Looking For Dr. Lisa Sanders, Dr. House, The Mayo Clinic?

Dear Dr. Lisa Sanders, Dr. House, New York Times, The Mayo Clinic or any doctor, active or retired that wants to save a life and help a really nice, frustrated, sick woman.  If you are looking for just the money, trust me, you are not the doctor, if you are looking to make someone who is desperate, happier, even if there is no answer, you’re my person. My medical person.  (if you watch Gray’s Anatomy you would understand this, if not ask someone who does.)

I am desperately seeking a miracle, yes, a doctor or a team of doctors who will put all my different symptoms together (for the last eight years) and try, just try, to figure out the root cause. Believe, I have an idea but not the credentials. I don’t have the knowledge or the education, just an inner voice. That leaves me with nothing. If there is nothing that comes out of it, I UNDERSTAND but I will know, someone really tried.

I have an internist who gives me 7-8 minutes and two specialists who are absolutely amazing but they send me to different specialists and it is too much for me to handle and take in. You understand, right?

The Mayo Clinic in Rochester.

The Mayo Clinic in Rochester. (Photo credit: Wikipedia)

 

 

 

 

 

 

I know the Mayo Clinic would take me! I have about six doctors who would gratefully write a letter to get me inside the Mayo Clinic and off their backs. Do they have the equivalent of financial aid?  I probably would be the most interesting and mystifying patient they have seen in a long time. Trust me, I’m not bragging. Living in my body and brain is pure hell.

 

I asked, okay, begged, two of my nicest specialists today, my cardiologist and my nephrologist if they could assign me to a medical student to take on my case, you know the way they charmingly do in Gray’s Anatomy. They both shook their head within a second and laughed. Sure, they would like to help but they can’t. Of course if I had A LOT of money (which I don’t at all) I could hire a private concierge doctor and maybe that would help me, yet break us financially and there’s no guarantee. Honestly, I never heard the word “concierge doctor” in my life. As for random medical students to assign them to my case alone, they laughed out loud. Gray’s Anatomy is truly a fictional fantasy. I want to be someone’s person. (Ask a friend.)

 

I’ve thought of the Mayo Clinic, Johns Hopkins and I need to do more research on that this week. At today’s nephrologist’s appointment he literally ( a 58-year-old) referred me to a pediatrician. Yes, it is not a typo. Supposedly, there a doctor who specializes in low blood pressure and syncope who sees children and on occasion, if begged, a woman of thirty, helps. My doctor is going to talk to him and plead with him to see me. P.S. he said no  but referred me to a pediatric neurologist,  (what?)

DO YOU SEE WHY I NEED HELP?

He also suggested a fat biopsy. A FAT BIOPSY? What on earth is that? I googled it and it really made no sense to me plus it’s always a bad idea when I research something, a very bad idea. He also recommended Hormone Replacement Therapy. My jaw dropped. He said what?

Yep, the dreaded  (my own personal view) of adding more medicine to my body?

I also have Eppiglottitis, and have had this three times already. Figure that one out. I have posted many articles about it, it’s deathly pain, its sword-like plunge  beneath your throat. Many readers have read this article and many ask me questions. I know there is a vaccine to prevent this for infants, I’ve asked several doctors about giving it to me. There answer is a confused look on their faces and they say “we can’t.” Why, I pursue, “because it’s for children.” Take a chance, do some research, you can’t even try?? Have you ever had that horrific pain? I also fall down from low blood pressure (we think) and randomly shake.

I have more symptoms but I don’t want to scare you away!

Does anyone have any connections? I’m realistic, not stupid. Please forward to anyone you may know at The New York Times or Dr. Lisa Sanders or The Mayo Clinic.

Please.

Thank you in advance.

 

 

 

 

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Orange U Glad TO Meet Me?

Orange julius

Orange julius (Photo credit: Wikipedia)

Happy, Happy! Good News! Good News! Even if it is only television news, we take what we can get (with great enthusiasm.) Just today I heard that McDreamy: Derek Shepard and Meredith Gray both signed a new contract for two years on Gray’s Anatomy. This makes me so happy you have no idea. (I know I have no life, that is one thing I “know for sure.”That is from Oprah, originally from Maya Angelou… Oh, Oprah, I could have told you that ending your show to get bigger and “badder” was not a good idea but nope, you didn’t listen to me. What the heck, you have more money than G-d and you don’t have to work. Though I do think you’d feel uneasy, lost, hanging around in your work-out outfits and sneakers and drinking Orange Julius all day. Hope you don’t mind that I put that in because I have craved Orange Julius now for months and can’t seem to find one anywhere. In High School Orange Julius was the new thing. Maybe even Junior High School. G-d I am so OLD.

Speaking of Orange, I just read that the Netflix show (can I call it a show? A series? ) Orange Is The New Black has  finished taping Season 2. That series brought out the worst and best in me and I loved every minute of it. It was scary, edgy, I was freaking out, clutching pillows and sitting on the edge of my seat but could I stop watching it? Hell no. It was like a drug, an addict bingeing on episodes to “Orange Is The New Black ” one after the other.

Anyone out there willing to be in my support group? Frankly, I’m no hero, I’m the one sitting in bed, hand clasped over her mouth and eyes to avoid seeing things I didn’t want to see and weeks later wishing I could forget what I may or may not have seen.  There’s always an out.Plus, I am such a wimp I could only watch it during the day, never late at night. Otherwise, I would get no sleep AT ALL. That said, I can’t wait for Season 2.

Yep, that’s me.

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I Have AlwaysImagined Myself As A SINGER

Crosby, Stills, Nash & Young at concert, Augus...

Image via Wikipedia

In my own fantasy, I am already a great singer. I love to sing, out loud, off-key and happily. It doesn’t matter to me that I can’t carry a tune or that I am practically tone deaf. Singing can lure me out of a bad mood to a good one (ok, not always, I admit.) I am singing the music from the last Gray’s Anatomy musical show, I sing the songs from Glee, Simon and Garfunkel, James Taylor, Carly Simon and Crosby, Stills, Nash and Young. I have been living in the seventies for a long time “Helplessly Hoping” that I will always enjoy these songs and that I will always be able to sing with a smile on my face and a nod to the past.

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