Loving Luka

F/NF words

What do I have to say here, that hasn’t been said before? It’s an ongoing battle, repetition begets boredom, boredom, depression. I’m weary from all our conversations that end up the same way, one of us hanging up on one another. I can’t do that anymore, I won’t.

I’m sitting in a coffee shop, near your apartment, trying to drink a cup of black coffee in a white mug, my hands shake, while the rain continues to flood the streets. I just think about trying to jump over the massive puddles but I don’t have any more energy in me to even try. When I was younger that was my favorite thing to do. Not now.

I feel paralyzed from pain, the pain you inflicted on me. Once, I used to be carefree, like a child, happy and silly and stomp in the puddles.  I am so ANGRY at you. In the past I cared too much and where did that get me? No where. So, instead of being disappointed like I have been in the past, I am turning into myself, safe guarding my heart and not showing it anymore, at least not to you.

Found this digging through the archives. Blurr...

I don’t WANT to care anymore, I’m past that point. I’m not lying, I have cared too much in the past, believe me, you know, I wasn’t always like this. People who have known me for years will reassure you that yes, I have changed but I have chosen that change. Why? Self protection. I’m tired of being bullied and pulled apart like a hungry street dog lunging at a piece of a steak.

You know who you are. You blame me but you never look inside yourself. You need ME? That’s not good enough. You don’t treat me well enough to be on your side. You accuse me of everything you do to me, did that ever occur to you?  I just handle it better. I don’t

need to whine and carry on the way you do, I’m an adult now.  Yes, I went through hell to get here but I survived, barely, but I survived and I am strong.

Don’t you see how your view is warped? I don’t live in the past, I do acknowledge it but deep inside YOU are the one who hasn’t moved past it. Why is it that your true emotions only come out when you were bare to the bones, out of your mind? You loved me then, you needed me then. Not since then with all your false bravado. Because if you did love me why would you be so mean to me all the time?

It’s not a big dark secret, it’s an illness. Like diabetes or cancer, get over yourself. I know you think the world revolves around you, you make it that way, you make it that way. Not everybody else does that.

I know you put yourself first, well, who doesn’t know that? You admit it with pride. ‘A great quality of yours, I’m sure you think.’ Me? You don’t care about me as much as you think. Because if you did you wouldn’t be a bully like you always have been and you still carry on the same way, even after all these years we’ve been together. You could work on a compromise instead of saying “Well, I  just can’t do it, I won’t do it. ” Maybe you can but you have never tried.

I was happy in the past to mediate to reach a solution we can both live by, I will not be influenced by your outbursts anymore. I will stay away. I don’t trust you since you have broken the rules of our relationship time and again and you know you have.  Deep inside you are a very troubled child. I can’t see our relationship continue on the way it has, not at my expense.

I need to put myself first, to care about me now. I hope one day you will be happy without making others unhappy.

 

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The Day After Robin Williams’ Died

I sit in shock even as the news about Robin Williams’ death is sweeping the country on every possible news outlet. Shock moved to sadness and even though I didn’t know this marvelously talented man or his demons, I am feeling his pain. Everyone’s pain. The world is so fragile right now, you can feel it in the the heaviness of the air, the full moon,  in the tension of the world. For some of us, called Empath Intuitives, we feel more deeply, we take on other people’s pain as if they were our own but I am trying hard to separate this one.

I wrote this in response to my friend, the great Jenny the Bloggess, aka Jenny Lawson on her wonderful post about the death or apparent suicide of Robin Williams. Please take a look at Jenny’s site (I reblogged it here if it worked) to read the whole thing, if you don’t know Jennifer Lawson, you really should. My goal in life is to be mentioned on one of her side bars one day! She will cheer you up, crack you up and has been one of my inspirations. She has really creepy (sorry Jenny) habits/hobbies like taxidermied animals but she also does beautiful things for others and that makes you want to be as awesome as she is.

Not to mention, you have never really met the true Beyonce that we, in the Jenny Fan club know. “Knock knock Motherfucker.” You’ll see. It makes perfect sense.

