Haiku Horizons: HOME 4

English: Image of comet C/1996 B2 (Hyakutake),...

English: Image of comet C/1996 B2 (Hyakutake), taken on 1996 March 25, with a 225mm f/2.0 Schmidt Camera (focal length 450mm) on Kodak Panther 400 color slide film. Exposure 0:56 to 1:06 UT (10 minutes). The field shown is about 6.5°x4.8°. Note the prominent disconnection event in the comet’s ion tail. Stars in the image appear trailed, as the camera tracked the comet during the exposure. (Photo credit: Wikipedia)

 

 

 

 

Hubble Space Telescope Advanced Camera for Sur...

Hubble Space Telescope Advanced Camera for Surveys image of Comet 73P/Schwassmann-Wachmann 3 fragment B on 2006 April 18, 19 and 20. (Photo credit: Wikipedia)

1)

Small, deaf, sun-filled home,

Corner shadows, two adults

Lost in the echoes.

 

 

 

 

 

 

2)

Where will my home be?

Old, runny eyes, gray hair, death.

Misery, Alone

 

 

3)

There is no home now

walking on red glass, blood, pain

There won’t be, ever.

4)

Spoons of honey drip

into drooling mouths, no teeth

I hope I don’t know.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Fibro Girl, Grey’s Anatomy And Me

Grey's Anatomy (season 1)

Grey’s Anatomy (season 1) (Photo credit: Wikipedia)

When I think of “Fibro Girl” I imagine a small, spunky superhero with brown hair and round black glasses and a red cape that has a big bold black F on it. I don’t know why I think of her that way but it amuses me. Maybe because it’s such a juxtaposition between her life and mine. She is trying to fight Fibromyalgia with her strength. I have NO strength. When I was FINALLY diagnosed with Fibromyalgia, seven years ago, my strength was taken away.

Our lives with this illness are question marks. It is hard for us to plan ahead. In fact for me, it’s impossible. For people who DON’T have FIBROMYALGIA OR DOUBTERS (seriously? still?)  I am physically unable to commit to a date in the future without the caveat “depends on how I’m feeling.”  People who cannot understand that are not true friends. We didn’t ask for this, we wish we didn’t have it. Believe us.

My current experience with Fibromyalgia is that I am able to do one errand per day, MAYBE two. If I push my limit I’m wiped out and pay for it later with exhaustion/ pain. At the moment I am not suffering as much physical pain as I had in the past. (see past Fibromyalgia posts) There’s always some pain but I have learned to accept and manage that pain because of a great doctor and the right combination of Fibro drugs. Now, doctors are worried about a new “balance issue” which has nothing to do with Fibromyalgia.  More tests, a pink cane….I can’t walk a straight line, two perfect CAT scans. Can we stop now? No.

Fibromyalgia takes control over us. I’m embarrassed to say that I never thought about it that way. Amazing how our lives change so quickly. If stress is indeed a factor, I’m in deep trouble. My husband got laid off 2 days ago. I can’t work even though I want to and we need the money but it’s not possible. It doesn’t seem right to punish us for something we physically cannot do. Not right at all.

We don’t live in a perfect world, although I really do know people who live a charmed life in every aspect of their lives. Lucky them, maybe they have dark secrets but I doubt it. All I want is a break in having to struggle every single day with some new illness or symptom. The umbrella of Fibromyalagia has so many illnesses underneath it I go to the doctor(s) way too much.

Right now, with the weather is getting colder. I always feel worse when it is cold outside. Then, a good time for me is staying in bed with my dog lying next to me, watching Grey’s Anatomy, Parenthood or The Voice. The television has become my life line. That and this computer connecting me to friends with Fibro and without. We do the best we can with what we have. Minute by minute, day by day. We’re in it together, holding hands, on-line and off.

