Loving The Ocean, Settling For A Lake?

Dear Fibromyalgia,

Another loss, another dream dashed, this one really hurts. All my life my dream was to live in a small house near the ocean. It was my fantasy, the one thing that I could think about when I felt a little down or when the Winter seemed unending.

Rainbow Waves

Rainbow Waves (Photo credit: The Uprooted Photographer)

Someday…I told myself, I will live in a beach house, and swim in the ocean. To me, the ocean is life, it is majestic, magical. It is the one source of pleasure I can count on, always.

Ever since I was a child my favorite activity would be to collect shells, to feel their shape between my fingers. What were the dominant colors? I used one as a “worry stone” others shaped like hearts I would give to my children. Another one with a little hole on top, I used as a necklace.

Seashell

Seashell (Photo credit: Moyan_Brenn (back soon, sorry for not commenting))

When I was hot, I would drift into the ocean between the two green flags and submerge my whole body and head into the oncoming waves. I was not a timid swimmer. I loved to jump wave after wave, it was thrilling for a scaredy-cat like me. It was adventurous and bold for someone scared to take chances.

In the water I was brave, confident, and happy. It was hard to get me out of the water but when I came out, usually under protest, I was out only until my swimsuit was dry, and then I went back in. I never had the patience to lie in the sun just to get a tan. Never. If I was in the sun for more than three minutes, it was far too long.

The beach was MY place. My secret place. I can’t even allow myself to have the fantasy anymore which saddens me. I have no balance and no strength since I got Fibromyalgia, seven years ago. My life was stolen from me, little by little. The last time I went into the ocean was in Florida, three years ago, with my daughter, and I couldn’t get up out of the water. I kept getting thrown under, again and again until I couldn’t breathe.

Fibromyalgia Eye

Fibromyalgia Eye (Photo credit: Vinally2010)

I needed her to help me get up. It took several times.

I lost part of myself that day and every day since. I know now that it IS a progressive disease, I feel it. I know with time I have gotten worse; my dream will never come true.

Beautiful, Tranquil Water

Beautiful, Tranquil Water (Photo credit: BrotherMagneto)

If I ever get to live close to the water it will have to be a lake but that’s not nearly the same as the ocean, not even close. Dreams die, health fades, burdens multiply. We cannot do anything else but accept. Accepting graciously is one option. I’m not there yet.

So, Thanks Fibromyalgia, you not only messed with my body this time, you messed with my dreams and emotions too. Way to go.

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Kellie Elmore, FWF

Clear Lake

Clear Lake (Photo credit: DBerry2006)

'Crashing Waves' - Porth Swtan, Anglesey

‘Crashing Waves’ – Porth Swtan, Anglesey (Photo credit: Adrian Kingsley-Hughes)

I’ve been calm all my life, I have kept things inside me, perhaps there was turmoil that I never knew about but just felt it in an eery way. Some say it came out in different ways that were unconscious, maybe it was always there, life is not a perfect place to be but I had to be it.  I was smooth, calming, dependable because that was my role. Nobody said anything; they didn’t have to, I understood with a blink of an eye or a shadow cast by the sun or the moon. I was stripped down to nothing, you could see through me on calm days, right down to my little toe pebbles where you would daintly swim.

As I got older, I tried hard to separate from all of you, it took time and strength. Yes, strength to cut those ties that were strangling my neck. I pushed and shoved and every time you pushed back I was getting stronger and stronger to not allow you to bully me. I pushed back with my self-confidence, with blustery forces, with big white foamed currents, rolling waves and when I felt like it I would knock your ass to the rough,sharp, uneven ocean floor. If you had been really mean to me as soon as you got up, I pushed you down again making you gasp with uneven breaths. I could do that now, no longer was I a calm little secret, holder of all things peaceful and gracious.