Jenny wrote a heart breaking and heart warming post about suicide and mental illness and all of our challenges in life. This was my reply to her:

I’m usually good for a laugh or a witty response but sorry, I just can’t this time and that’s okay. I know I will get it back but Robin Williams’ suicide hurts in a place where childhood was, we grew up with him. WHY DOES MENTAL ILLNESS STILL HAVE SUCH A NEGATIVE STIGMA, IT SHOULDN’T. WHAT IF CANCER WAS SUBSTITUTED FOR MENTAL ILLNESS? I don’t understand. It is an illness like any other illness and needs to be treated by a professional. I have an anxiety disorder and take meds for it, like Jenny, and it is treatable. Sure, there are some bad days but there are some bad days for everyone. Isn’t it time that mental illness can come out of the closet and be accepted by everyone instead of being a hushed secret? Come on, people, give those of us who struggle with something different, ( I have an anxiety disorder) an encouraging word, a smile, a chance to say “I feel sad/anxious today.”

More money is needed for mental health providers but I’m sure Robin Williams could have provided that for himself. PLEASE, talk to each other or call a suicide hotline. If not for yourself, then for your children, your mother, brother, best friend, your partner, your pet, for me and for Jenny. There’s always someone waiting to listen. I promise. Signed, your friend, Laurie F. hibernationnow.wordpress.com

Call the National Suicide Prevention Lifeline

1-800-273-8255

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  1. www.suicidepreventionlifeline.org

    “Because Hope Is A Marvelous Thing” by me.

An Open Letter To Ellen Degeneres

English: Ellen DeGeneres in 2009.

English: Ellen DeGeneres in 2009. (Photo credit: Wikipedia)

Dear Ellen, I hope you don’t mind me addressing this to you, I just need someone to listen, someone who cares about other people. I thought you were the right person even though I’m sure you will NEVER see it. That’s okay. With the exception of a few best friends I’ve learned the hard way that other people are too busy in their own lives to care.

I DON’T WANT ANYTHING FROM YOU.

I guess I’m trying to think and talk out loud here. I’m lost, and have no idea what happened to me, I have no idea who I am either though I used to know so clearly.

Have I just become a mountain of symptoms trying to blend themselves together in a jig saw puzzle where no piece fits? I’ve made changes, I stay away from negative people, I try to be as kind as possible and pay it forward when I can but still trouble follows me like a black cloud.

Believe me, I am NOT asking for pity. I don’t want anyone’s pity, if I want pity I give it to myself, underneath my three layers of blankets, with the door shut tight, my dog lying next to me on my bed. I don’t want pep talks either, encouraging me that it “is just a phase.” This phase is my life and I have accepted it, I just don’t understand it.  When I try to fight against the “down” period, people tell me not to do that and to be positive. Everything is a mixed message.

You have the natural talent to bring joy to others just by being yourself, I love that.

Right now, I am a huge collection of symptoms that I don’t mind sharing, I’m 57, there are people who are 97 that are healthier than I am. From head to toe: narrow angled glaucoma (eyes) many, MANY painful treatments in my eyes to try to correct that, but its a life long condition, hearing loss (had stapedectomy-operation for ears) the dreaded Eppiglottitis, I don’t wish on my worst enemy, I shiver at the thought, (open, gaping wounds below the throat,) horrific TMJ, shooting pains from my jaw/ear to my brain causing me to scream with agony caused by any random thing and some other facial myalgia the doctors threw at me) which I don’t even count. I have IBS, Fibromyalgia, Fatigue, No energy, Chronic muscle and joint pain, Fibro Fog (not remembering something someone said a minute ago.) General Anxiety Disorder, Hashimoto’s Thyroiditis (an auto immune disease of the thyroid) foot pain, wait, the most recent one and most deadly,  Kidney Failure, Stage 3? (No one ever told me about Stage one or two) I think I’ll stop here.

Now for the social things, I can’t work because of the above illnesses, my husband was laid off for the second time and still is not working. We have two fabulous children who are attending two different state universities and a dog (our second) I rescued from a shelter.

I want you to know that we ARE thankful for our blessings, we truly are. Writing this down makes me realize that even more.Thank you for listening, sometimes it is good to write it down and look at it on paper.

But, am I jinxed? Is this what they call “going through a rough patch?” Whenever I feel I’ve reached bottom something else happens. Do you only know where the bottom is when you finally start climbing up slowly? Isn’t it possible to stay down here forever?

I guess I just have to accept what is going on now, breathe slowly in and out and believe that something good will happen. Someday.

Please don’t “like” this post. I don’t.

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Whoever Said “Facebook Friends Aren’t Real” Is One Big, Stupid Idiot.

An American version of a fruitcake which conta...

