Living With Pain Vs. Pain For The First Time.

Wisdom tooth1 (Photo credit: Wikipedia)

My 19-year-old daughter had her lower two wisdom teeth removed this morning. They gave her a little laughing gas while we kept her company until her surgeon appeared (20 minutes later) and then he turned on the laughing gas way up high. After, he sedated her so she fell asleep and when she awakened she was the most giggly girl I have seen since she was about five. It was delightful to see a glimpse of my grown-up daughter back in time when her defenses hadn’t evolved, her moods were just plain happiness and silliness and she looked at her brother and me lovingly.

Back at home she is still high as a kite but experiences no pain, she refuses to even try to go to sleep even though as her mom, I see she her blue eyes are closing and that she is so tired.  Being her mom I was a nervous wreck last night and I told my son sleepily when he came to wake me up: “they should give anxiety sedation to the moms, not to the teenagers.” Anyone reading this that’s a mom will know exactly what I’m talking about, right?

Having Fibromyalgia, I know what Pain feels like but I’ve known it many times. I’ve had the “dreaded” Eppiglottitis two or three times that is more painful than childbirth and I dread it constantly. Childbirth is no picnic but that’s a different pain. At the end you know that you will get a reward: your new baby so it doesn’t really count as much and it’s a pain you mostly forget. Notice I said mostly. I’ve had broken ankles and broken wrists, I’ve had my tonsils out and my gallbladder removed so I have known pain pretty much early on and often.

I had fallen asleep on my bed for a few minutes today when my daughter woke me up her painful grunts and her cranky face. “It hurts” she whined and I knew that it must. She hadn’t slept and the sedation had all but left her body and she hurt. I brought her back to her bed, removed the cotton from her mouth, got her some raspberry yogurt as requested because she was “hungry” and afterwards helped her to swallow a pain medication that her doctor prescribed.

By the time the medication worked (a good 25 minutes) she moaned and groaned and complained about the pain. I felt the pain as much as she did if not more. Parents, you know… Then I realized something and I asked her “Is this the first time you’ve ever felt pain?” She said yes, quite honestly. The scowl etched on her face forming deep, unhappy lines. I thought to myself, “oh my God, maybe she will have more understanding about what I go through with Fibromyalgia, intense pain, most of the time.”

It seemed like I had always known pain but when I thought back I hadn’t known it until I was a young teenager and tripped over myself in my parent’s living room, causing my ankle to swell up to a deep purple ball and going for an X-ray for confirmation that yes, indeed it was broken. My first cast of many, I was 15, I remember and I was in high school.

It’s not likely that my daughter will be more sympathetic to my pain or even understand it, kids forget things so quickly but at least I know, that she’s never had a frame of reference. Maybe now she will.

Carry on Tuesday: Once Upon A Time

Out of fog Bay Bridge and Golden Gate Bridge and San Francisco in fog and crepuscular rays. (Photo credit: Wikipedia)

There was a time once, not so long ago, when I was chubby, fat, or just pleasantly plump. In Italy I would have been a goddess. Men would have followed me down the cobble stoned streets, whistling and begging to touch my beautiful breasts and my bountiful behind. Unfortunately, I wasn’t living in Italy, I was here in the United States, where all I really wanted was to be slender. I thought if I was thin, all my problems would dissipate like the mysterious fog in San Francisco. I imagined the fog lifting while I watched, wearing a heavy knit red sweater and sitting peacefully on a huge rock.

A couple of months ago I was very sick, (on top of my chronic illnesses” Fibromyalgia, Hashimoto’s Thyroiditis, IBS) I couldn’t eat, I couldn’t leave my house or the bathroom for an entire four weeks. I was pale, gaunt and looked ill. People on the street would ask me guardedly “If I was okay?” Part of me, if I had a sense of humor back then wanted to say “Of course, I’m in the middle-aged super model competition” but I had no sense of humor at the time. The other part of me was scared to speak so I just said “I’m fine” which people accept with relief and don’t follow-up with questions.

All my life there was always something about me that I wanted to change and after I changed it, I thought I would be happy: my weight, my hair, my glasses, wearing make-up, dressing better, nice shoes, tinting my hair to cover the tiny amount of gray that swirled in front of my face. The gray hair that I had been so proud to have, to acknowledge my real place in the world, as someone who had already experienced a great deal of life and had earned them with pride.

Having been married for 24 years with two young adults doing well in college was proof enough and even though I did go through a time feeling sorry for myself that the kids ” didn’t need me anymore” I realized my husband and I had done a very good job of parenting. I admit, I needed to remind myself that loving and needing were two very different things, they would love me as their mom but their lives and our lives would be constantly changing. Yes, sometimes it changes so quickly it was hard to keep up, that’s when I found myself alone, crying into an old, soft, handkerchief and feeling sorry for myself. I learned to accept that too. You have no choice.