I was confident filled with self-worth, I was in charge now, chuckling at your ineptitude. I was right, not you. My importance and intuition was unbelievably sound. Yes, you were wrong, battling your head against me again and again. But, I stayed sturdy, hitting you back over and over until I had punished you all day and a little of the night when the sun had set and I could relax in the joy of my last accomplishment of the day. Finally, you understood, that tomorrow and every day afterwards, I would never back down and be your puppet again. I knew me, and I knew all of you and you could burn in hell as far as I cared. It was harder for you to say you were wrong, all along, wasn’t it? I know, but I no longer care. Because I do KNOW the truth I always have, you pitiful, self-involved, selfish beings, the scum, green, slippery left-over seaweed that we all avoid.

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My Top 20 (Food Pop, Pop Cop, Odd Cop)

English: A jelly donut that was bought at Dunk...

English: A jelly donut that was bought at Dunkin’ Donuts in Brooklyn. (Photo credit: Wikipedia)

20 RANDOM THINGS I LIKE:

The year is slowly coming to an end, the weeks are flying by. I’ve put together a current list of things that make me happy. Life can be hard, you need to appreciate the little things, here are twenty of mine:

1) Alex and Sierra (From the X Factor)

2) Miniature Almond Joys

I love these and their cousin Mounds but here you get an added crunch of the almond. I LOVE coconut, the taste lingers on your lips after you finish it. Don’t tell my dentist but if I have one of these before I go to bed I “accidentally” forget to brush my teeth. It’s so worth it. The only reason I added Mini is because if I have the regular size I start to feel guilty. ( You can’t possibly feel guilty after eating one of those.) Win-Win.

3) My Christmas (Thanksgiving) Cactus

Every year at Thanksgiving our Christmas cactus starts to sprout beautiful, bright red flowers. I guess our cactus is always early (like my whole family) and shows up ahead of schedule. Seeing some bright red color when the winter is so gray makes me happy.

4) Ferris Bueller’s Day Off (the movie) The one movie that divides sisters! I love it and my sister hates it.

5) The time 8:32. On the way to junior high school, I would always look out the window while I was standing in the overcrowded, adolescent, odorous teenage filled bus. We passed a bank near our school and there was a big sign with the time, every morning we passed,it said 8:32. For some reason, that number when seen, still makes me happy.

6) Believing in messages from those who have passed on and getting them for me or a friend. Powerful. Spiritual: “Love Does Not Die” ( Post)

7) I like the way my husband orders his french fries: “Can you make them extra crispy please?”

8) My friend Denise’s nut tarts. I have a friend who bakes the most delicious, bite size nut tarts, she could sell these professionally, they are like a work of edible art. Bite sized carmelized pecan heaven, I’m almost glad I don’t see her often. Addictive.

9)  Avegelemno soup, from our local Greek restaurant. Tangy, lemony with pieces of chicken and rice. Served with soft, puffy pita bread.

10) Goldfish (the living kind not the crackers) I had a goldfish named Frank that I loved dearly, umm, it died and it was all my fault. I overfed it. I still feel guilty and this was many years ago. I’m so sorry, Frank. R.I.P.

11) The sun and the color Yellow (see my weekly posts on Yellow Magic Madness)

12)  A body of water (any kind) ocean, lake, stream, pond…This is where I feel happiest, close to water.

13) Nature. As I get older I want to spend more and more time outside surrounded by mother nature. It was not that important to me when I was younger. Age gives you experience, wrinkles too but it also gives you wisdom. I like to be outside, weather permitting, as much as possible. Even with Fibromyalgia, I try to force myself outside when I can.

14)  Vacation:  For the last few years I haven’t had anything to look forward to in a major way. Sure, I look forward to see my friends or to go out to dinner but having something special to look forward to months from now is incredibly joyful. We are planning a trip with my mom in the Spring and I am looking
forward to that, more than I can explain. I definitely need something once a year, it will be my New Rule for myself. It doesn’t have to be anything big but it does have to be SOMETHING.