An American version of a fruitcake which contains both fruit and nuts. (Photo credit: Wikipedia)

The holiday season is winding down and I’ve read blogs about fruitcake, go ahead, start the jokes… Pass them around like some people did (not me, kids) like a joint or bottle of beer when they were in college. I’ve heard it all, all the silly jokes how nobody likes fruitcake, and everything is artificial, ad nauseam.  My father, when he was alive, ate fruitcake joyfully and loved it; he passed that gene on to me.

I love fruitcake, I honestly do. For years I begged people if they had received fruitcake as gifts NOT to throw them out because I would happily take it off their snobby shoulders. Funny, in all that time, nobody offered me their unwanted fruitcake. Nobody, until recently, one of my Facebook Friends, Sarita, saw me talking about fruitcake and out of nowhere she offered to send me a mini fruitcake that was baking in her oven.

Sarita, is one of my group of Facebook Friends that share a common and unyielding illness. We all seem to have some sort of chronic pain disease, in my case, Fibromyalgia. Believe me, it is not limited to Fibromyalgia (Fibromyalgia generally doesn’t work alone) but comes with many other ailments. I also have an auto-immune disease, Hashimoto’s Thyroiditis and some of my friends share that as well. Others have different, chronic pain but we are connected, perhaps not in person since we live in different places but definitely in our hearts.

When I told my (adult) children that my friend on Facebook was sending me a mini-fruitcake across the country they looked at me with those critical eyes, and the “what are you crazy” stare? “Mom, they said slowly in single syllables, you. don’t. even. know. her. she. could. be. send.ing. you. An.thrax.” I had never heard a more ridiculous thing in my life. Of course I knew her, I have known her for years, we’re friends, we are here for each other, we support each other.  The fact that Sarita was a “stranger” NEVER ONCE crossed my mind because Sarita was my friend and I was hers.

“So, my observant 19-year-old daughter said,  you wouldn’t mind if I was corresponding with some random man on the internet and he baked me some cookies and sent them to me and I wanted to eat them? Well, now that was indeed different, I said. I have talked to Sarita on the phone several times, we’ve been in touch with each other for years and I am not 19 and Sarita is certainly not some stranger. However, my daughter was right, I would not feel comfortable with her taking candy from strangers but I hardly see it as the same situation.

Facebook Friends for those of us with common limitations are not only useful to us but sometimes life-saving, Who knows better what it feels like to be in a Fibro Flare than another Fibro patient? I don’t like to complain to my family or my friends at home because frankly, they just don’t get it. How could they? They don’t have the illness. I’m not saying they lack empathy (most lack it a few don’t) but my Facebook Friends understand what I feel, completely every single day.

To them, I say THANK YOU, for the love and support and the ongoing kindness. We are all here for each other and that means a lot. I need to take a break now, for some more fruit cake and with it some pumpkin bread as well. What did you say about my Facebook Friends? Yeah, that’s what I thought. It’s okay, we are all wrong sometimes……May God or Spirit or Angels Bless these special people in my Life. They are in my life for a reason.

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Hitting The Wall: Fibromyalgia

English: Common signs and symptoms of fibromya...

English: Common signs and symptoms of fibromyalgia. (See Wikipedia:Fibromyalgia#Signs and symptoms). To discuss image, please see Template talk:Adult female diagrams References fibromyalgia-symptoms.org Retrieved on April 19, 2009 (Photo credit: Wikipedia)

Fibromyalgia and Fun. An oxymoron. Who would argue with that? Everyone who has this chronic pain illness.  I’ve recognized a pattern, on a “good” day ( rare)  I can get out of the house (showers are optional) in the morning and I am able to do a couple of errands. The maximum time spent out two-two and a half hours. The other day I pushed myself to three hours and right in the middle of the sidewalk I hit the wall.

Literally, I stood on the street and felt all energy drain from me. I couldn’t speak, walk or focus. Finally, I managed to get to my car and after a few minutes of sitting down, having something to drink and eating some peanut M & M’s, I was  able to drive home. *(Think about doing this fellow Fibro Buddies, yes, its sugar but it’s also protein.) Once home, I dragged myself upstairs with my hands on the stair rails, one step at a time, like a toddler. I flopped into bed with my street clothes on and passed out for three hours.