Six weeks ago I went from eating and being lively to not eating and not feeling well, I lost over 30 pounds and before you coo and ooh and ahhh and wish it was you I can tell you, you better take that back. I did not enjoy clothes falling from my body, or food flowing through me, and not being able to go outside of my house for four weeks. The doctor scheduled me for every “cancer” test known to humanity and that was not fun. The doctor, not known for his bedside matter, actually told me WHAT he was testing for when we first met him in his office. Thanks, Doc, nice touch.

I will be getting the results later this week, I’m hoping that everything will be fine, I’m ( fairly) certain that they will be. The symptoms stopped a few days after my office visit and while I haven’t gained a lot of weight back, I do get hungry and I feel better. My newest ( little ) problem is this: I went to shop for new jeans and found that there are no jeans for women of my age. They have skinny jeans, under the waist jeans and jeans for teenagers with lithe bodies. Basically, the clothes that I have are four sizes too big for me and the style out there now are for teenagers only. I have nothing to wear, I miss my “Mom jeans.” It is impossible to find them, anywhere. Suggestions?

All that I have accomplished in this quest are the lack of clothes to wear and the acquisition of numerous wrinkles. I sat outside in the sun for a few moments, noticing all the wrinkles on my knees and thighs that were not there before. As I sat, warming my face, was I thinking about the good things in my life in a delighted way? No. I was thinking about the barium test (drinking chalk) that I have to drink tomorrow morning at eight am and where to aim my projectile vomiting. That, at least, is amusing me.

Be happy with what you have and who you are. As my dad used to say “Health is the most important thing.”  It’s the only thing, be grateful.

Sadly, The Biggest Fibromyalgia Fog Ever (And Food)

Image by ЯAFIK ♋ BERLIN via Flickr

A few weeks ago on a Saturday morning, my husband woke us up from a deep sleep at 7:45 am, which on the weekends is basically the middle of the night. We went to meet his parents for brunch “in the middle” of our two houses in two different States. What I thought would be a one hour drive ended up being two hours for us. Two long hours, coiled like a bright pink hair scrunchy  in the front seat of a very small car. I didn’t move around in my seat, didn’t ask to stop the car so I could stretch, I just sat there like a block of white marble. Why? What was I thinking? Apparently, I was NOT thinking.

During the trip there I totally forgot that I had Fibromyalgia. How could I forget that I had a chronic illness? I really don’t know but that is exactly what happened. It didn’t occur to me until I felt locked in place and could not get out of the car. I couldn’t turn, I couldn’t extend my legs out, I couldn’t move and finally, the long, first step from the car to the pavement was pure agony.  It was the greatest Fibromyalgia Fog of all:  Blissfully forgeting I had Fibromyalgia…until we got there.  Had I remembered the illness I would have stopped every half hour to get out of the car, stand up and stretch. I should have been prepared, physically and mentally but I wasn’t. I just wanted to arrive at our destination. When we got there every inch of my body hurt like thousands of razor blades performing a pain symphony.

We walked up a long winding, flight of stairs, my new arch-enemy, to get to the restaurant we were going to for the brunch buffet. I looked up the winding staircase and had no idea how I would be able to get up. Being stubborn and independent I clutched the banister with the strength I had left, my stiff legs and knees protesting at every step; I walked like a small child, one step with both feet at a time. I realized anew that Fibromyalgia is a horrible, debilitating disease and forgetting about it entirely was a terrible burden for my body and my feelings; I felt stupid and embarrassed. “Loser” I muttered to myself.

Finally upstairs we were treated to a lovely meal. The brunch was a buffet, a man played the piano, my teenagers were well-behaved, there were mimosas available and it looked festive. We feasted on made-to-order omeletes, mine with mushrooms and cheese. On display were cinnamon buns with drizzled, sweet vanilla icing. They served eggs benedict. an array of cheeses and fresh vegetables and Belgium waffles with a vat of whipped cream and another close by filled with bright red, plump strawberries. They had croissants and rolls and blueberry muffin tops coated with brown sugar. They had serving stations of steak with horseradish mayonnaise and grilled sirloin, all too carnivorous for me so early in the day. There were smoked salmon platters and my personal favorite, a lovely poached pear, the color of burgandy, with brie and walnuts.

Once we were finished I dreaded walking down my nemisis, the evil staircase. I had to take a deep breath with every painful inch that I could move. Each step sent electric shocks down my legs, my hands were red and swollen, as if arthritis had landed in my body unannounced. I stayed behind the family this time and managed with one hand to clutch the banister down and with the assistance of my husband holding on to my other arm. I felt like a 95 year old grandma and while I appreciated my husband’s help, I loathe that I need it. I don’t like feeling dependent, at all. The food cheered me up, it was lovely and presented gorgeously. I tried to remember that and not getting there or going home. Next time, please, someone remind me so I can avoid a Fibro Fog as stupid as this one.