Eppiglottitis: Dear Innocent Souls, YES, You Can Get It Again. (I Should Know) 4/2013

English: Title: Torture Chamber of the Inquisi...

English: Title: Torture Chamber of the Inquisition. From ‘A Complete History of the Inquisition’, Westminster, London 1736 (Photo credit: Wikipedia)

The plight of those of us who have suffered from Eppiglottitis, an illnesses/virus/ torture/infection has gotten way with too much pain already and NOT just in the United States. People from many countries around the world share the pain. I know that for sure. There are searches for Epiglottitis on my blog, always. Today there was a search, from some poor, innocent soul who asked: “Eppiglottitis, is it possible to get it twice?” Oh, dear one, I just want to give you a great big hug and plant gentle kisses on the top of your sweet, innocent head.

Yes, you can get it again. In my blog I have written about the two times I had Eppiglottitis and how I wanted to beg, borrow or steal major pain killers from hospitals, doctors or become a gangster and hang out in the streets to score illegal drugs (okay not really ). People really do not understand the amount of pain that this  illness brings and frankly, unless your ENT (Ear, Nose and Throat, Doctor) has had it, they don’t know a thing about how painful it is either. Not for one second. The only people who know are the people who have had it or are going through it now. Do I smell the beginning of a support group?

What does it feel like? It’s like taking a scalding steak knife and searing your huge, ugly, raw open wound, repeatedly (obviously with no anaesthesia) over and over again. It is impossible to swallow because the pain is so excruciating but really what choice do we have? The last time I had it I was on a cocktail of medicines, steroids, a throat rinse, antibiotics and whatever else they threw at me but what I needed was a morphine drip and a sleeping medicine that lasted a solid week. I wish.

When I couldn’t stand the pain anymore I dragged my body to the medical group, to the ENT offices before they opened and BEGGED for someone to see me. I was in so much pain that I was crying and I looked like all hell, pale, distraught, helpless and hopeless. This is not something I would normally ever do. I was so grateful that they let me go sit in the office chair, who knows, maybe they were afraid of me. I WAS afraid of me. When the doctor came in, he scoped me, which requires putting a tiny tube through your nose to see beyond your throat. He literally gasped and said “How the hell did you get THAT?” I was not in the mood for rhetorical questions nor was I feeling combative. I just wanted him to tell me how on earth to get rid of this demon that had taken up residence in my body.

Apparently it’s not common to get and very difficult to get rid of, I live in fear of getting it again and I assure you, every Fall I think about it when the weather turns chilly although I am sure I could get it at anytime. Another doctor suggested that if I get it again to go see an Infectious Disease Doctor in addition to my ENT. Great, that’s what we need, to waste more time in doctor’s offices waiting to be treated. I’d rather check into Rehab so I could become a drug addict for pain relief until it healed.

I’m here for support, questions and comments. I am not a medical doctor, no, I’m better. I’m a patient who knows exactly what you are going through. Ask away or just complain, it’s not anything I haven’t complained about already.

Haiku Heights – Script

Moon

Moon (Photo credit: penguinbush)

Three stars

Three stars (Photo credit: Wikipedia)

Lying lover’s mask

fast twitch, breath, brown eyes, lips tight

I thought I knew you.

*********************************

Two angry people

shout, kick each other with words

wounds raw purple, blood

***********************************

Two lovers dance

Moon as their backdrop, stars swim

A fine performance.

*********************************

His once perfect script

became chicken scratch, later

As he sat, dying.

WRITE RAW: That’s the price of admission (no editing)

“I didn’t want to belon in their stupid club, I told you that, Mom, I said I didn’t want to but you didn’t listen. You never listen. I said NO. why did you have to push me and talk to others to get me in to a place I didn’t want to go in the first place. Why? To embarrass me as you usually do? No, don’t give met hat “I thought you would have a good time” I said I hated that place and you know it. You lied to me because I said I wanted to stay with Dad this summer. He said he might call, so he hasn’t yet, so what? There’s another week and a half, he could call by then. Why don’t you ever give him or me ghe benefit of the doubt?

Anyway, I’m not going there, no chance. So not. I am not going to that obnoxious club with those stupid girls that think the only thing more important than getting a tan is going into Abercrombie and buying 30 dollar tee shirts. Uh-uh, no way.Why are you saying I’m being unreasonable, you’re the one that is being unreasonable. Compromise? Fine, I’ll try it for a few days but that’s it. You can’t force me, I’m NOT being fresh, fine, ok, I’ll go and try to give it a chance but maybe I will hear from dad and then all bets are off. Deal?”