Rolling around in my brain for the last day or two is a notice posted on Facebook about a fellow Fibro sufferer who has taken her own life.** This is not the first person to do so and it makes me so sad. Was it the pain, the frustration, the depression, the anxiety, headaches, all the above? Did she take antidepressants or anxiety tablets?  Was she faced with uneducated and unkind people who didn’t believe her?  Did people think she was just “complaining” a bit too much or maybe she had a doctor that  rolled their eyes and told her to just calm down and stop whining.

I will never know, but I cannot stop thinking of this woman, so desperate to leave her life, her pain. I don’t know her but I feel FOR her. Yes, we do have a chronic illness that is limiting and there is no cure for it. BUT, through trial and error, it can be maintained. You need to stay and fight for your life, for your children, husband, partner, mother, lover or precious dog or cat. You need to fight for YOU.

We have support groups for this very reason. Please don’t give up. Join one of the many wonderful groups on-line if you need support and, if you are EVER thinking about taking your life, let someone know, a friend, a neighbor or call the hotline below. I’m begging you. I care, we all care. We understand. There is a tomorrow that will come very soon and it may very well bring with it lower pain levels and a better day. The day you are having is probably the worst it can get, give your life another day, another chance to be happy. That’s all I ask for.

**No matter what problems you are dealing with, we want to help you find a reason to keep living. By calling 1-800-273-TALK (8255) you’ll be connected to a skilled, trained counselor at a crisis center in your area, anytime 24/7.

 

Fibro Girl, Grey’s Anatomy And Me

Grey's Anatomy (season 1)

Grey’s Anatomy (season 1) (Photo credit: Wikipedia)

When I think of “Fibro Girl” I imagine a small, spunky superhero with brown hair and round black glasses and a red cape that has a big bold black F on it. I don’t know why I think of her that way but it amuses me. Maybe because it’s such a juxtaposition between her life and mine. She is trying to fight Fibromyalgia with her strength. I have NO strength. When I was FINALLY diagnosed with Fibromyalgia, seven years ago, my strength was taken away.

Our lives with this illness are question marks. It is hard for us to plan ahead. In fact for me, it’s impossible. For people who DON’T have FIBROMYALGIA OR DOUBTERS (seriously? still?)  I am physically unable to commit to a date in the future without the caveat “depends on how I’m feeling.”  People who cannot understand that are not true friends. We didn’t ask for this, we wish we didn’t have it. Believe us.

My current experience with Fibromyalgia is that I am able to do one errand per day, MAYBE two. If I push my limit I’m wiped out and pay for it later with exhaustion/ pain. At the moment I am not suffering as much physical pain as I had in the past. (see past Fibromyalgia posts) There’s always some pain but I have learned to accept and manage that pain because of a great doctor and the right combination of Fibro drugs. Now, doctors are worried about a new “balance issue” which has nothing to do with Fibromyalgia.  More tests, a pink cane….I can’t walk a straight line, two perfect CAT scans. Can we stop now? No.

Fibromyalgia takes control over us. I’m embarrassed to say that I never thought about it that way. Amazing how our lives change so quickly. If stress is indeed a factor, I’m in deep trouble. My husband got laid off 2 days ago. I can’t work even though I want to and we need the money but it’s not possible. It doesn’t seem right to punish us for something we physically cannot do. Not right at all.

We don’t live in a perfect world, although I really do know people who live a charmed life in every aspect of their lives. Lucky them, maybe they have dark secrets but I doubt it. All I want is a break in having to struggle every single day with some new illness or symptom. The umbrella of Fibromyalagia has so many illnesses underneath it I go to the doctor(s) way too much.

Right now, with the weather is getting colder. I always feel worse when it is cold outside. Then, a good time for me is staying in bed with my dog lying next to me, watching Grey’s Anatomy, Parenthood or The Voice. The television has become my life line. That and this computer connecting me to friends with Fibro and without. We do the best we can with what we have. Minute by minute, day by day. We’re in it together, holding hands, on-line and off.

I Already Said I’m Imbalanced So Shut Up

Gallery

I just bought a cane. A dull pink one straight from the pharmacy. If it really helps my balance issue I will special order a  cane that will have turquoise and a tiny bit of shiny silver and beautifully polished … Continue reading

The Songs I Sing

Music ~ Be There For You

Music ~ Be There For You (Photo credit: Daniel CJ Lee)

I have written songs in my dreams for many years. I don’t write songs every night, but once in a while I write the lyrics in my sleep, beautiful words are strung together that blend into a harmonious chorus. Upon wakening, I forget everything. It’s time to take out the notepad and put it right next to me for these times, to try to force myself to remember my dreams and to remember the words to a song that needs to be sung.

