In The Spirit Of Angels

Water Angel

Water Angel (Photo credit: Hance Gesell)

I Do believe in Angels and Spirits from Beyond. I DO get messages from my dad who has passed. I fully believe in this. It comforts me. My dad’s spirit fuels me. LOVE DOES NOT DIE. Believe in what you want, just don’t disrespect what I believe in.

I know you don’t believe in the things that I believe and I’m not arguing that you should convert. But, at least give me the courtesy of your respect to believe in what I believe without the shared glances and the roll of the eyes. I have never done that to you, not once.

I’m fine with agreeing to disagree but I have seen the judgment and the crazy swirl of the finger pointed behind my back and that I will not allow. I refuse to be disrespected in any way. Got that? Good. I suggest you remember it.

No one has the right to judge my belief systems. If you don’t want to believe in anything that is your personal choice but to have influenced the children with your strong, angry voice I find disconcerting, at the very least.

I  smiled privately at my two signs (heart and wings, pc) that I knew so well but of course I wouldn’t share that with you, I didn’t need to and I certainly don’t want you to make fun of me. You saw the license plate for yourself twice or three times by yourself. Were you just humoring me or was that just a coincidence too?

Vaffa Day - 8 settembre 2007

Vaffa Day – 8 settembre 2007 (Photo credit: ! . © Angela Lobefaro . !)

All that is important to me is that I believe and that what I believe in comforts me, it is the unwavering truth. Signs from my dad, from the deceased is comforting, incredibly comforting and while I know he cannot change things in my life, I know he his with me and loves me and will always support me. Always.

What could be more important than that?

I don’t care what you or they believe in but you won’t find me standing in judgment and voicing my own opinions.

Believe in what you like, take comfort in anything, but do not, ever, disrespect me AGAIN.

I have a voice. I have a STRONG voice,  I am using it. Now and forever.

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How I Stay Healthy??????

Considered a father of Western medicine, Hippo...

Image via Wikipedia

Give Us A Break……

There’s a fundamental mistake here: you are assuming I am healthy and I’m not. Along with thousands upon thousands of other patients I have a chronic pain disease and an auto-immune disease (not to mention others: IBS, narrow angled glaucoma, interstitial cystitis, painful and swollen joints, flare ups and….oh, is that too much? Because I could continue and I could also go blind instantly but that’s another post altogether.

First off, I am really not complaining just commenting and venting. “It is what it is” and it could be a lot worse: pain is not life threatening so I am grateful for that. TRULY. However, Fibromyalgia and other chronic pain disorders ARE extremely painful (and no it is NOT in our minds.) That is totally insulting. Also, there is little to relieve the pain, at best, and certainly no cure. Live with it? Not comforting. If this affected more men than women you bet there would be more research and no tiptoeing around about pain medication. The latest information frenzy that has all chronic pain patients up in arms (and my mother who saw a show on TV!) is that doctors and the media now are becoming increasingly hysterical about dispensing pain medication to THOSE OF US WHO ARE IN PAIN.

To me, it’s idiotic. I have a Doctor who writes prescriptions for Vicodin like they are gummy bears, lots of gummy bears, but when I tell him I have taken one and it doesn’t seem to help the pain, he insists it’s the only pain reliever he can dispense. Does that make any sense to you? Because, Vicodin itself is highly addictive and he writes prescriptions for them all the time YET he won’t write a prescription for half the amount for something different, like, I don’t know, Tylenol with Codeine? What am I missing here? A different class of pain killers? I am not swallowing pain killers for a high, I have tried Vicodin (one pill) on two separate occasions when I was in dire pain. It. Did. Not. Work.

I’m beginning to feel like the chronic pain community should an old-fashioned revolution. All the patients talk about it but I don’t think all of us have spoken directly to the doctors about it. I have but it does no good. Do you know why other patients are reluctant to be honest and I don’t blame them? Because we have to deal with the raised eyebrow, and the ‘are you a junkie quizzical smirk.’ I want to find a Doctor that HAS Fibromyalgia and see what they say!!

Do you think if we have addictive personalities we will misuse codeine and not Vicodin? I KNOW I don’t have an addictive personality, believe me I would have had plenty of opportunities to have one but it’s just not something I would do, want to do or will ever do. Shouldn’t doctors be able to differentiate patients from junkies?

Think about the Hippocratic (Hypocritical?) Oath that says: “First, Do No Harm.” You are causing harm refusing to treat illnesses that are incredibly painful. How about a different warning label? USE ONLY WHEN IN DIRE PAIN. That works! I don’t know anyone personally who would abuse it but I am sure there is a percentage of people who would abuse anything. Don’t punish us, for them. I certainly wouldn’t want to take anything every day if I didn’t need it. My doctor had me on two different medications to prevent pain that didn’t work and I ASKED if I could stop them, he hesitated and I then convinced him and stopped. I WANTED to use as little medication as possible. Frustrating.

In terms of exercise I walk slowly to try to get exercise and if I had the extra thousands of dollars I would probably buy a membership for a gym that has an indoor pool so I could swim but that’s money a lot of us don’t have lying around. My special diet? I usually eat healthy meals, chicken,veggies, salad, pasta, red meat a couple of times every month or two. However, my special chronic pain diet, for comfort since there is no pain relief usually involves Cadbury Creme Eggs, Yodels and Egg Salad Sandwiches. Sometimes comfort, even though it is not a pain reliever, might just make you feel a little bit better emotionally since no one is trying to help us physically.

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