Looking For Dr. Lisa Sanders, Dr. House, The Mayo Clinic?

Dear Dr. Lisa Sanders, Dr. House, New York Times, The Mayo Clinic or any doctor, active or retired that wants to save a life and help a really nice, frustrated, sick woman.  If you are looking for just the money, trust me, you are not the doctor, if you are looking to make someone who is desperate, happier, even if there is no answer, you’re my person. My medical person.  (if you watch Gray’s Anatomy you would understand this, if not ask someone who does.)

I am desperately seeking a miracle, yes, a doctor or a team of doctors who will put all my different symptoms together (for the last eight years) and try, just try, to figure out the root cause. Believe, I have an idea but not the credentials. I don’t have the knowledge or the education, just an inner voice. That leaves me with nothing. If there is nothing that comes out of it, I UNDERSTAND but I will know, someone really tried.

I have an internist who gives me 7-8 minutes and two specialists who are absolutely amazing but they send me to different specialists and it is too much for me to handle and take in. You understand, right?

The Mayo Clinic in Rochester.

The Mayo Clinic in Rochester. (Photo credit: Wikipedia)

 

 

 

 

 

 

I know the Mayo Clinic would take me! I have about six doctors who would gratefully write a letter to get me inside the Mayo Clinic and off their backs. Do they have the equivalent of financial aid?  I probably would be the most interesting and mystifying patient they have seen in a long time. Trust me, I’m not bragging. Living in my body and brain is pure hell.

 

I asked, okay, begged, two of my nicest specialists today, my cardiologist and my nephrologist if they could assign me to a medical student to take on my case, you know the way they charmingly do in Gray’s Anatomy. They both shook their head within a second and laughed. Sure, they would like to help but they can’t. Of course if I had A LOT of money (which I don’t at all) I could hire a private concierge doctor and maybe that would help me, yet break us financially and there’s no guarantee. Honestly, I never heard the word “concierge doctor” in my life. As for random medical students to assign them to my case alone, they laughed out loud. Gray’s Anatomy is truly a fictional fantasy. I want to be someone’s person. (Ask a friend.)

 

I’ve thought of the Mayo Clinic, Johns Hopkins and I need to do more research on that this week. At today’s nephrologist’s appointment he literally ( a 58-year-old) referred me to a pediatrician. Yes, it is not a typo. Supposedly, there a doctor who specializes in low blood pressure and syncope who sees children and on occasion, if begged, a woman of thirty, helps. My doctor is going to talk to him and plead with him to see me. P.S. he said no  but referred me to a pediatric neurologist,  (what?)

DO YOU SEE WHY I NEED HELP?

He also suggested a fat biopsy. A FAT BIOPSY? What on earth is that? I googled it and it really made no sense to me plus it’s always a bad idea when I research something, a very bad idea. He also recommended Hormone Replacement Therapy. My jaw dropped. He said what?

Yep, the dreaded  (my own personal view) of adding more medicine to my body?

I also have Eppiglottitis, and have had this three times already. Figure that one out. I have posted many articles about it, it’s deathly pain, its sword-like plunge  beneath your throat. Many readers have read this article and many ask me questions. I know there is a vaccine to prevent this for infants, I’ve asked several doctors about giving it to me. There answer is a confused look on their faces and they say “we can’t.” Why, I pursue, “because it’s for children.” Take a chance, do some research, you can’t even try?? Have you ever had that horrific pain? I also fall down from low blood pressure (we think) and randomly shake.

I have more symptoms but I don’t want to scare you away!

Does anyone have any connections? I’m realistic, not stupid. Please forward to anyone you may know at The New York Times or Dr. Lisa Sanders or The Mayo Clinic.

Please.

Thank you in advance.

 

 

 

 

Hey Ba, I Think It’s Now

a bird nest

Image via Wikipedia

I’m beginning to think that”these days may just BE the good old days” and I want to stop and appreciate them as much as I can. I want to  savor my children’s laughter, energy, and yes, even fighting. I want to enjoy family dinners served with a sauté of sarcasm and lumpy cheese sauce with laughter. I’m not saying that things are great but they are definitely good enough and  that’s just fine. My husband is still unemployed and our kids are just about to skip from home to college and I will be living in my own new reality, as an “empty-nester” which is both incredibly sad and exciting.

