Plinky Prompt, Bye, Bye, Baby, Baby Goodbye… *

Sunrise in the islands.

Sunrise in the islands. (Photo credit: BuzzFarmers)

  • You wake up tomorrow morning to find all your plans have been cancelled for the next seven days and $10,000 on your dresser. Tell us about your week. See all answers
  • Seven days….
  • 1) Make a cup of strong coffee, add half and half and sweetener
    2) Call a travel agent (because really who needs to waste time on those discount websites.
    3)Book a trip to someplace beautiful and WARM, tropical and friendly.Spend five minutes fantasizing about the poolside drinks.
    4)Think about taking a family member or friend. Decide NOT.
    5)Pack, minimum-(enough money for shopping there)
    6)Arrange a limo? No, Personal Assistant arranges a limo.
    7)Leave a note to spouse saying “Went to_____love you, See you in a week!”
  • 8) Go to suite
  • 9) Lie in sun
  • 10) Head to beach
  • 11) Have a massage
  • 12) Shower
  • 13) Enjoy a fabulous dinner
  • REPEAT 6 times

*from The Beach Boys

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Plinky Prompt: You’re a movie star. What food/items do you request for your dressing room?

  • This is a picture i took for the Candy article.

    This is a picture i took for the Candy article. (Photo credit: Wikipedia)

    You’re a movie star. What foods/items do you request for your dressing room? See all answers

  • My Contract Rider
  • Get ME This, Get ME That
    Mini orchid flowers Sigh, do I have to answer this AGAIN? Damn it, this should have been handled by my PEOPLE a long time ago. LIKE I SAID, I want medium sized jelly beans, (and NOT spiced jelly beans) in a pretty crystal bowl that has a cover so they don’t get stale.( I HATE when that f–king happens), 2 bottles of iced Perrier, two egg salad sandwiches (if there’s peel in that sandwich I will not go on stage. A humidifier. My down comforter in yellow. Fresh flowers every day, mini-orchids (but YOU should Know that!) My puppy. My best friend when I ask for him/her. A swimming pool/steam room (I don’t care where we are filming, do it!!) Christmas lights strung around the dressing room,( white twinkling lights only), a jade plant, 5 silk eye masks and cucumber/strawberry platters. No alcohol allowed, except for a bottle of champagne, chilled, all the time. Plus 2 pitchers of fresh orange juice. Malted milk balls, a massage therapist on call 24/7 and sugar cookie (not vanilla) aromatherapy piped into the air ducts. That will be all. For now.

Buying A Purple Shirt While Eating Jelly Beans

This is a picture i took for the Candy article.

Image via Wikipedia

This is the kind of post you want to read on a Monday afternoon when the clouds are all gray and gloomy and it is the start of a brand new week. The orange-green-red leaves on the trees are swaying and they look like they want to cry. I’m thinking about the future and living somewhere else where the sun stays out all day and you don’t have to wear a thick black jacket.  The only perk today is that our house is clean and it looks pretty. There are no cobwebs that I can see and the wood shines like a Pledge commercial. It smells lemony and the beds are made and the sheets are fresh and I am planning to take a hot bath tonight. It’s against house rules to put your dirty body into a brand new made-up bed with sheets and blankets that beckon you and smile.

It’s our friend Christina’s 16th birthday and she looked so sweet and innocent and happy like a shiny polished Macintosh apple. My son drives her to school and back every day along with his sister seated proudly in the front seat. Christina was wearing the soft beige scarf that my daughter gave her for her birthday. Her arms were packed with brownies and oatmeal cookies and chocolate cake that her school friends made for her birthday celebration. Oh to be young, filled with sweetness, innocence and incomparable joy. I see myself in young Christina, all eager and willing to please, her arms outstretched for a big, warm, hug.

I’m listening to music to quell the anxiety that has been plaguing me for the last week. It starts in the late afternoon and escalates until nighttime; my stomach clenches and my legs ache with unbearable pain. My aches and pains stem from stubborn, bossy, Fibromyalgia and sleep comes as a welcome relief.

I’ve taken down all the photographs of my children when they were very young and replaced them with an up-to-date picture of the two of them grinning, their eyes alive with mischief; my son’s arm casually draped around his sister’s shoulders. I had to beg and plead a lot for that one portrait. While I am extremely proud of my children’s independence I have had a few problems lately adjusting to it.  I can’t forget the moment last year when my son said patiently “Mom, High School is one big lie.” It is a message that has been burned into my brain and I think of it often.  I didn’t believe him then but I do now. Apparently, lies are commonplace but I need to force myself to look deeper, for honor, and not compare my past, unhappy and burdened youth to their present, over-indulged happy lives.

