Sad Saturday

*In The Early Morning RainIMG_0430

It’s 12:33 in the morning and I’m eating Froot Loops, with some mini Shredded Wheat and a bunch of blueberries tossed in that lack flavor. The rest of the family is doing a volunteer ambulance run and while they are helping people I know the roads are slick, black ice lurks sneakily in the dark.

I have felt totally listless all day and night. I lack energy and for the past seven years of having Fibromyalgia, this chronic pain-in-the-ass illness, I feel my whole body and mind stuck in a ditch, in neutral, spinning my wheels, going nowhere. I stay in my light, colorful, flowered patterned pajamas all day, I don’t even have the energy to change much less go out. My nose is stuffy, I ache all over, I am a floppy “Raggedy Ann” doll without her cheerful smile.  I feel older than the old person I am. There is no energy within me. None. The word “lethargic” sums it up well.

Who am I and who am I not?  Or, are the physical limitations and limited time having energy really getting to me? Of course, this horrid, freezing cold winter never helps me, it makes everything worse. Every year I start the same sob story about wanting to move to Florida or California, maybe even Arizona. I say it every year but we are still here in a very COLD town on the East Coast. I don’t fit in but at 57, that is the very least of my problems. The divider here is youth and money, lots of money. I lack both.

I need to go to sleep soon, my eyes are just about closing, my tummy is full with children’s cereal and sugary milk to slurp from the light green ceramic bowl.  I love these bowls, I have them in all different colors, they make me happy each time I use one. I take a few delicately pale pistachio nuts from a bag that is already open. Food is very important to our family, especially to me. It is imperative that we like our dinners especially on Sundays.

While my husband is unemployed, we deny our pleasure of going out to eat except for special occasions. Generally we eat scrambled eggs with cheese, and toast, my home-made pea and lentil soups, with a loaf of French bread, my husband’s eggplant parmigiano, chicken in the slow-cooker, lots of pasta, salads. We will go out only once to say good-bye to our son, heading back to college. I am not good at good-byes. It’s easier for me to leave than to be left. It’s one thing I can’t change, I’ve tried. Now, I accept it and my family accepts it too.

I’m humming the tune that is in my mind, the one that is the title of this essay. It is soothing to me, I’ll try to attach it here for you. Good night everybody. Thanks for sticking with me on this cold, dreary night, while the rain pelts down on the windows.

Photo credit: LAF 2014

 

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The Best Road Trip Ever

Road trip? Me?

 

Australian countryside 🙂

Road trip AND Me = oxymoron. I don’t generally like to sit in cars for a long time, both because I have Fibromyalgia and it hurts, second, because I get impatient and childish. “Are we there yet?” comes from me and not my children but they do chime in. The one road trip my husband and I went on was when we were in Australia many years ago. (I admit it wasn’t by choice) I had a traumatic airplane experience when we flew from NY to Australia which stretched my ear drum. The pain was horrendous and wouldn’t go away. I had to see a Dr. in Australia and when he found out we were supposed to fly to Hawaii (frequent flyer miles people!!!) he said “No way.” While we hadn’t planned on this road trip, I wasn’t allowed to fly. We stayed in Australia and drove to other cities, to the beach, to the countryside. I gained a beautiful experience on the road even though I lost most of my hearing in my left ear. While I admit it wasn’t my first choice, I was so grateful that this happened. Road trip took on a whole new meaning for me; I loved it.

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