When I was in my early twenties, my best friend Barbara and I would alternate saying “Laur, when is it gonna get better?”or “Hey Ba, when is it going to get better?” I don’t even remember now what was so bad back then. We asked each other this as we were selecting French pastries from a small patisserie: the fruit tart or the chocolate mousse? Two Libra girls in an enchanting bakery meant only one thing: both. Now, thirty years later, back then seemed like it WAS better but it was just different. “Youth” is wasted on the young” my mother used to mutter. We laughed and knew she didn’t know what she was talking about. We have all said the exact, same thing to our children as they look back at us and roll their eyes. How can we expect them to understand what no other generation ever did before?

Rereading the book Talk Before Sleep by Elizabeth Berg is helping to keep me in the present. It’s a book about a woman dying of cancer and her loving friends. It makes you stop and think about your life. For me, these are the good old times. Are we silly enough to think that things will get easier as we get older? They don’t. I prescribe reading Ms. Berg’s book surrounded by tissues and as Oprah would say “a-ha” moments.

Now, while we still have our two children home, at least for a few more months I am relishing my time with them. I want to freeze these days like photographs on our mantel. My son, my first born, a Senior, is always running out the door, his black and orange sneakers barely trailing him. He has about four and a half months before he leaves home  for the summer to be a Counselor at the camp he attended for many years. Camp is my son’s other home; it is a magical place that helped shape him as a person. My first-born,  has the same temperament as I do; we understand each other with a casual glance. He’s waiting to hear from colleges in the near future. As much as I try to spend time in the present, I miss him already.

My daughter, a Junior in High School came home from “College Night”  and sounded like a newly opened bottle of soda; her enthusiasm and excitement was contagious.  “I want to go to college tomorrow, Mom” she chirped.  I will have a whole year with just her where she doesn’t have to share the limelight with her older brother. I am not even ready to think about what life will be like when she goes off to college. This beautiful young woman will always be my baby.

I would like the world to stand still so I can try and burn memories in my heart. My nine year old dog is sleeping at the foot of my bed. The children laugh, fight, shout and antagonize each other yet their love for each other is incredibly obvious. I know my husband will find a job eventually and I just want to hold on to this feeling of our family; for as long as I possibly can. Here is my life lesson: cherish each moment; it’s as simple as that.

Plain and Simple: Unemployment Still SUCKS

‘You can calm down now,’ I tell myself, ‘everything is okay.’ But, it isn’t. I had trouble sleeping last night and I woke up feeling jittery and nervous.  I’m off-balance and anxious and it seems that any little, tiny thing can set me off course. I know the stress must be cumulative. For the last 11 months, my husband has been unemployed. He is trying so hard and there is not much out there. I FEEL for him, I want to see his pleased grin, his crooked smile.  I want this for him, more than I want this for our family and that says a lot.

I have been a stay at home mom with our children and I’ve also been sick for the past four years. I have a chronic disease ( and a few others) and even I, with my limited skill set,  look at the paper for something part-time. Of course the lack of money  is VERY important but really, we live without many frills. Having two teenagers makes it a bit harder and we have college to pay for: one child, in one year and the other child in the year after that. We will deal with it the best way we can, step by financial aid step.

I cannot see my beloved husband’s droopy face another minute even though he puts on a good show.  I am not the type of person to blame the President and the economy for our misfortune. There are many worse misfortunes and I remind myself of that all the time. It would be nice to see the happy glow back on his face, the spring in his step back. I feel useless and helpless and while we have had a nice summer together, the teenagers will be back in two weeks and that changes the family dynamics drastically. There will be more stress, especially with a Junior and a Senior in High School but also, many more distractions. Even though there may be more fighting, there will also be more laughter to replace the still silence that hangs in the air.

One of the worst parts about being unemployed is the way you are treated. I worked in Human Resources for over 20 years and we ALWAYS called the applicant with the decision that was made, good or bad. Now? There have been jobs he has been assured of getting and then? Nothing. No call, no e-mail, nothing. I know there are more applicants than there are jobs now, but please, a little respect would be nice. No excuses.

I am trying, again, to stay positive in my mind. To readjust and focus on happiness. The house has never been vacuumed that much and that often in the last 15 years. I would give that up GLADLY.  Help me in seeing good things come his way; I’ll keep you posted.