*A Blob In A Bed

As lightning strikes and cackles, silver pain against a mournful deep black sky, rockets flare rapidly from my brain to my chin.  Immediately, I recognize and rationalize the signs; I sigh wearily breathe slowly and finally admit that TMJ has come back to stay for the next few days or  a week. At least I love my two options for dinner, peanut butter and jelly or an American cheese sandwich and tomato soup:

 

 

I had a tiny, mild spasm when we had dinner but I was eating the mushiest of foods. A veggie burger that I had to scoop up with a spoon and I didn’t eat the top half of the bun. After that, a small portion of ice cream that I put in the microwave, I was sure I had paid the price for the pain already. Yeah, right. As if fairness counts in this world. I shake my head from side to side.

 

I didn’t “say AHHH” as if I was giving in to a strep test, my mouth was as wide as it could go comfortably (yes, dentists/doctors from all over say I have a child size mouth and face and hands and ring size.) I do remember the tip-toe beginning signs of TMJ and paid heed to them, with further occurrences, I forgot about it and went to sleep and slept well. When I woke up (or did it wake me up?) the first flash of agonizing pain ripped through my brain to my ear and down past my teeth into my wobbly neck.

There is no rhyme or reason for when this happens so I just resign myself to it happening every once in a while and search (I know, I know) for the mouth guard that I should have worn all along. My bad.

 

 

I can’t feel too sorry for myself because I’m the one to blame. I remember yesterday, even before the first pang, opening up the case and finding it empty. I did find it later on, of course, I’ll need to search for it again ( Fibromyalgia Fog) since I forgot where it I found it. I don’t lose things, I just misplace them ( repeatedly.) I look outside at the cold, crystallized window and I find a little comfort in the fact that I can nurse myself back to health today without (a lot of ) help from anyone. (PS I found it and have been wearing it.)

 

I slip back into bed with my five layers of blankets and heating pad, it is the second day and I am still in so much pain that I can’t even go down a flight of stairs to make my cherished mug of coffee. I hate asking for help but this morning I knock on my daughter’s door and ask her to help me. In a second, she goes downstairs to make me coffee and warms my heart. I am so grateful for her.

English: steaming hot mug of coffee

The coffee barely cheers me up which is unusual. I try to gulp it down quickly but the pain interrupts me. I’m doomed. I’m not allowed to use most pain medication because of my kidneys so I reach for one Tylenol, two.  I automatically click the heating pad that lives beside me on the beige carpet. Please help me soon….

 

I don’t know how other people can get motivated to get dressed and race out of the door when it is below freezing outside. I truly wonder. I don’t believe I was like this when I was young, but then again, I didn’t have Fibromyalgia or Hashimoto’s Thyroiditis.  Maybe I did have it all along but never knew?

 

My mother calls and she hears “the slight off pitch” of my voice.I can never fool her, my mother and my son are the only ones I can’t fool. She zeros in for the kill. “What’s the matter?” she inquires directly bypassing all courtesy. I answer truthfully yet less urgently “I just have a little TMJ thing going on, that’s all.” She sighs, she feels helpless, I totally understand. My 22-year-old son had the flu last week and I certainly felt the same way, “what can I do, do you want something to eat, tomato soup with mashed up crackers? no? NO?!)

Mothers love to mother and when we can’t or when our kids grow up, at first we don’t know what to do. Mothering is our job, one we always will love. Without it, we just feel a little lost. Many people, including myself, ask themselves the question “Who am I now” when our youngest child is in college.

I know the feeling. After my daughter’s two wisdom teeth were extracted during a summer holiday and the medication wore off, she got up and gently woke me up at 3 AM. She scowled and said through muddled cotton mouth “it hurts.” For me, as bad as I felt for her, I felt happy I could help her, I could mother her and make her feel better. I didn’t want her to have pain, I wanted to make any type of pain go away.

My daughter and son have left to go out, my husband will be home shortly. I will go down and make my own soft American cheese sandwich and drink some Yoo Hoo, I don’t want to bother my husband who has worked all day. I understand pain, I’ve lived with so many different forms (too numerous to list), I don’t need people near me, I have all of you.

Thanks, Facebook Friends for always being there for me.

*DON’T WORRY ABOUT ME, PLEASE.
 

 

 

 

 

 

 

 

 

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Dear Body,

I know you have been trying to listen to me and I appreciate the effort but now, finally I think you have seen the light, pardon the pun. You have known what to do all along but with your being stubborn (and not letting your sister be right) you have negated every suggestion from everyone else. That’s not bad, you need to listen to yourself.