Consciously, I don’t know what the songs are about although anything that has to do with me must have love in it and probably conflict too. They generally go together, don’t they? Love spreading it’s wings, love in nature too: the ocean’s symbol for how unpredictable life can be, the sun, darkness, tragedies, the magic of birth, love, that unite us all.  It only takes one lit candle to give light to another. When I was young I thought the world was a friendly place, united and peaceful but I have given up hope. I’m not innocent anymore; I’ve seen too many senseless tragedies to believe that the world is good, too many jaded memories, too many senseless killings.

Physically, my body aches, I can tell when I have a fever when my legs hurt and my skin is sensitive. The throbbing in my head has been constant, aspirin and allergy pills have done nothing. My dog is having a barking competition with the dog next door and that is making my head ache even more. Music, which always soothes me, doesn’t help, even on the lowest volume so I turn it off and lay flat on the bed. My blankets cover me, I try to close my eyes but my arms shake and there is something uncomfortable about me, an illness I cannot define.  Is it Fibromyalgia? Is it a virus? Is it a reaction to the flu shot? Is it my auto immune disease, Hashimoto’s Thyroiditis? Whatever it is when will it go away?

It turns out it takes the better part of the week but it is leaving my body now and for that I am grateful.  I realize, however, that I am saddled with two difficult diseases that make anything hard to live with and to diagnose. Sorry, I don’t mean to be disrespectful but that part alone sucks. I try not to dwell on the chronic illnesses they just pop up in situations like these, I know I have to live with them, co-exist, not in peace but in acceptance.

I look around my bedroom and I feel uneasy, it is the one room I would like to organize and fall in love with again but I certainly don’t have the energy to do it now. I need to love my bedroom, but I can’t, there is too much clutter. Clutter everywhere, this room used to be my sanctuary, a place I would go to be at peace. Now, it represents too much garbage and disorganization, books, perfume, two kinds of deodorant, an old coffee mug, a bottle of water, a flashlight, a phone, old photographs and that is just in one space. I know this is not good for me, I realize it.

I need to clean, to put things in their proper places, to organize my space, my world, inside and out. Whether or not I capture the words of my songs on paper, I need to sort things out in all aspects of my life.  I know that once the physical space is clear, I will make the choice, that the music will be a wonderfully complicated, song with a lot of tenderness, love, warmth, grief and of course, a touch of the blues. It’s real life, after all.

photo credit to above named photographer

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Did I Say There Was HOPE For Fibromyalgia? WRONG.

Flower alone

Flower alone (Photo credit: @Doug88888)

9/13/13

Earth to me. Earth to me. Calling all hallucinogenic hopefuls down to reality please. Yes, I know, I was one of them. Me, optimistic, me. Funny, quirky, stupid, friggin  me. What the hell did I know? DId you believe me? I believed me. I really did until I woke up in reality which was just recently. I used to think of the world as a good place but that stopped a long, long time ago, probably with September 11th. That shook me up and the world still keeps shaking me up and not with good things. I know, I’m a late bloomer and gullible as all heck. There will always be two different “Me’s.” Before and after.

I’m jaded, Jaded and faded and disillusioned. Know what my mother’s advice was to me? “Lower your expectations, “I did. No rah-rah speech from her which is not exactly her style to begin with. My dad used to be Mr. Educational Talk when he was alive, think positive, be optimistic, you can do it if you THINK you can do it. He gave “pep” talks to anyone who would listen and yes he believed it and I tried to believe it too, tried to change. But, at the end of his life he was terribly sick and depressed and didn’t want to get out of bed or listen to his favorite Viennese waltzes that had delighted him all of his life. He was a shadow of himself, a shell of a man, it went so quickly and so slowly at the same time. It’s hard to remember when he was last really happy, I have a photo of his birthday, I treasure that photograph. The birthday candles were lit, he was beaming with joy, but it was many years before his death.

I’ve gone to the dark side. Plain and simple. Life is about love and love is about abandonment. Gone. Hello, I am here. I love you. I now will leave you. Good-bye. You are born alone and you die alone. You should pretty much plan to be alone a lot in your lifetime because no one loves you like your mother or father does, or your spouse/partner. You love your kids more than anything, they are your heart and soul, the true essence of your being but it is not reciprocal. It can’t be. Their children will be the lights of their eyes, you need to stand back and make room for the next generation. You may still be in the picture but not upfront, from now on you are in the background and that is where you will stay, forever.

