Today is a HAPPY day for me; for most others they would call it “normal.” After a good, solid night’s sleep (waking up only once and then able to go back to sleep immediately), I woke up at 11AM and felt good. Good, as in the absence of, pain and aches. Not just good, but GOOD, almost great. I had enough energy to get out of the bed and go down the stairs. Feeling good is taken for granted by a whole lot of people but NOT to those of us who have auto-immune diseases, fibromyalgia or ANY chronic illness for that matter. Good to us is great. Unfortunately for some of us, to experience it is sometimes rare.
When I feel sick I don’t know if it’s a side effect of the methotrexate (and plaquannel) that I am taking, whether it is my illness (Hashimoto’s Thyroiditis and Fibromyalgia) OR a new virus or bug I picked up (probably at another Dr’s appointment.) Last week I took, (yes, I asked my doctor’s permission) gulp, double the amount of methotrexate, 8 pills (bad idea, really bad idea) on one day instead of splitting the medication, 4 pills, twice a week. I did get approval from the doctor to try….but it was definitely a really bad experiment. My fault. Entirely. I take full responsibility for it. Big, bad, miserable mistake but I thought it could turn out to my advantage (so not) and I wanted to try to feel good for a few days in between the two doses. It backfired, I was sick for an entire, miserable, can’t-get-out-of-bed- week. Never will that happen again. Maybe the lessons I needed to learn from this are: when I go back to taking the dose twice a week (starting Monday) it won’t feel AS bad as it was last week AND see how much sicker I could feel every day?
I took advantage of THE DAY (wish I could light this up with sparklers) by doing “normal” things which to me were thrilling. I went to the Orthodontist with my kids (just being able to GO was a treat) and then I took them out to eat at the local diner. First, having teenagers by themselves, outside the house, is a joy in itself. There was barely any fighting and a lot of sharing food and actual conversation. Anyone who has teenagers knows this is a rare gift. Besides my son taking illegal sips out of my daughter’s strawberry smoothie and my daughter continually playing with the straw in her water-glass, it was calm and very enjoyable. My son ate his brunch, thinly layered pieces of a croissant, french toast style, with bacon in less than 4 minutes. My scrambled eggs and toast (why do they taste so much better when I am not cooking them??) and fruit served as the extra filling station for both the kids. It was fun to see them reach over and grab bites and an even greater joy just to be with them. Outside the house. Like a real person. Most people would take this meal for granted. Not I.
Being on a roll on this celebratory day, my husband and I plan to go to dinner at the Asian Fusion restaurant we used to go to. We have not gone out anywhere for months so Carpe Diem (seize the day). For me, a good day, like today, is a celebration. I can honestly say that I don’t know when I will feel this good again. I wish it was more frequent, I wish I could predict it but I can’t and I have to accept that.
I hope people who don’t have any illnesses will read this to know how good they have it, that just having an ordinary day makes us feel so special. I may not feel like this for a few more weeks or months but it allows me to remember how it feels and that there is the promise of another day, somewhere…. in the future.
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