At the same time, I am proud of you, so very proud that you have decided NOW to,( on your own ), to do something entirely different. You went into a bad slump for a day and a half the “I can’t do this anymore” cry

but you realized you really don’t have to give up. What a mood elevator that was!

Suddenly and slowly like each ray of a sunshine blooming like a petal you decided to do completely different. Instead of adding another med, you were going to stop them all. Yup, each and every one except for Synthroid which is medically warranted for your health. The others, well, you’re not stupid, you won’t go cold turkey, but you can talk (if you want) with each medical doctor and believe me there are way too many and discuss getting off the meds with ease. You are not asking IF you can do it but HOW. Hear that Doc? I am not asking your permission, this is my body and I’m taking it back.

You’ve had it in your germ-filled hands for exactly seven minutes each time. SEVEN MINUTES !!! I have (barely) seen you. My body, outside and inside deserves more than seven minutes. I need love, I need  respect and I deserve it. I know my body much better than you do. My instincts have never steered me wrong. Never. Can you say the same, that you have never given me the wrong diagnosis or the incorrect prescription. I thought not.

The other thing I will do and believe this is harder for me than the above is try to eat healthier foods and that means less processed foods. I can’t promise to throw my Kraft American Cheese Slices, individually wrapped, away, just yet, but I will only eat them when all other comfort foods are exhausted. I do make a mean chicken soup, all natural.

Chicken soup is a common classic comfort food ...

But, again, I’m not going to make myself feel bad if I go slowly in my process. And, I refuse to make quinoa on principle, kale too just because they are “popular.” I’ll wait six months to see what the new food trend is.

I’m not saying I wouldn’t order it for lunch at a cute local farm- to- land sweet restaurant my friend Sarah and I go to but I’m going to take just one step at a time.

There you have it, my intentions, to be healthier, naturally and stop throwing back these ridiculous pills the doctors have given me because that’s what they do. Maybe I’ll send this to Michael Finkelstein at the Sunraven Center and we will go full circle. Meditation instead of medication. (Love that !) At least when Danny finds a job or if he has a sliding scale. It’s worth a shot. ANYTHING is worth a shot. Be Grateful, Be Kind even more than you have been. Heal Yourself. The time is now.

Love,

Soul

ps: Dedicated to my new friend, Ken

This New Waking Up At 5: 30AM Is Seriously Getting On My Nerves

If (when) I get cranky during this post you can blame it on the lack of deep, constant, uninterrupted sleep. I’m cranky just thinking about it. This has been the fourth or fifth night in a row and correlates beautifully to the new medicine to raise my blood pressure.

True, I am not passing out and smacking my head getting bumps the size of baseballs but still, as any chronic pain or Fibromyalgia patient knows, sleep is our vacation. I wish I would be kidding but I’m not.

Insomnia

Insomnia (Photo credit: Alejandro (Lì Delfos))

Literally, going on vacation stresses our bodies more than staying in bed, not that it isn’t worth the risk at all. So, this old body now awakens way too early in the morning and today it’s not even a sunny morning but a gloomy gray one. Of course, I try to go back to sleep but it never works. Also, I can’t nap anymore.

Fibro: The Way It Is, make something better, make something worse. A trade-off. Ugh, I’m disgusted but with Fibro or any Chronic Pain Disease when aren’t we totally fed up? Usually I can handle it very well and I am NOT a complainer but now I am definitely cranky. If I can’t run around and have some semblance of a normal life at least let me enjoy my sleep and sweet dreams.

I guess that’s too much to ask, isn’t it? I’m giving this drug a few more days and then I will begrudgingly call the doctor as promised. I know he is just going to give me one pill after another to try but I wanted fewer pills not more. Granted, passing out at any time definitely had its disadvantages and the fact that no one call feel my pulse was a little scary but there must be something in-between?

Before you tell me about any type of herbs or supplements I am NOT allowed to take any, because of the chronic kidney problem. It’s time to do some deep breathing, now that I’ve written my frustration out here, hopefully I’ll feel better soon.

If not, there is always leftover pizza with grape jelly.

IF I had some.

Nestle Toll House Chocolate Chip Cookies

Nestle Toll House Chocolate Chip Cookies (Photo credit: fritish)

Since I LOVE FOOD and SWEETS maybe it’s time to make Nestle’s Tollhouse chocolate chip cookies. Just one, maybe two before bed with a very large glass of milk. Milk is medicinal, it helps you fall asleep.

That is, of course, why I will bake cookies today, all in the name of science.