I went into my room and closed the door firmly, I was in enough trouble already for talking back to my mom and refusing to go to the swim club she enrolled me in. It;s not that I didn’t really want to go but I was so hoping I could stay with my dad in San Francisco like he promised this summer. I hated thinking he had broken another promise and that’s what I was really mad about. I brushed the tears away from eyes quickly, my spiky black-blue hair stood up and I muffled my sobs in an old bandana that my dad got me when I was  little. My parents divorced when I was 5. I’ve lerned never to expect anything from him but it still hurts, kinda.

He never called, not that day or even that week. When I called him he didn’t even remember what I was talking about. he was a big deal record producer and he was usually high as a kite so i tried not totake it personally but I was upset and i knew my mom could see it. We just didn’t talk about it. I decided to go to the swim club because I had literally nothing else to do, all my friends were supposedly there and sitting in the house for one more day with my mother and aunt was jsut not an option.

I didn’t even tell them I was going, just drove to the club, with my towel and some food and went in, they didn’t even check my pass, well, because they knew me and I guess my name was written down there. I sat with some of the cool kids that were there, they acrtually iinvited me to sit with them so I did. They were complaining about their summers so I told them about mine and my dad and they thought it was awesome that he was a record producer and all that.When the life guards weren’t around someone brought out a couple of joints and passed them around. I had never smoked them before but hey, I was bored nad my mother forced me to come here so I thought why not? She said she wnted me to come here, well I was smoking dope now, that’s the price of admission, as I lay ther stoned out of my head and lying back in the sun.

I went back every day, smoking every day, drinking beer too. My mom didn’t notice a think except my eyes were red and I told her it was from the chlorine. My friends and I hung our all day and night together, we got pretty trashed but it was something to do. I HAD wanted to go to San Francisco with my dad but I guess he was too busy for me, well, I don’t want to go there anymore. I’m happy here with my friends, smoking weed, every single day.

Sorry, Whitney, I Have No Tears Left

Whitney Houston  Central Park, NYC  September ...

Whitney Houston Central Park, NYC September 1, 2009 (Photo credit: asterix611)

Sure, I gasped when I read the headlines last night that Whitney Houston, an incredibly talented singer had died. I gasped in shock for the unexpected news but after that, I didn’t cry. I couldn’t, I had nothing to cry about. So, instead of being sad, I felt incredibly MAD. Mad like, is anyone going to LEARN something about drugs and alcohol (allegedly) and using and abusing? How many more people have to die before someone gets it and says “You know, might not be such a smart idea to party all the time.” WHAT DON’T YOU UNDERSTAND?

We have lost, NO, we have not lost them, they lost themselves to drugs and alcohol (yeah, yeah, allegedly). Do I really need to name them? Fine, Michael Jackson, Amy Winehouse. Go back in time: Janis Joplin, Jimmy Hendrix, and I am just listing a few examples from hundreds.  Such amazing talent from so many people gone, because they wasted their lives partying. I know addiction is an illness and it’s hard to beat but there are places to go to and programs to attend if you really, really want to stop and change.

Where was her family? Dionne Warwick, wasn’t she her aunt? Did Whitney have a mom named Cissy? I could be wrong. Cousins? Best friends? Old, clean, boyfriends and girlfriends? WHERE THE HELL WERE ALL OF YOU? I know it’s not your fault, it’s Whitney’s. Whitney, you had so many YEARS to try and get sober and clean. Did you once think of your daughter. My G-d, how selfish is that? Does the word “intervention” sound familiar to any of you?

I’m just frustrated with this culture you “stars” live in and I know it is not limited to celebrities. Are we glorifying these singers/actors/stars with our moments of silence and our adoration? Well, now we must buy ” The Best Of…….”They killed themselves, willingly or not, for a long time using drugs and alcohols and pills and whatever else was printed on their personal menus. Enough is enough. They are not heroes to me. They are poor, lost souls who had everything and lost it for fame.

On a more personal note: Lindsey Lohan: I’m still watching YOU.

