Eppiglottitis: Dear Innocent Souls, YES, You Can Get It Again. (I Should Know) 4/2013

English: Title: Torture Chamber of the Inquisi...

English: Title: Torture Chamber of the Inquisition. From ‘A Complete History of the Inquisition’, Westminster, London 1736 (Photo credit: Wikipedia)

The plight of those of us who have suffered from Eppiglottitis, an illnesses/virus/ torture/infection has gotten way with too much pain already and NOT just in the United States. People from many countries around the world share the pain. I know that for sure. There are searches for Epiglottitis on my blog, always. Today there was a search, from some poor, innocent soul who asked: “Eppiglottitis, is it possible to get it twice?” Oh, dear one, I just want to give you a great big hug and plant gentle kisses on the top of your sweet, innocent head.

Yes, you can get it again. In my blog I have written about the two times I had Eppiglottitis and how I wanted to beg, borrow or steal major pain killers from hospitals, doctors or become a gangster and hang out in the streets to score illegal drugs (okay not really ). People really do not understand the amount of pain that thisĀ  illness brings and frankly, unless your ENT (Ear, Nose and Throat, Doctor) has had it, they don’t know a thing about how painful it is either. Not for one second. The only people who know are the people who have had it or are going through it now. Do I smell the beginning of a support group?

What does it feel like? It’s like taking a scalding steak knife and searing your huge, ugly, raw open wound, repeatedly (obviously with no anaesthesia) over and over again. It is impossible to swallow because the pain is so excruciating but really what choice do we have? The last time I had it I was on a cocktail of medicines, steroids, a throat rinse, antibiotics and whatever else they threw at me but what I needed was a morphine drip and a sleeping medicine that lasted a solid week. I wish.

When I couldn’t stand the pain anymore I dragged my body to the medical group, to the ENT offices before they opened and BEGGED for someone to see me. I was in so much pain that I was crying and I looked like all hell, pale, distraught, helpless and hopeless. This is not something I would normally ever do. I was so grateful that they let me go sit in the office chair, who knows, maybe they were afraid of me. I WAS afraid of me. When the doctor came in, he scoped me, which requires putting a tiny tube through your nose to see beyond your throat. He literally gasped and said “How the hell did you get THAT?” I was not in the mood for rhetorical questions nor was I feeling combative. I just wanted him to tell me how on earth to get rid of this demon that had taken up residence in my body.

Apparently it’s not common to get and very difficult to get rid of, I live in fear of getting it again and I assure you, every Fall I think about it when the weather turns chilly although I am sure I could get it at anytime. Another doctor suggested that if I get it again to go see an Infectious Disease Doctor in addition to my ENT. Great, that’s what we need, to waste more time in doctor’s offices waiting to be treated. I’d rather check into Rehab so I could become a drug addict for pain relief until it healed.

I’m here for support, questions and comments. I am not a medical doctor, no, I’m better. I’m a patient who knows exactly what you are going through. Ask away or just complain, it’s not anything I haven’t complained about already.

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Calling Epiglottitis A Bitch Is A Vast Understatement

Visible epiglottis at the back of the throat o...

Image via Wikipedia

I have had epiglottitis twice; it is an ulcerated part of your epiglottis, below your throat, hidden in thieves. It is the worst pain I have ever had and I’ve had it two years in a row. Nobody knows what causes it, they think it’s a viral infection. As much as I have BEGGED for answers on how to prevent from getting it again, there are no answers. The doctors shake their heads kindly but have no information.

The first time I had it the ENT ( Ear, Nose,Throat Specialist) scoped me through my nose and saw it he literally said “How the hell did you get that?” Those were not comforting words to hear. I don’t know how I got it and I don’t know how I got it again. I just knew that this was the worst pain I have ever had. Childbirth was a breeze compared to this long, incredibly painful illness.

Has anyone out there ever have this monster of an illness? I’d be interested in knowing. The most my doctor could do was promise me to give me pain medication. If I could, I would prefer being asleep for the ten days that I have it. It makes sore throats seem like a cute tickle in your mouth. It feels like a hot, serrated knife butchering you every time you have to swallow.

Don’t come again, you mean and evil illness. I’ve had enough.