Epppiglottitis, No Cure? MY Ass

Give. Me. The. Shot. The Vaccine. I want it. I want it NOW. No, not in a few minutes, not in a month or two. I can’t wait another second. Find someone, someone with authority to approve it. I can’t beg or grovel anymore. I know the kids’ vaccination exists, I know you have it in your back pediatric room. Stick it to me. In my arm or in my behind, just do it. Trust me, I will not cry, unless the tears are of relief.

The only pediatrician I know to have a kind and open heart is Dr. Batman, he thinks outside the box, he cares. No, he was not my children’s pediatrician at the big Medical Group not far from NYC but that’s okay. We called him Batman when my children were little, he had all kinds of Batman gear and toys in his office, every time he saw us he smiled. Even when my daughter, wearing her sweet pink dress, white tights and black shiny shoes kicked him in his shin, he was nice. I was mortified.

It was one of those horrific mother moments. I wanted to move to another country or enroll my daughter in juvenile hall but I made her write an apology note at home and more importantly I marched her back in and made her give it to him. Lesson learned.

After my first essay called “CALLING EPPIGLOTTITIS IS A BITCH IS A VAST UNDERSTATEMENT” (EARLIER ON THIS BLOG)

A reader wrote to me recently and said:” Lastly, since many posters seem to be getting this horrible illness more than once, go get vaccinated! Vaccinations started somewhere between 1988 and 1990. Prior to that time, most cases of epiglottitis were pediatric, but now it is more often found in adults (albeit still rare) who were born before vaccinations started.”

I’m starting a revolution, a Vaccinate Eppiglottitis revoution.  WHY can’t we have it. “Because” is NOT an answer. “Because it’s just for kids does NOT HELP.

English: Acute epiglottitis; Lateral view in X...

English: Acute epiglottitis; Lateral view in X-ray imaging (Photo credit: Wikipedia)

Spell it out. Why are you torturing so many thousands of people every day and leaving them at risk of dying? Of their throats swelling up, unable to breathe, causing them the worst pain that they have ever had? Trust me, giving birth was like a walk in the park compared to this.

I wouldn’t wish this on my worst enemy, well, maybe one or two.

We deserve an answer. All of us who have had Eppiglottitis deserve an answer and “no” and “Cuz” is not acceptable anymore. Why can’t we use the children’s vaccination in some way to help us adults that are suffering, many times over, with this life threatening illness?

Please find out we need to know, doctors and hospitals and The American Medical Association needs to know. We deserve an answer. It’s our right. Plus, we are begging and we are at your mercy. Ok?

 

Not My Child

Alone

Alone (Photo credit: Pink Sherbet Photography)

I went back to my Rheumatologist today with the help of my husband, driving me in to the city. This summer I haven’t had the energy to be able to take a train anywhere much less drive to the nearest train station. I’ve been so tired and so filled with pain that I can’t even imagine the days of yore when I used to go to the city by myself FOR FUN, for excitement, to sit, grinning, sipping iced coffee,watching people or seeing a new movie. I cannot manage the steps up to the platform or down them, I can’t even think of the service elevator that grumbles so slowly and so infrequently and is so small, smelly and lifeless.

The quality of my life, in the last six months, has deteriorated, rapidly. I’ve tried to keep it out of my head, to ignore it and not to complain but the evidence is clear now. I’ve fallen, out of the blue, directly unto the ground smashing my face and knees, I’ve been severely imbalanced, I’ve even used a cane that I keep in the car. My pain levels are at an all time high and I complained to my doctor that I thought Fibromyalgia symptoms were supposed to stay the same, not get worse. “They get better, they get worse” he said diplomatically, this being the worst he has seen me in years. Cranky, unsmiling, complaining and saying “ouch” every time he touched a tender point on my arms and legs. I hurt everywhere and then some. I have interrupted sleep, pain wakes me up so I don’t get enough rest to heal during the night and I’m frustrated, angry and sick of it. It’s almost six years now.

The only thing, THE ONLY THING, that shut me up quickly today was the sight of a mother and her daughter sitting in the waiting room today, noticing that the daughter was the patient. I will remember this daughter’s face forever. She looked definitely younger than her years, she said the word “bi-coastal” at least five times, almost to prove out loud that she did live away from her mother. She looked about 15 but was probably in her mid twenties. Her two braids made her look younger, the sound of her high, squeaky voice sounded child-like and the way she moved looked awkward, clumsy, painful; something was definitely wrong, missing. She stepped gingerly into the doctor’s office alone like a wounded fawn.

I shut up completely, quieted my misery when I saw this young woman, this frail young woman.  I would have this frustrating disease called Fibromyalgia five times worse if it meant my daughter or son go through it. I would have it worse for this young stranger I had just met.  I looked at my husband and he looked back at me, we understood each other. I stopped feeling sorry for myself in a quick, NYC, second. Let me have the pain, just spare the children, I can take it, I will take it, just let them be healthy and happy and let this poor young woman find some answers and relief too. I am a mother, I hate to see any child hurt and suffer. I hate to think that this young wisp of a woman feels anything like I do. That would be so wrong, it upsets me deeply.