Rx: Ginger Snaps

ginger snaps

Image by sweetbeetandgreenbean via Flickr

I have self- prescribed a new medication that treats many of my annoying illnesses, my arthritic hands, my painful legs and general muscle and joint pain. You can find this medication at some drug stores and every grocery store. You don’t need a triplicate, you don’t need a physician’s signature and no one will think you are crazy if you fill this prescription; they will not look at you crossly if you double the amount. You don’t need to plead with your Doctor or Specialist and you don’t have to see their withering looks when they deny you the medication.

My new drug of choice, are ginger snaps. At first, I bought them on a whim. Then, seeing the improvement in my mood, I bought them again and I think they help more than the other six or seven medications that I am on for Fibromyaligia, or Hashitmoto’s Thyroiditis. Nothing else seems to work so I may as well get enjoyment out of this prescription.

I don’t have to eat ginger snaps on a full stomach or two hours before eating: there are no instructions. I eat them when I want. More importantly, I don’t resent this drug for not working as much as I do all the others. They are not covered under my insurance plan but that is alright, they are reasonably priced and always available. They are my treat after long days trying to adjust to a new, busier schedule. My husband is working full-time now while I am still feeling my same old, tired, achy self.  I have tried the generic brand instead of the name brand and I am completely satisfied with either choice.

The first bite, those of you with (TMJ) might think about putting the cookies in the microwave, for a while before digesting.  Nuke to taste. Or, just suck on them for longer joy and satisfaction. You can also dunk them in a lovely cup of Earl Grey tea, milk or coffee. There is no real overdose danger except your pants might feel a bit snug if you eat the entire box in one night but that side effect has never been reported (and who would report it??)

It stands to reason that this particular drug, unlike Oreos, Milanos, Twinkies, or Chocolate Teddy Grahams, is a guilt-free treat. My point is, I feel like they are entirely medicinal. My stomach feels soothed, my mouth has something to crunch on that is not  boring old celery and I get many different taste sensations in one bite. The first bite fills you with a very hard crunch, be wary of any loose teeth you may have. The “ginger-esque”  burn comes at the end: during and after your last swallow. The only problem I see with this medicinal treat is that they are highly addictive so make sure you have a box or two extra, hiding in your pantry or medicine cabinet.

I pretend/know they are healthy and I don’t even look at the calories, fat grams or carbohydrates. Here is my theory:  if they are not sweet, they are definitely good for you. If anyone else has down the same medical research on this drug or any other, I’d love to hear about it.

Pop Cop: Lindsey Lohan (Get A Grip)

This mugshot is found from http://www.perezhil...

Image via Wikipedia

I read today that the quintessential Lindsey Lohan is headed back to rehab for violating the terms of her probation. Really. If it were up to me I would  boot her skinny white ass to jail where, I think, she belongs. Forgive me for being crass but let’s take the rich, glamorous, Hollywood glitz and celebrity status out of this situation and then do the math.  Replace Lindsey Lohan’s name with an UNKNOWN drug addict from ANYWHERE:  Hawaii, Nevada, Florida, New York, a tiny crack house in Los Angeles ( you pick) and then hand down your verdict. Remove the expensive lawyers, the media frenzy and the public’s fascination for Hollywood and where does that leave you? Probably in jail, with the rest of the people who don’t have a ton of money for rich, top-notch lawyers. If this case involved an unknown, “regular” person would they too receive the “get out of jail free” card? Not in my opinion. I don’t think they would get the same number of chances when they relapsed either.

How many “do-overs” would we get for the same exact crime?  Many people have drug and alcohol addictions and I am sure its an extremely difficult thing to go through but, in my personal opinion, it was made easier for Ms. Lohan.

I’m sick of a justice system that allows a young addict like Lindsey Lohan to go back to a rehab program instead of sharing a cell in the county jail (oh right, I forgot, she had her own private cell when she was in jail.)  Where is her orange jumpsuit now? What privileges have been taken away from her? They even removed the SCRAM bracelet that detects drugs and alcohol from her fragile, famed, skinny, ankle.

What’s next for Lindsey Lohan after rehab? Perhaps a movie career, a modeling job or a talk show host for the daytime diva.  I seem to be missing the part where she is supposed to say “I am totally responsible for my actions.” I don’t know what will happen to Ms. Lohan after her stint in rehab; I have no idea, nor do I truly care. In all likelihood she will be able to work on her clothing line in rehab and will reap the financial rewards when she gets discharged.

