On Healing

Window view of dead end road to Port - geograp...

Window view of dead end road to Port – geograph.org.uk – 1156081 (Photo credit: Wikipedia)

Today is the first day I have felt stronger; strong enough to help myself heal from a very rough few weeks. I felt the urge to get out of my house. I went to a store and talked with the owner, a woman my age, and I bought myself a necklace that has a wishbone on it and a small mustard colored pocketbook. There was no occasion other than I wanted to make myself feel good and they were both on sale. It was so good to be out of the house, talking to someone new; even though the clouds and rain have been non-stop for two weeks, I felt my heart start to brighten, just a tiny bit. I had done something different.

I posted a sign in my neighborhood to ask others if they wanted to help me help others, to brain storm, ( ideas welcome here too) to perform acts of kindness; something I have always wanted to do but never really knew how to get started. I don’t know if I will get a response but I like the fact that I initiated it. I’m not usually an initiator but it’s about time I became one.

My husband and I drove and rejoined Costco, it doesn’t take much to please me. I actually used the electric cart so I didn’t have to walk the long aisles where I know I get tired and cranky (thank you, chronic pain) and I was proud of myself for the idea and figuring it out on my own. I was proud not to be afraid, proud not to be ashamed. Fibromyalgia, Hashimoto’s Thyroiditis, take a hike, me-1, them-0.

Since my son was not home on Mother’s Day, we celebrated Mother’s Day tonight and went out to dinner. The four of us had “Fother’s Day” (Faux Mother’s Day” ) in a restaurant that I chose. It was lovely and there was no fighting and GASP no cell phone use. My daughter complimented me on my hair and I was thrilled. We weren’t going to order dessert but lo and behold, on this day, every week, (yes, it’s going in my calendar) you get free dessert if you order an entrée. How could we possibly say no? One chocolate cake, one banana bread pudding (with almond ice cream) and one apple crisp (with almond ice cream) later we were completely full, unable to move but incredibly happy.

Bandages on wounds, kisses on boo-boos, soft, warm blankets for being cold. I sensed I needed a sign, a cosmic sign and I contacted a friend, a famous medium, Roland Comtois, who was kind enough to answer me but there were no signs from him. Later in the evening I got my sign on my own telling me I was on the right path: getting out more, being with people, feeling stronger and doing for others; my dad checked in with me from heaven. His initials, as always, blue on orange license plates, on a car parked in front of me, FBF. I should have been more patient for my own signs. I should have trusted myself. Thank you, Roland for listening, you are a gentle, sweet soul; a gift to both worlds.

I’m on my way back, stronger. There will be days when I feel unsteady. I’ve been through an incredibly rough year. It was bound to come out at some time. We had no home for over three and a half months. I had a despicable doctor who was cruel. I felt ganged up on by my mother and sister and that is a horrible place to be. I am stronger now, I will not accept being ganged up on anymore, ever. I have my own boundaries. I am on my way; I will allow myself a bad day or two now and then. That’s okay.

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Days Like These

English: A digital photo that used to be in co...

Image via Wikipedia

 

The trees outside my window are straggly not strong; there is not a speck of sunshine showing through a blanket of thick white clouds. The sky is black and white, with no room for color anywhere. I lie in my bed, listening to music through head phones, for music therapy, and try to get myself out of this funk. So far it isn’t working.

I see the image of my deceased dad sitting in his red checkered robe at the old kitchen table, eating breakfast and I want to reach out to him; today I need nurturing, a soft hand to hold, a comforting voice telling me it’s all going to be okay. Today I miss my dad more than usual. I also miss my pretend Aunt Lore who understood me like a kitten knowing comfort. She was a fellow Libra who knew me and my personality and who understood how I thought and reacted. I could talk to her about anything. She too is gone.

My legs and arms and heart feel heavy. I don’t want to move my head around because that too, throbs. My dog keeps me company, sleeping next to me on the bed. I have no interest in conversations or activities, my stomach aches, my head throbs and I feel like I will feel like this forever. I am in a funk. I am taking things too seriously and I’m having trouble differentiating my physical pain and my emotional pain. I’m just trying to let everything rest and relax. There is a bathtub with jacuzzi jets that has my name on it for later on. Hopefully the force of the water will melt my bad feelings away.

There is no color in my life today, no spring blossoms, no flash of red or yellow or lime green. There is only the stark contrast of black to white or is it just blending together to become gray?  The world outside confirms my feelings. Everything hurts, we all have those days, I tell my friends that. I try to encourage them, now I need to work on myself.

Yes, There Is HOPE For Fibromyalgia

Wildflower

I have made a lot of friends on some of the Fibromyalgia support groups on-line. I was diagnosed with Fibromyalgia about five years ago. Five years that have crawled at a snail’s pace, going backwards and forwards, up and down, down, down. I wanted to write this blog post for all my fellow Fibromyalgia sufferers and tell you that while there may not be a cure, I have improved.

I never thought I would be able to get out of my bed and get to the bathroom without all the serious, horrendous, stiff, and chronic pain I have had for many years. I never expected perfect, I don’t now, but I do know improvement and I have improved. I almost want to cross my fingers while typing this so I don’t “Jinx” myself, I’m sure all of you can relate to what I am talking about.

I will always have good days and bad days, that is a realization I have accepted. I have taken, in the past, probably about thirty different medications in different combinations and this is the fourth Rheumatologist I have seen (and will continue to see.) While your Doctor does NOT have to be your best friend, you should feel that he/she believes in you AND in Fibromyalgia as a chronic pain disease. That’s very important. The Rheumatologist I went to before this called Fibromyalgia a “lazy diagnosis” and attempted to treat my pain with dangerous immunosuppresant drugs that made me sick as a dog for months at a time. He did this because combined with Fibromyalgia, I also have an auto-immune disease called Hashimoto’s Thyroiditis. I didn’t know better so I followed his advice and took seriously harmful drugs at a dosage that should never have been prescribed. This old Doctor was a genius, but not in Fibromyalgia and not in being pleasant and understanding. As my present Doctor put it referring to my old doctor “it’s his way or the highway.” Don’t accept that.

I am now on a combination of drugs that not only treat my symptoms but also have treated my energy levels. I am NOT running any marathons, believe me and I have flare-ups that still can make me cry, but overall, at least on some days I am better. Please, do not give up hope, do whatever you have to do to find a good Rheumatologist and only a Rhematologist that believes in you and the disease. One where you feel that he/she really wants you to get better and that they truly do care. Don’t settle for less.

We all deserve better and I just wanted to say to all my on-line friends (Hi Graceful Agony Ladies, Chronic Babes, ohmyachesandpains, etc.) please don’t give up and thank you for always being there for me; I love you all.  To friends that are new or newly diagnosed I NEVER  thought I would feel any better and now I do. How long will it last? I have no idea. I have accepted my limitations, I accept that I will have bad days as well as good but I can say for sure, that compared to how I felt five years ago, I am better. My attitude is better too.

If anyone is interested in which drugs work for ME, I would be happy to tell you. Don’t give up, I almost did. If you are new to this and don’t know how you are feeling or if you are feeling mad and angry and sorry for yourself; go ahead, you deserve it. Been there, done that and try to stay in the present, not the past or the future. As my dad used to say to me “Be in Neutral.” It’s a life lesson from my dad that has stayed with me, try it, it might help you too.