Yellow Magic Madness #29 Spinning Yellow, Out Of Control

Wheel

Wheel (Photo credit: Today is a good day)

I am a very

spiritual person and so I pray. Tonight, my oldest friend is in the ICU, his kidneys have failed him. We were born one day apart, he never let me forget that I was older by one day. Our mothers met in the maternity ward in our old local hospital many years ago. Tonight he is fighting for his life. Yellow magic, Yellow light, The joy of Yellow, the Hope.

My mind is spinning out of control, like a misguided ferris wheel on the wrong speed, it’s going too fast. He went through a bad time physically last year. I feel like I am living in a surreal world. Right now, all I think about, is him. I’m scared and sad and yes, a little angry too. Please don’t die, please. You had a lonely life, but you have us, your friends. Don’t give up. I am begging you.

10:30 PM : My phone rings, I don’t recognize the number, the voice sounds muffled, I hear loud BEEP- -BEEP sounds every few seconds. My friend has called me, I am shocked, happy, relieved, confused. We talk for only a few minutes, I tell him that “I love him, that all his friends do” he becomes emotional; I was so grateful to hear his voice. Let him make it through this night, and another….just one slow day, after another. Breathe…Breathe, Breathe.

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REPOST: FOR INVISIBLE ILLNESS WEEK:Thyroid Disease And Fibromyalgia With A Touch Of Menopause

Don't give up

Image by quinn.anya via Flickr

I am NOT a Doctor. I may see a lot of Doctors but in no way am I one. I don’t pretend to be one. However, I am a patient, a chronic pain patient and I believe I know a whole lot more, personally, about these subjects than some Doctors do. Sorry, but it is true. This is only what I THINK, only what I FEEL and only what I have EXPERIENCED. For those who have read earlier posts about my dealings with Fibromyalgia, Hashimoto’s Thyroiditis and Menopause, this is different; I’ve never once put my own theories down on (computer) paper. Also, for the young woman who responded to a post saying she will check out Fibromyalgia even though her Doctor said “He didn’t believe in it”  YOU GO GIRL!

I hope this will take the five or more years of suffering that I had to go through and help someone; HELPING just one person would make me extremely happy. I mean that from my heart. I think there is a correlation with the above- mentioned diseases/changes, at least for me there was, especially with Thyroid Disease and Fibromyalgia.

I went through Menopause about five years ago, it wasn’t too bad, I had the usual symptoms but it wasn’t anything I couldn’t bare. I think that Menopause was the catalyst to all these (bad) changes in my body. After being in menopause, I went to my annual physical where my Internist did the usual blood work. When the results came back, for the first time in my life, I had an underactive thyroid. (Thyroid disease DOES run in my family, both my mother and sister have it.) I was put on Synthroid (my opinion ONLY: I use brand name, NOT the generic.)  My symptoms were chronic pain, muscle pain, severe aches and pain, and extreme fatigue.  My own quote: ” I felt like I had the flu without the fever.” That is what I felt like day in and day out. I thought the Synthroid  (for my underactive thyroid) would help but it never did. For months I was in bed feeling worse and worse, my said Internist said “there is nothing further I can do for you” and walked out of the room leaving me inside, on the examining table, sobbing. True story.

She finally referred me to a Rheumatologist who looked at me and said I had “Scoliosis” and that with my thyroid disease (an auto-immune disease: Hashimoto’s Thyroiditis) I should be prepared to get OTHER auto-immune diseases. Gee, thanks. There was no mention of Fibromyalgia and since when did I have Scoliosis? Whatever.

I felt horrible, chronic pain, muscle pain, joint pain, I could barely get out of bed. I won’t even mention the doctor ( he gets lower case on purpose!) that I went to who treated me with very DANGEROUS drugs, I will spare you that. I have Fibromyalgia and I really do think, there may be a connection between Thyroid disease and Fibromyalgia. AGAIN, I am not a doctor. However, I recently read about a new study where they are trying to see if T3 levels are linked to Fibromyalgia. (Promising!?)

Please, if you are experiencing all the symptoms I mentioned, don’t let an ignorant doctor make you feel like a fool. You know YOUR body best. Keep fighting, keep researching and, go to a good Rheumatologist, this is the Doctor that you need for Fibromyalgia. I have a friend who has a Thyroid condition like me (Hashimoto’s Thyroiditis) and a severe case of Fibromyalgia and she only goes to an Endocrinologist. Big Mistake but she will not listen to me. Don’t be like her. I just want to help. If you do see a Doctor that scoffs at Fibromyalgia and doesn’t believe in it: leave, do not stay. Check out your Doctor on-line, I chose mine from a list that said he believed in Fibromyalgia, treated it and patients loved him. I am one of his biggest fans. You deserve this too. Good luck.

poor sad little girl

Sadness

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my heart aches for someone i have never met. poor sad little girl is in a hospital and i didn’t even know it, she never told me. little clues started appearing that didn’t make sense and she finally said “i guess i’m good at hiding things well.” i do not know this person yet i feel so sad for her, with her.

it’s nearly christmas and the new year and i wish poor sad little girl had a place to go to, or something to look forward to. i asked her to think of one teeny tiny thing that makes her happy, a book, person, or a television show, a food or a thought and she said she would have to think about it and would get back to me. that is heartbreaking; poor sad little girl should be able to say one thing at least that brings her even a tiny bit of happiness but she can’t and i understand that, i do. my life is far from perfect but i could in a minute mention silly things like eating multi-grain toast with butter, honey and cheddar cheese or the smell of a mug of jasmine tea or i could say that my husband and two kids and my dog make me happy but i was hoping she could find something all i wanted was for her to mention one thing but she couldn’t come up with one right away and she probably can’t but she will one day soon i hope.

i want to nurture everyone, save them, make them happier, it is just part of my personality and it comes naturally to me? perhaps it is because i am a libra or because i am intuitive and sensitive. sensitivity is not necessarily a good thing really. you feel things strongly but you don’t just necessarily pick up on other people’s feelings you feel them too. too much so that it ends up affecting your own life and you need to find a delicate balance and shake yourself back to your own reality and know that there is a difference.

don’t give up poor sad little girl, and all the sad little girls out there, don’t ever give up and please try to remember that things will get better, really they will. there are people who love you and  each of you have a purpose in this life just sometimes we all get lost a little bit and we need to find our own way. and i know that you can and that you will, just hang on tightly all of you.

poor sad little girl, i am glad this year will end in a few days time. and i wish, like magic, that you wake up in the year 2011 with twinkling eyes and soft white hands and at first a tentative smile but then a broad smile like a slice of fresh pink watermelon.

this is my prayer.

DEDICATED TO MY SWEET GIRL, ALI and for all the Ali’s in the world. Love, “MUM”