Will Lindsey Lohan go the route of Anna Nicole Smith? It’s a possibility, I’m sure. It’s in her best interest to finally get herself clean, I’m just not sure if she can stay clean and sober. For her sake, I hope she does. She has brought this upon herself, partying to all hours of the night with her friends; touting liquor like it was her favorite lipstick. Get clean Lindsey, you’ve been given yet another chance. Don’t mess it up.

Prednisone Bitch, Part 2 (ENERGY!!!)

The Energizer Bunny

Image by Ben+Sam via Flickr

I just made 5  huge portions of baked ziti and covered them all with shiny aluminum foil. I put two small portions in the freezer, for my daughter (she’s a vegetarian) I made a big one for all of us to eat tomorrow night and made 2 to give to a friend.  I also made chilled peach soup with spices  for my friend and bought her a still-warm Italian bread from the bakery as well as a bag of brownies. I delivered the food, found room in our crowded refrigerator for ours and practically buried my head in the freezer to make room for the rest.  I have folded three loads of laundry, have one load in the washing machine that I will soon transfer to the dryer. I loaded the dishwasher and ran it, and then washed various pots and pans by hand, rapidly. This is so not me, this is me on steroids; I could be a walking, no sprinting, advertisement about drugs: this is my body on steroids, this is my body without; what a difference!  I am spritzing  Fantastik on paper towels to wipe up spills, I am cleaning up the house. My movements make me dart back and forth and I am talking at a really fast pace. I actually think my husband prefers me like this, the “energizer bunny” onspeed and not my usual low-key self. He better not get used to it because in a few days it’s all over and I will be back to my old chronic pain and fatigued self. Unfortunately.

I know it will be depressing when I come 0ff of this steroid high but it’s amazing how good I feel. Rush, rush, rush. My fingers can’t  type as fast as my thoughts are running, streaking through my head. My son, looks at me both amusement and  concern: “Mom, calm down” he advises, but I explain to him that I cannot. I will however, be back to my usual sub-par pace in a mere few days. As for now, I feel chipper; a little too chipper. Remind me later, friends, when this wears off, what it felt like to read this, to feel this, to embrace this because every day I will feel less and less energized, more and more lethargic. I am the movie “Cocoon” for those of us old enough to remember. I am “Cocoon” the re-make, 2010.

Luckily, the bitchiness of the first day is over and I am no longer throwing darts, figuratively, at someone’s head. I am not sending off vapid e-mails and insulting comments, that was bad-me, ” Prednisone Bitch-Me.”  Thankfully, she  has left, departed, disappeared, leaving behind sparks and energy.  It was as if wild-me had been let out of hiding after many years or I had broken out of prison. The energy is here, the meanness is gone, it was a good trade.

Perhaps I will go to bed late tonight ( can you see me tiring out quickly?) and do a few more chores, instead of what I usually do: read in bed, watch a little Food Network television ( or Bravo or Travel) and play on my computer. Luckily, I have already DVR’d a few shows, which I have never done before but accomplished that this morning after my first cup of really strong, aromatic, Bustello coffee. Now I know that I can watch these shows at my leisure, when leisure finds its way back to me, say in about 4 days or so. Right now, I can’t at all describe myself as leisurely.

The first night I was on Prednisone I was roaming the house, inside, up and down my 13  carpeted steps because I could not fall asleep, I was up until after 2am, now I know why. Last night, with my allergies so bad I had to take a Benadryl, I nodded off at about 12:30am. My usual bedtime sans Prednisone is about 10:30 and that’s on a really good night.

My mind races, my legs, that usually, carry the weight of the world, walking slowly  and painfully in sneakers has all but disappeared. I am practically frolicking. It’s like a vacation from chronic pain, fatigue, fog, and lethargy. I am very alert though when someone is speaking to me I don’t listen as carefully because my mind is already formulating the next sentence.

I’ve typed this whole page in less than a few minutes but don’t give me credit. In a few days I probably look back and say how artificial the feeling was, how the energy was just too much. Will I do that? Probably not. I will remember how I felt with great fondness and longing. This is not what normal people feel either, this is steroids, pure and simple, artificial and dangerous and today, it feels good. I’m not going to lie.

Prednisone, Bitchiness And Me aka The Prednisone Bitch

edvard munch - the scream  1893

Image by oddsock via Flickr

I’ve been on Prednisone before, twice, and both times made me feel groovy, great. I was high on life, my muscles didn’t ache and I was a joy to live with…Not this time. There seems to be an evil lurker inside of my body making me say things without my usual filter and ultra-edit.  I don’t think I am making up the things that I am saying, I just think that Prednisone is making me babble. Like some people on alcohol, their defenses are down, their mouths are open and wide and sputtering. Prednisone to me, is like alcohol and it’s not being easily tolerated by me or frankly,  by my husband.