I am booking a massage at the local spa, a gift I received for my birthday, and I am looking forward to it. There, I will not think of the last year, tension pressed up against stress like two sweaty lovers: unemployment and illness together as one.  I will fantasize about traveling, seeing the tulips in Holland, a trip to Israel in the spring, perhaps the countryside of Spain. I will picture my loving husband’s face, his hand in mine, playing the punch buggy game in the car and competing in the “I love you more” contest. I will remember that when I asked him for a phrase, another definition for “empty nest” he threw his head back, howled loudly, with glee and in a snap of a second he shouted: “Freedom.” I love him so much in many ways but I especially love him for giving me that.

Dedicated to Danny

The Fabulous Fibro Spa and Resort

HibernationNow and Phylor’s Blog present: How a spa would be designed and managed by fibrologists:

Dear Guest:

Welcome to the Fabulous Fibromyalgia Spa and Resort! Whether you are staying in the main building or one of our cottages (the Pain Villa, the Fibro Fireplace, the Befuddled Bedroom, or the Nerve Damage Madness), you will find that we are equipped to handle any situation that may arise. While we don’t leave a chocolate on your pillow, you will find 2 Advils or Aleves and specially designed heating pads specifically for those tender 17 points. We know there are days when you don’t move around all that much, so rather than steps or long walkways, you will find escalators similar to those used a airports. Please hold on to the sides as we know that some of you may have balance issues.

You can check in at whatever pace feels comfortable to you. As memory problems can be an issue, you will be given several key cards (room number stickers available upon request) in case you should misplace one or lock yourself out of your rooms. At 4pm and again at 9 pm, our special welcome cocktail, the Fibro Fizz will be delivered to your room.

Each suite or cottage contains a memory foam king-sized bed, a large bathroom with tub and Jacuzzi. We have an array of unscented toiletry items available upon request at check in or with reservation. Beside your bed, you will find a white noise machine with peaceful sounds such as waves lapping the shore, rain-gentling falling, and other soothing sounds from nature. At your writing desk, you will find a supply of post-it notes in different colo(u)rs and patterns, pens, and stationary for making notes. There is high-speed wifi, HD cable, and a list of more than 200 movies on demand at no extra cost. You can search the movie database by genre, stars, director, screen writer. We are always open to suggestions for additions to our list that can be made available within 24 hours. Providing these in-room movies has been a big hit with our guests. If you don’t feel up to going to one of our many social areas, you can relax in the comfort of your own space and refresh your memory by re-watching classics, give your mind, rather than your body,  a workout with the action pictures (yes, some folks do move that fast), and since laughter is great medicine, our list of comedies is extensive.

For an additional $50 a night you can upgrade to one of our luxuriously padded rooms, conveniently located next to one of the dining areas. With walk-in bathtub, Epsom salts on demand, and doubly padded walls and floors, these rooms appeal to the fall and/or trip crowd.

Every hour is medication cocktail hour at the indoor and outdoor pools. Our staff will gladly prepare whatever combination of medicines, vitamins, and supplements suits your personal needs. Some of our more popular concoctions are the Savella Sling with just a hint of Tramadol,  the Lyrica Laser prepared with or without Xanax, the Gabapenten Gobbler, best served with a dash of morphine and the Oxycontin Overboard that contains over 7 medications, and 10 supplements.

Our dining facilities that include a formal dining room, casual café, and coffee bar are open 24/7 for your convenience. Our chefs have created a luscious array of soft foods for people with TMJ. You can choose from menu items, or request the kitchen make something special for you. Room service is also available 24/7. There is no need to get out of bed, the restaurant has a key and tipping will be added at the end

Our spa has all the latest in massage and relaxing techniques including hot stone therapy, therapeutic massage, breathing and relaxing exercises. We are always happy to deal with your bunions, your broken toes, your mangled feet. Included in your package are several free extras we call our Fibro Fix-up: a manicure and pedicure, hair cut, tricks to hide those dark circles from sleepless nights, and the opportunity to consult with one of our Fibro Fashionistas for the latest in lounging and sleeping wear. Our full Fibromassage offers gentle touching of those inflamed areas all over your body. We especially cater to the 17 point system of pain centers. Our staff has won over 25 first place ribbons at the Annual Feeling Fibro Massage and Comfort Olympics.