Remember that post I wrote on feeling blessedly numb and peaceful? Yes, that’s gone, it left as fast as it came. Had to do with children and my dead father and abandonment issues.  Just saying the word in my head brings tears to my eyes. Good old abandonment, am I the only nut job that has this umbrella issue? I would bet not. Life is scary sometimes, it’s the truth.

Many limitations from chronic illnesses: Fibromyalgia, Hashimoto Thyroiditis, I can not walk a straight line, my balance is worse than ever, my stamina is non-existent. I need to go into the city for an appointment to see my rheumatologist and I don’t have the strength to get there. Taking the train and a cab seems impossible, hiring a car service is ridiculously expensive and I can’t afford that. So, I keep postponing it which is the worst thing I can do.

I have to suck up my pride and ask my best friend for help, she’s already offered but I am not good at asking for things. I rather help than ask for help. So, today I have to promise myself that I will ask her for a ride to the city, pay for everything and appreciate that I have a friend I can ask albeit begrudgingly. I know I won’t get better, if anything I’m getting worse.

photo credit:@doug88888

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How Fibromyalgia Stole The One True Love Of My Life

Ocean waves

Ocean waves (Photo credit: This Is A Wake Up Call)

Damn this disease. Yes, I know it’s a chronic illness and I have lived with it for over six years, I try not to complain, but that doesn’t work 100 percent. I deal with it the best way I can and each day is different. It has limited MANY outside activities and it has given me pain, incredible weakness and undeniable imbalance. I can handle pain, it’s bearable most of  the time and when it is really bad take pain medications. It’s the “flare-ups” that plague us, those really bad times that are triggered from….pretty much anything.

I am miserable that I cannot open a jar  anymore though I do not have Rheumatoid Arthritis. That is good news so why am I so weak that I have to ask my daughter to do it for me? My doctor’s prescription : “Squeeze a rubber ball.” Really? This does not give me very much confidence but I try to remember to squeeze the ball, when I remember. Remember? That needs a whole paragraph on its own.

Anyone who has Fibromyalgia will know exactly what I mean: the dreaded “Fibro-Fog.” Remembering to do anything with Fibromyalgia is a diseases in itself. I can recognize a face of someone I went to elementary school in an instant but everything else is cloudy. My family/friends are dealing with a person who never remembers what they say.  Imagine how frustrating it is for them and how embarrassing it is for me. “I’ve told you that five times already…” even I, would get incredibly impatient. I’ve seen one too many “eye rolls from my teenagers” to last a lifetime as any parent of teenagers can relate to. It’s horrible to live in a Fibro Fog, cloudy, all the time. That never gets better and it’s probably the one that is hardest for me. Everyone forgets things occassionally but all the time? It’s not Alzheimers (I’ve had a brain scan) it is from Fibromyalgia.

When we save enough money to go on vacation, I always think: the ocean. I have loved the ocean since I was a little girl. I remember being taught how to jump the waves, when to jump over and when to hold your nose and dive underneath. It was a delicate balance, thrilling and exciting, sure sometimes you made a mistake but that was part of the fun too. You just never knew which way the mysterious and unpredictable ocean would go.

I was thrilled when a few days ago my daughter and I were at the ocean. We rode the waves, the water was a bit rough and as I noticed we were getting pulled by the tide, I motioned her to start swimming back. We had drifted off a ways and I wanted us to go back to the direction where we had dropped our sandals and towels. I went first and then the most devastating thing happened to me. I could not get up and out of the water. Truly. I tried six or seven times to get back up and I could not do it, I tried to stand and before I got my balance another wave would pull me down again, over and over. It was in the shallowest part too, tiny pebbles, sand, strong waves at water’s edge. I couldn’t do it by myself and I felt so discouraged, so sad.  Luckily, my daughter saw me and offered me a hand and I was able to get up.

I couldn’t get out of the water on my own. I found this to be so depressing, so disheartening. My one true love, the ocean, my ideal place to live, had been stolen by Fibroymyalgia. It had taken away my strength, my independence, my joy. My favorite place, my favorite time, my favorite fantasy to dream about for the future, disappeared because of this illness. People ask if Fibromyalgia gets worse?  I  say yes, in more ways than one. It affects your body, your limbs and your pain; but more importantly it visciously tears at your heart, over and over again.