The worst thing about it? I really don’t care. I feel like a fight and am already on the way to one without stopping at GO.  I’m a loose cannon, feel a little speedy and don’t feel the love tonight. Not from the Prednisone and not from my husband who was/is the unwilling recipient of my sudden quick-fire burst of anger. I don’t think he is in the least bit amused.

I am a lioness growling, a bear attacking, a leopard changing and colorizing it’s spots.   I have never felt this way before but I believe I know what the side effects to Prednisone are….well, at least one of them. I’ll probably gain ten pounds just from eating salad and dry chicken and then I will really be hooting and hollering. Back off, man up, stay away, give me a wide berth. NO, I did not say GIRTH.

I am trying to breathe a little normalcy into my body but the nice person inside me, way deep down inside me, is not having anything to do with it.  It’s laughing at me, taunting me, making me grimace and snarl. This is only my first day of Prednisone, I have 8 more days to go. This could get ugly, oh wait; it already is.

The Door Between Madness And Sun (Fiction)

No matter what people tell you, once you have the label you’re stuck with it. You can’t ever lose it. I see it on my parents’ wrinkled faces and a few of my old friends from grade school.  It’s attached to you like one of those mechanic bracelets or anklets they use for drug and alcohol addiction, except it’s invisible. You’ll always be the family with the daughter who committed suicide, or the brother whose sister died when she was five or the husband whose wife had a stroke at 35. It’s a well-known fact although people say it in supposedly hushed voices. There’s nothing hushed about it, whether they speak it or shout it or think it. That’s forever and for that I am sorry. Really.

My name is Lindsay and I’m 18 years old. I had been best friends with Kaitlyn for many years when we were younger, we grew up together you could say.  Things changed a lot when we both started high school and we just grew apart. I guess if I am honest I grew apart from her.  Kaitlyn didn’t know what to do, she used to kind of hang around me but we had nothing to say to each other anymore. I felt bad about it but mostly I just wanted to forget the past and move on to the future. If she couldn’t handle it, it really wasn’t my fault. She couldn’t figure out that I had grown up and changed and I didn’t want to explain it to her, that seemed so lame.  I started liking cooler kids that were different, but she just didn’t get it and wouldn’t leave me alone.  I heard her tell people I was weird.  I heard her tell everyone I was a freak; not a really nice thing to say about an old friend.

Kaitlyn knew I had tried drugs and alcohol a few times but I never went into details with her, it was none of her business. I was a senior now and wanted to feel free and grown-up; I deserved it. I started to steal things and someone would ask about all these new items, I lied and told people they were presents. Well, in a way they were, they were presents from me to me. I couldn’t deal with all the questions and my old friends couldn’t handle it. I had moved on but they hadn’t and that was fine with me.

After awhile people looked the other way when I was around and I was glad.  Once at a school talent show I threw my pack of cigarettes across the room just for attention; people literally freaked out. So I flirted with guys and played around; big deal. All my old friends were just so immature. People talked about my drug use; I admit I used cocaine, pot, pills and yeah, I tried acid but only once.  If I hadn’t gotten so wrecked that one time and had to call one of my old friends to pick me up at a party one night because I couldn’t find my car, no one would never have known. But, of course the little snitch that picked me up told that story to anyone and everyone she knew.  Bitch.

I know my  parents were worried but really, I was fine. They even called the police on me, imagine calling the police on your own daughter.  I told them that I was just a normal teenager doing teenage things but they would cry and scream and yell at me all the time. It got so bad that I learned how to tune them out and when they yelled I couldn’t even hear them anymore; I became numb. Numb felt good because it didn’t feel like anything.

The night I did it, I watched Kaitlyn go to sleep in the big queen bed we used to share on sleepovers. She lay in her room with while outside the snow and sleet pounded to the ground. She had curled up in her bed, I remember she used to be scared of storms and wind.  She still slept in her old room that she never bothered to update with posters or good make-up;  she liked things just the way they were. It was like we were still seven years old, her pink room filled with old stuffed animals and those fuzzy pink heart pillows; she could never throw anything away.

