. Maybe I was just in a really good, positive, affirming mood that day. I’ve tried so hard, you know I have, but I went from gratitude and perseverance to sadness, depression and disgust. Now, I’m plain fed up.

The fantasy of hope was delicious for a few days, like savoring a spoonful of a rich, vanilla bean ice cream twirling on your tongue, letting it melt and slowly swallowing. A tantalizing, sensual process. I lick my lips with the tip of my tongue.

 

Now?

I have lost all feelings. I’m in an empty, lonely place and that scares me more than any situational depression. I am a woman with great emotions, always, good or bad, high or low and now I feel like I am pressed in a corner, invisible, except for the dust bunnies that surround me. My husband will most likely vacuüm around me but not see. He prides himself on his vacuuming skills.

Worst of all, now I feel nothing. If you can feel numbness, that’s what I feel. Things haven’t been going well at all. I feel alone, not the “we’re in this together” support that usually holds us closer together. We may watch television together but he holds his cell phone in his hand playing games and not my hand.

Droid Apps Cell Phone

Droid Apps Cell Phone (Photo credit: GoodNCrazy)

This is the person who was my support system, my best friend in the world. Whoever is living in the same house now, I do not know. He’s a stranger to me. Yes, I am here, imperfect, with all my flaws and disabilities but I have raised our children and have done a great job of doing that. I need more in my life than emptiness, and sitting on my bed to eat alone. I have my dog who keeps me company, I enjoy that.

I feel sad when I write this, is that a good sign? I know all couples go through good and bad times. It’s not the very first time this has happened in 25 years but of course, it feels that way.

When my husband brought up my disability, Fibromyalgia, in a threatening/demeaning way, “when I get a job, things will be different because you are sick” what the HELL did he mean by that? AM I NOW supposed to apologize for my pain? Get down on my hands and knees, scrub the floors but not be able to get up?

That was insulting to me and to my Fibromyalgia sisters and brothers, something I will not accept.

EVER

 

underwater fibro fog (unfinished)-altered jour...

underwater fibro fogSigh,

We both need to work harder to communicate more clearly. Over and over again. Riding the waves, up and down, in and out; there are never new problems, just old problems recycled again and again.

The work is endless, the peaks and valleys are like that of an EKG. Everyone has problems, we go up, we go down like waves on the beach, we’ve been down together for a long time. Are we ever going to be able to get up? To rejoice? We, have lost all hope in the world, not in us, but in the world.

We are both under a lot of stress and have been for many months, we both realize that. But, we are on the same team and need to rally, once again to support each other. To keep each others hopes and dreams alive.

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