A recently added feature is our Fibro Fitness team. These well-trained and dedicated Fibro-Fit individuals wheel the exercise equipment to your room, carefully encase you into the fat-melting machine of your choice, and the machine does the rest. For those of you who don’t need to shed a pound or two, we have a special cheesecake and ice cream diet to ensure you get those needed extra calories. You can have these special meals delivered to the privacy of your own room, or you can join others on the thin side of healthy Fibro-Fattening Bistro.

One of our more popular features is the Xanax Room. Open 24/7, you can order the strength of Xanax you need to let those feelings of panic and anxiety just slip away. And the price is right: free Xanax! Adjacent to the Xanax Room, the Ambien Pre-bedRoom prepares you for a cozy, sleep-ful night. There are teas, comforting lavender and other scented oils and candles, and helpful staff members who will accompany you back to your room, and tuck you in for that nice, long sleep you have been looking forward to.

We have a fleet of electric scooters should you feel like a leisurely ride along one of our specially designed walkways that sweep themselves clean, so there is nothing along the route to jar your bones. We pride ourselves on our gardens, including the Zen garden should you feel the need to meditate outdoors, and a complete herbal garden for creating our special teas such as:

Morning Eye Opener, Afternoon Nap, Evening Relaxation, and Bedtime Comforter.

We have hotel hosts and hostesses posted every two feet so that when you lose your way because of Fibro fog and get lost, someone is always there to turn you around and point you in the right direction.

This is only a small sample of the information will find among the pages of your welcome kit. Please feel free to ask questions as many times as you need to while acquainting yourself with our facilities. Our aim is to give you as much pain-free, fibro fog-free time with us as possible. You are free to participate in any of our organized activities such as Bend and Stretch or Sitting in a Chair yoga classes, make use of our arts and craft room, or, simply lay back in the gentle hug of your bed, and let us do all the work for you.

Thank you for visiting the Fabulous Fibro Spa, we hope to see you again soon.

hibernationnow.wordpress.com and phylorsblog.wordpress.com

for Chronic Babes Blog Carnival

The Lost Souls

I can’t stand the pain anymore;  I just can’t take it another second. I am having a hard time accepting that this is my life. I am not coping well today; I am not coping at all. Another day of stomach pain and too much sleep, no energy and endless trips to the bathroom, not leaving my home. Is it my long-lost enemy IBS revisiting me? Is it the side effect of the Cellcept that I am taking for my auto-immune disease, Hashimoto’s Thyroiditis? I don’t know, I really don’t know. I could easily start crying now, I just don’t know if I could stop.

I don’t know what to do and I hate that feeling, I feel powerless. I have no energy to fight or to make any medical decisions, minute or radical. I don’t have the strength or state of mind to start going to doctors anymore, again. What if I do nothing? Stop the medications and live like that? I’m scared. The medicine is supposed to be making me feel better and in some ways it does, except for the horrible side effects. Unless it’s a virus….See? There’s no way of knowing and I feel helpless, truly helpless.

People try to be nice, “Hang in there!!!” they write or say with heartfelt warmth. No. I can’t. I just can’t do it anymore. I’ve been pushed beyond my limit and I don’t know if there is a way to pull me back on board without me kicking my legs, punching fists in the air. I refrain myself from starting to scream obscenities like an absolute crazy person. I take an orange pill for anxiety, I drink a cup of ginger tea from a yellow ceramic mug. I droop.

It is clear I can’t continue to live my life this way. I’ve seen more doctors than I would like to see in a lifetime. Friends and relatives  yell out well-meaning ideas: homeopathy, acupuncture, massage?  There’s a doctor in Massachusetts, in Israel, two towns away? Try gluten-free, try vitamins, go to Dr. Weill, to this woman we’ve heard about in Brazil, how about the Mayo clinic for a minimum of $50,000 dollars and no guarantee?

I don’t want to talk about this, I don’t even want to write about it anymore except for the other “friends” who have painful and annoying chronic illnesses like me. They understand, they are the only ones who understand what it is like to live hour by hour. It’s not life-threatening, true, so we don’t get much sympathy but we have no lives to speak of.  What about us? The lost souls that linger in our beds, hoping for a surge of energy, a sign of life?  We are not part of the statistics because really, who knows about us? Who cares?   We are not in hospitals or reporting ourselves to the CDC.  We are not checking in to one specialty hospital because they don’t exist. We have symptoms all over the map, we are not just one disease. There are many, many of us who are unhappy, who are fighting each and every day ; we feel sorry for each other, because only we can understand the struggle, the fight, the emotional and physical pain that live with us just about every, single day.

If you are reading this anywhere other than hibernationnow.wordpress.com please be aware this posting was copied without permission.  Please visit my blog at hibernationnow.wordpress.com to see this, and my other blog postings.