The Map To Nowhere Fast

Chronic pain

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I have a weird feeling of unrest and stress, slimy blue- green and flourescent orange winding its way around my brain is how I picture it, how I feel it. No soothing colors of white and yellow and beige. Fake colors, unnatural.  I frown more than I smile and as hard as I am trying to focus on the positive it’s not easy. There is so much going on in my life that it’s hard to focus. I don’t think it’s just me though, I think it’s a lot of people.  It’s a feeling, not a good one, somewhere between the roads of anxious and depressed, stopping at weary.

There are natural disasters all over the world and I am sure we all feel, not only heartbroken for other people, but scared. There is too much sinewy stuff whirling around and no happy place to settle. What happened to my “happy place” images? Why am I only seeing the rain battering the purple flowers instead of the blooming of the flowers alone.

There is tension inside my house, we are in “the sandwich generation” that I used to read about. It isn’t fun, it’s scary. The “baby boomers” who have restless teenagers and aging parents who are alone or ill or depressed. I am that “baby boomer” now except I have the added affliction of my own “chronic pain.” Fibromyalgia and Hashimoto’s Thyroiditis do not do me any favors, I walk along slowly, painfully, I stumble through different medications and expectations. Very low expectations.

I also have narrow-angled glaucoma which is a dangerous disease or as one unfriendly opthalmologist put it “you could go blind in an instant.” Quite a bedside manner, don’t you think? Needless to say, I stopped going to him. It’s funny that I barely write about this condition, maybe it’s pure, frigid fear. Maybe there is only so much pain I can handle. My brain and eyes get hammered, with laser shocks, every few months by a doctor that I once believed was very good. I don’t think so anymore. “In twenty years of practicing, I’ve never had a patient whose eyes kept closing up like yours do.”  Every time I go to the city he lasers my eyes again, because the hole he drilled into me has closed. He does this procedure either in his office or in the hospital with no pain relief; imagine barbed wire going through your eyes and brain, quickly, twenty or thirty times in a row. The eye drop he casually puts in gives me incredibly painful headaches (migraines?) I do know that the pain I feel is barbaric, no pain medications, no anesthesia, no break. Over and over again; fast and furious.

The gray, dreary day does not help me since I feel overwrought and unfocused. I am dealing with both chronic pain, (Fibromyalgia, Hashimoto’s Thyroiditis) and new back pain that feels like my back bent and broke itself during sleep like a twisted pretzel you find in any mall. I am trying to accept my life for what it is, both bad and good, often simultaneously. Change is in the air like a dog-sniffing a new scent, it’s just hard to predict when and where things will happen.

I read an article in the NY Times today about a young couple with a young daughter. Each parent has cancer. That, is a problem I say to myself, not the dreary workings of an often too-emotional, anxious and pain- filled mind. I am so sorry Nathan and Elisa. You and your baby have my prayers because perspective is the greatest gift of all. I will speak no more.

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thank you Ghandi

Apple Store San Francisco - Genius Bar

so i went to the snooty mall today, all anxious and not knowing where to go. my sense of direction is what legends are made of. as in i have no sense of direction, never did, never will. and jill was not working. yes, jill our gps helper person.  of course, when I have to go to the complicated mall jill just shows me an hour-glass going up, going down. i had no idea where i was going. had to stop a car in the next lane  and scream to ask for directions. it was all so seventies.  there was bumper to bumper traffic, what should have been a 35 minute drive took me over an hour and ten minutes. I was all jittery and hot and flushed since I didn’t want to be late for my appointment and nordstrom’s doors were locked tight and it was like totally dark in there so we were all milling around in the parking lot waiting to see if someone would unlock the doors because eventually they had to. right? i mean it is nordstroms….

i had a 10:15 appointment with the genius ( i kid you not, that’s what they are called) at apple and I was all running over shlepping my computer because the dvd player which I tried at home at least 12 times, was all of a sudden working. surreal, i know, totally  really surreal, like going to the doctor with a complaint and then as soon as she walks in the room, it’s gone. cured. just like my computer when he, the genius, put the Ghandi dvd in it that had scratches and i swear that Ghandi himself healed the computer’s dvd. no seriously, Ghandi himself fixed my computer and saved me about 200 dollars.

while my computer  was given a free, yes free, new keyboard, i walked around the pretentious mall and wanted to get an iced tea. there was a specially tea store and I swear on my life, they wanted me to pay $4.95 for a small herbal iced tea and i was so “i’m so out of here” because starbucks is even cheaper than this and i have a gift card. i walked around the mall slowly until two people (two different people) accosted me, shoving samples in my hand. and I was all fine and happy that i got free samples until I looked at them and saw they were samples for people with deep, severe, repeat deep, severe wrinkles. now i had two wrinkle cream serums and I thought to myself, omg, I must look so old and horrible and I didn’t even have an iced tea to drink to keep myself hydrated.

i’m in all sorts of pain and my back is all sore especially the lower middle back and i am tempted to cry but am trying to hold myself together because yesterday was a horrible day and everyone was in a miserable mood. today was a little bit better because it must be that Ghandi sent some more healing powers although it seems the genius who worked on my computer did something wrong and now my computer sounds like an airplane on a runway about to take off. but supposedly the dvd player is still fixed, just not sure if i can hear it now.

i met a really interesting friend of my mother’s who is an artist and somehow she inspired me in some sort of creative, optimistic way.  i am now thinking about taking an art class even though i know i have zero talent but i’m talking myself into trying again. i failed clay once and i’ve never forgotten it but i was in my twenties then and at 54 i really don’t care all that much. so i need a new hobby and now i have inspiration and a sunnier disposition to think about it. so i will plug away and maybe get involved in something new or maybe i won’t and will be the lazy slob i always have been and dive under piles of comforters and dream of spring.