Come what may (Carry on Tuesday)

Old Man Grieving - Vincent van Gogh

Old Man Grieving – Vincent van Gogh (Photo credit: Wikipedia)

Life can be very scary. In one second your entire world could change, blow up into tiny, little pieces. Destroyed. The world you once knew would become Before and After. Usually, unless this change is winning the 22 million dollar lottery, this does not usually occur in good situations. Am I right? In everyday life there are always tragedies that come unexpectedly,  probably things completely different from what you worried about and it never is good.

It’s called growing up. Realizing that sometimes there is fear hiding around the corner, which eery corner you have no idea but for a time it will be dark. You tend to forget about the dangers in life for brief periods of time when things go along swimmingly until something happens and then you realize “yes, it’s been quiet for too long.” As John Lennon used to sing “Life is what happens, when you are making other plans.” The unexpected, the things you didn’t plan for, the strong red slap stinging and leaving an imprint across your pale, white face.

Hold on to someone tight, a best friend, a spouse, a partner, a sister or a brother, anyone. Because, when bad things happen you will need someone who you trust and love, someone who loves you back. A person who will try to soothe you even though you think it may not help. Let them try, accept their offer to make you a hot cup of cocoa with marshmallows to comfort you A person that will make you lie down and force you to rest no matter if you can’t sleep, a person you can cry in front of alone or just someone to hold your hand and cover you in soft blue blankets.

Life is not easy, though we don’t realize that until we are older, but come what may, having someone, to share it with, makes it just a little easier to breathe because you have them and their support.  While your heart is still literally in pain and skipping beats eventually your own heart starts beating at a similar rhythm you had before. You are still alive. You will grieve your loss in your own way, take your  time and try to let your feelings out.  Mourn YOUR way. There are no steps to follow to make it easier for you.  My sister once told me after our father died, that I was “grieving too much.” I knew I wasn’t, I was just grieving louder, and expressing my grief differently than her. We also had a very different relationship with our dad. There is no right or wrong, no time limit, no book to follow.

Sooner or later, with time, you will see that while the pain never completely goes away, it becomes less potent, it happens less often and with less severity. You might even find that one day, you will talk about the loss of a person you loved with a smile of fondness and love. You might think that you had the opportunity, the blessing to love someone and have them in your life for so many years instead of focusing on them dying and leaving your life.

Just two weeks ago I held up a new pen that I knew my father would love for Father’s Day. I picked it up and smiled broadly with delight. I was on my way to the register when I remembered I had no father to give this to. Life will get better, with time, after loss. Truly, it will, I know that. But don’t let anyone tell you that you will never have any tough moments. I can’t lie to you, once in a great while, you will.

Help Me, Help Me Breathe – Meditation

meditation

I need help and advice. I get caught up sometimes in the thousands of minute details and decisions that need to be made in a day. I realized this morning, before I was actually awake, that I hadn’t printed permission slips for both my children, didn’t unload the dishwasher from yesterday, read the mail, finish the laundry, go shopping and…… I did realize that after looking for socks in two different stores I wound up buying one of each in both stores; I now have socks that will probably last until 2019. This is not working for me. I need to focus.

It could be that my life is too busy this time of year, I am not great at organizing and I forget half the things I should remember. I could blame it on my Fibromyalgia and Fibro-Fog but I am sure I could help myself in some way. I need my writing pad to remind myself of all the things I need to do and my red pen to cross them off, one by one, but I get too preoccupied to find my notepad and don’t want to waste the time to find it.

Does that make sense to you?

I’ve told myself for years that I should meditate,” should” being the operative word. I haven’t done it yet;  I say I don’t have the time but that’s plain ridiculous. I should be able to be seated in a quiet place for twenty minutes every morning and every night and breathe deeply, to center my soul. Why is it that I can’t  or won’t do that?  Sometimes I am in such a great rush that I forget to breathe.