15) Jelly Doughnuts: We have them on New Year’s Eve, a European Tradition but I had one the other day while my husband had a Boston Creme Pie doughnut just for the fun of it. Delicious. Thank you, Dunkin Donuts.

16) Singing out loud (and off-key) to music streaming from my computer (classic 70’s pop rock, Bruce,

17) Listening to my husband whistle, happily. My father used to whistle happy tunes all the time, when my husband whistles it also reminds me of my dad, and that’s a good memory.

18) Pizza (There is no such thing as bad pizza, when it is leftover pizza and is too dry or it loses its taste, add strawberry jam.) I’m serious.

19) Books (Real books that I hold in my hand, no techno devices) Call me old-fashioned.

20) Flashlights.

English: Evening sunshine, Rutland Water. Just...

English: Evening sunshine, Rutland Water. Just to the SW of Lodge Farm, this part of the shoreline looks most inviting. It’s just a pity that the beach is mud and there is blue-green algae in the water! (Photo credit: Wikipedia)

9 And A Half Minutes

Shark

For those of you who are new to my blog (welcome)  I want you to know that I occasionally write a blog post called 9 and a half minutes. It’s basically a shorter, nicer version of Andy Rooney on 60 minutes. I do complain, wonder, question and kvetch ( to be disgruntled or complain) but not in an insolent, condescending way. In no particular order here are today’s topics:

My one true love is the ocean, now I am concerned with sharks and jellyfish and scary biting fish. Now people are dying because they swam in the lake. Did I hear correctly that the news said “brain eating amoeba”in the same sentence? I love water, a pool has lots of chlorine and to me, it is not as much fun. Soon just soaking in a tub will be off-limits.

I can no longer watch the news because it puts me in a depression or I feel hyped up with craziness and worry. There are too many atrocious things happening: bombs, terrorists, fires, tornadoes, hurricanes, tragic accidents, cancer and hundreds of thousands of other diseases. There are perfectly innocent and beautiful sick children, children who die from one second to the next with no explanation. What kind of fair is that? I know someone whose son, age 6, passed away and they still haven’t gotten the autopsy report and it’s been three months. That is just plain wrong.

I am cranky, disgusted and fat. My chronic pain illness is getting worse and it’s an effort for me to get out of bed, walk downstairs and feel stiff and in pain all the time. I’m getting worse, not better. Doctors are putting chronic pain patients in chronic hell because now doctors don’t write out a prescription for medication WHEN YOU ARE SUFFERING AND NEED IT. Dear Doctors: we have no intention or interest of becoming drug addicts, we just want medication when we hurt so much we want to scream and throw plates at the walls. I know a doctor who prescribes vicodin by the mouthful but when it doesn’t help and the patient would prefer something less strong, he won’t do it. Does that make any sense?

What’s next? Going out in the sun of course can produce melanoma. Sitting inside during the winter can produce SAD, (Seasonal Affective Disorder) that makes you depressed. Go out for a walk, just be careful that there are no bears in the neighborhood or coyotes who swoop our precious little dogs and eat them for dessert. I will not let my dog become a wolf’s brownie.

Lastly, my baby tooth (I know, I know) has a chip and a cavity and will eventually have to be replaced with some expensive artificial tooth, I miss Gray’s Anatomy and I don’t think I will ever get over losing Oprah in her time slot. I actually miss Oprah too much to even try watching OWN. I’m trying to eat dark chocolate instead of milk chocolate bu, to me,t there is no comparison and it is a complete stretch. Meanwhile mosquitos are french kissing my skin and I am scratching at my arms in desperation looking like a coke addict.

Tomorrow the workers come back with their little demolition derby and our four-day respite will be over. It’s Sunday night and I have always hated Sunday nights. I need to love my dinner on Sunday nights which includes dessert. When we came home tonight I was eagerly looking forward to tasting the cake batter ice cream that I bought for the family. There was none left, my son ate it all today. So much for a pleasant Sunday night, I’m already dreading Monday. Truly.