I saw my dad calling Kaitlyn’s mom, her mom picked up the phone and started to cry. I never thought that would happen. That morning at 6am I saw Katie’s mom walk quietly to Katie’s room, it was like looking at her walk in slow motion. She tiptoed into Katie’s room and sit on her bed for a long time.  I saw the shadow of her mother peering from the dark room before Kaitlyn even sat up. Her mom’s body was outlined against the blazing orange hall light as if she had been outlined in a crime scene. Katie started to stir and was surprised when her mother was sitting next to her, she was confused. “Katie, honey,” her mother said ” I have really bad news” and I saw Kaitlyn’s whole body freeze with fear. I knew she was thinking about her father, her brother in college, her grandmother and grandfather. She didn’t even think about me for one second. So when her mom said ” it’s about Lindsay” she had no idea what was going on. Katie’s mom continued” ” I just got a call from Lindsay’s dad and Lindsay……..Lindsay is dead, honey. She committed suicide, I am so sorry.”

Kaitlyn was absolutely still for a few minutes, she didn’t move and then she started shrieking and screaming “No, No, No” over and over again. My dad’s terse message didn’t help you know, he could have been gentler.  How was Katie supposed to react? He just said that he had seen me take some drugs that I was nervous and mad and I had been crying.  He thought I was asleep but I wasn’t, it was time, long overdue and I had to get out. I had been in so much pain that I had to go, had to get rid of all those bad feelings that would never leave me alone, so I did it.

All Kaitlyn had to do is ask the question in her eyes, because she could not find the words, and her mother answered slowly “she hung herself.”

I watched Kaitlyn, crying,  laying on her bed.  I didn’t think she would care that much; we hadn’t been friends in years. I saw her stare at the ceiling and she rocked herself back and forth like she would do, when she was little and when she was really scared. I saw the morning light, the early sun, creep into her room and stop on her face; she was very, very pale. She had put on the friendship bracelet which we made for each other years ago. I’m sorry,  I didn’t know what to do, honest, it felt like the best way out. For me. I had to go. I really did love you, I just hated myself.

I slipped out of her room and disappeared into the night air. It was snowing and was very cold, but I felt nothing and that was good.

The Methotrexate Blues

Oh me, oh my.  My poor, poor stomach. I am feeling sorry for myself and I don’t care.   I take the drug, methotrexate,  twice a week for Hashimoto’s Thyroiditis, an auto immune disease. I hate it. A few hours after I take it (with food, without food,  after food, after a lot of food) my stomach feels like it’s going to explode, and generally, it does. I get cramps, feel horrible, and look worse. I look pasty, have NO energy and have to stay in bed. And I sleep. A lot.  Is it worth it?  I really do not know. That is what I am grappling with today as I lie under my covers feeling cold and weak and on your one to ten stupid scale, Dr. Guru, I am a 2, and that’s rounding up.

Yesterday was one of the best days I’ve had in about 18 months. I had energy, I had spirit, I had faith. I went to the grocery store and happily shopped for an hour and a half. I walked, I strolled, I tilted my head to face the warm rays of the sun. I was so happy. So I napped for a couple of hours in the afternoon, I was fine with that!

In the early evening, my husband Dan and I went to my sister’s house for a cozy  dinner with her and her husband. She made tacos, with chicken, cheese, yellow rice, crisp lettuce, red beans…..and we all laughed and chatted amiably and I shared a Diet Coke with her. We sound exactly the same and we usually interrupt or laugh at the same second.  She told me that I “looked really good” and I was absolutely delighted. I felt good, I felt happy and now I am paying a price. A huge, unfair price.

Went to bed at midnight last night and woke up at 12:00pm this afternoon.  Took four of  those horrible tiny yellow pills, the “M” medication and from then on  felt like_ _ _ _. (Fill in the word of your choice). I couldn’t make it out of bed, except to use the bathroom, and I had no energy; believe it or not, I needed a nap during the afternoon.

I’m resentful and disgusted and depressed. I went from such a wonderful day to a pathetic day. I AM thankful for the one wonderful day I had, believe me, but at what cost?  If there was a pattern I could adjust to it but there is none. I don’t have an instruction booklet for my own body and my body has a life of its own.  The only change that could possibly  made in the future is that I inject, yes, you heard correctly, inject the drug directly into my thigh. Hopefully,  this avoids the stomach complications but I haven’t gotten a definitive answer from the Dr. on that.  I’m cranky and frustrated and  the next time I see an orange it will probably be to teach me how to inject myself.  Swell.