For now, I need to  remind myself to stay in the present, to not worry about things I have no control over, to take it slowly and not flip out about terrorist attacks and subway and train plots, earthquakes, terrorism, tsunami’s, cancer and all other life-threatening diseases. I need to stay in the moment and move those bad, anxiety provoking and terrifying thoughts away, like swatting at mosquitoes. Swatting away a bug comes naturally, changing my thoughts does not. I want to form a new habit,  focusing on the good, on the present and nothing else.  Oprah said that “weight loss was her nemesis” and I am not repeating it to be mean at all. Going into panic mode is my nemesis, my downfall, this is the one thing I have trouble changing.

Which brings me back to meditating, I think it might help. Here’s my question: can I just do it? Do I need to be taught? There are meditation courses but is that worth it? Does anyone out there meditate and find it useful? Please let me know, I would love to hear your thoughts and advice. Namaste.

Extreme Sports? Bring it on! (NOT!)

Inês, a Girl walking in the beach. Porto Covo,...

Image via Wikipedia

You Jump, I’ll Watch
Extreme sport? Ha Ha Ha Ha Ha. You have got to be kidding me. I tremble at the word “extreme.” Sure, some of you will write about hiking mountains, and bungee jumping, massive triathalons and motorcycle marathons…..but for me? I’d be happy if I could walk every day at a consistent (medium) speed. Right now, with Fibromyalgia, I can’t even count on a slow, measured walk, twice a week, because of joint and muscle pain. I have no interest in “extreme sports” but to be honest, I never did and never will. I never was a big risk taker and the adrenaline I would get from fear alone is enough to make me pee in my pants. When I was much younger I once thought about sky diving or “parachute jumping” where you are shoved out of an airplane with some cord to pull so that the parachute opens. The trouble with me is, when I am stressed I forget things. Forgetting to pull that cord for that parachute? Not a wise choice. I’m staying home.

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The Sick Mother

I hate the thought of my children having a mother that is chronically “sick.” I know, we all know, that it is NOT life-threatening but for day-to-day life, my illnesses have brought me nothing but pain, both physical and emotional. I was healthy and fine in all but the last three years but I am not sure if my children, now 15 and 17, remember that. They know what is happening now and they know what they remember from the recent past. It breaks my heart, literally, to have them be the one whose “mom is always sleeping” or “not feeling good.”

They joke sometimes about the things my husband has had to take over that I originated. To me, this is not a joke but it is heartbreaking. What about the years from 1-13 when I  did everything for them? It makes me want to cry. Now they know their Dad makes them lunches at night and greets them in the early morning. Even my “Mommy’s Famous Cheese Sauce” became “Daddy’s Cheese Sauce.”  It is NOT a joke for me, nor will it ever be, I find no humor in my own personal failings.

I want to be the mother that is there for them for everything. I was so greatly looking forward to college visits with my son and daughter and now don’t know if I can make it. We are supposed to go to relatives for Passover and I do not know if my body can physically take the 6 plus car drive down there. I do not know how to prioritize MY health for the emotional well-being of my children. They come first, always and forever. They need to know that NOTHING to me is as important as they are.

Will my absences be excused? There are only so many times that children can forgive and understand reason; at some point we are all children wanting our mothers to be there for us, no matter what. For every mother is a daughter that wants her mom to be there for her without excuses, physical or emotional.

For a woman who wanted nothing more than to be a good wife and mother, I find myself incredibly disappointed in myself. I am trying not to blame myself for my physical illness but I do. I understand that there are much worse things in life, and I am fortunate not to have to deal with them. But for me, my children’s lives come first and if I am not there at full capacity to guide them, to drive them, to go with them, than I feel that I am somehow disappointing them.

I want to be the one to drive my daughter to Payless for new ballet flats. I want to sit by my son’s side as we visit the first potential college he may want to see.  I do not want to be TOLD about these things later, I want to be there in the present.

What to do? There is nothing I can do but feel bad, for them, for my husband and for me; a woman whose only goal in life was to be a good wife, a good mother, not a sick one.

DEDICATED TO TIM AND JILLIAN