mammogram monday

fell asleep with a headache, woke up with a headache. not too bad yet, refuse to call them migraines. how am I supposed to know trigger points or if it is the start of a migraine vs. a regular headache, this is all new to me.

the house is cluttered, my room overflowing with trash and in disarray. i keep saying i will do it tomorrow when i don’t have a headache yet that day hasn’t come yet. it’s been about two weeks in a row. yes, I am seeing my doctor on monday after my mammogram and ultrasound, yippee.

English: Woman undergoing a mammogram of the r...

English: Woman undergoing a mammogram of the right breast (Photo credit: Wikipedia)

really looking forward to that day….to be over. how could it be another year? how many posts have i written about measuring the time going by so quickly by the time in the pink-purple room of the waiting room in the mammogram section. i should count them or maybe you can. they are all in this blog, i’m sure saying the same thing over and over like the warnings not to use deodorant or baby powder.

it’s always the same, not the outcome, but the process. I worry, I know everyone worries, most people can hide it, i can’t. there’s a shocker. i try to make light conversation and people seem so grateful. we are all the same in this room, in every mammogram room, we breathe the same nervous air, we give each other half smiles laden with fear, we wink, we nod. when someone leaves happily, there is always the thumbs up for them, spreading fear within.

this time i will try to do mindful meditation, it helped during my dentist appointment and i didn’t need nitrous oxide, i was so proud of myself, the dentist so proud of me. will it help on monday? i have no idea but at least i know this much, i know it won’t hurt.

a universal feeling, women in their robes, waiting to be called in. we smile encouragingly to each other. one by one we go in, we leave, sometimes through different doors.

*IF YOU DON’T SEE IMAGES, I DON’T EITHER. I ALREADY TOLD ZEMANTA/GETTY SUPPORT. I’M SO TIRED OF THIS HAPPENING.  THANKS FOR YOUR PATIENCE.
 
 

 

 

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Same Old Pain, Now With Migraines

I’m used to the pain I have from Fibromyalgia, it’s not bad most days, no pain killers needed. Sure, there are a few days, mostly weather-related, that it gets worse but I can  stand that too, most of the time. It was under control until one day when I started having a headache that would not go away.

 

 

 

 

I’ve had plenty of headaches before mostly in the middle of my head and that’s how this one started so I thought nothing of it. I took Tylenol, the only medicine I am allowed  (Chronic Kidney Disease) to take, but it did not help. It was a mild headache for two days, I thought nothing of it.

Suddenly, the pain started crawling up on the left side of my face. It settled there like a jumbo jet that had just landed at the airport and was pulling straight into the proper gate. Passengers came off the plane then airline crew, the plane was cleaned and this baby was not going anywhere tonight. The headache had landed.

 

It’s hard to imagine I have another pain symptom but I accept it as my curse, this ugly life of mine. At almost 58 years old I now get migraines. “Welcome to the club” I mutter angrily under my breath, asking: “Why me?”

 

The first migraine, which ended me in the Emergency Room of the hospital moaning in pain and begging for a shot of something, anything, to relieve the intense, hammering pain happened a couple of months ago. “Nice to meet you, meet your new doctor, your Nurologist”.

I thought it was a one time thing, A visit to the Emergency Room, a shot and hydration and two days later I was fine. I went home where the lights were dim, I was safe in bed and all I wanted was darkness and no company, no radio, no television, just black solitude. I laid on my back and pulled the covers over my forehead, yes, this was my safe place, I promised myself the pain was over, gone for good.

Unfortunately, it came back with a vengeance twice more. Once a month ago and one two weeks ago.  I tried all the tricks, the medicine to supposedly make it go away before it really hits, a dark room, breathing slowly, ice, pressure points, Reiki, meditation….you name it, I tried it but it is clinging on to my head with traction and beating harder and harder.

It is now moving to the center of my forehead and the hammer is following after the movement, banging away, beat after beat rhythmically while all I can do is shut down and shudder.

Deutsch: "Kopfschmerzen". Die wohl b...

Deutsch: “Kopfschmerzen”. Die wohl berühmteste – stark von James Gillray beeinflußte – Arbeit in einer Reihe von sechs Blättern “medizinischer” Karikaturen, in denen Cruikshank Krankheiten als Teufelswerk brandmarkt. Erstmalig publiziert: 12. Februar 1819. Originalgröße: 210 x 255 mm (Photo credit: Wikipedia)

I know this isn’t fair, I know that life isn’t fair. I have accepted this new symptom because i don’t have a choice. It has joined the family of maladies that already exist, trapped in every limb of my body, from head to toe.

 

Since I was five I’ve always had a very low tolerance for pain, my parents used to tell me that. If one orange baby aspirin worked on other children to get their temperatures down, I needed two. I am still that way, believe me, it isn’t fun.

Recently, a friend told me to push my Internist to check more complicated Lyme Disease tests and I will do that. What are the chances? I don’t know but I will try. I don’t want to get even remotely excited.

Been there, done that, way too many times. I have no hope. I feel battered.

Enough already. This is getting old. Fast.

 

 

Food. GASP!


When I have NO food cravings I know there must be something wrong with me. I live for food, I think about food, write about food and I talk about food. I also fantasize about food and now I watch food porn on The Cooking Channel, The Food Network and more. My favorite shows include Master Chef when Chef Ramsay is nice and Hell’s Kitchen where I practically hide under my bed with all his screaming.

I also love, LOVE Junior Master Chef and the new (but not improved) Supermarket Sweep (Supermarket Games?)

My fantasy is to eat food, write about food and eat Phish food (Thank you, Ben & Jerry’s) maybe one day get paid for eating food. Yeah, right.

 

 

 

 

I inherited my love for food from my dad who loved food dearly. I remember one winter when I was a teenager my mom sent him out shopping for bread and milk. He came back two hours later with blackberries, he forgot the bread and milk. He couldn’t resist, he just had to have them and he knew we would all love them.  I can still hear my mother yelling about how much money it cost him. He didn’t care. I don’t care either.

 

 

 

The only difference between my father and I was that I can eat only eat small portions during the day and my appetite revs up at around 9:30 pm. My father never felt full. Ever.  He could keep eating and eating…. There’s a word for it called appestat, he had no appestat or barometer to ever feel full, he was constantly hungry.

 

 

 

 

 

 

 

 

I have the anti-appestat for the last four days. Thus, I have no appetite. What is wrong with me? No food cravings, no food fantasies, no planning of what I want to eat for dinner tonight (even though it’s only 9:00am.) This is not me. I’m not even planning what I want to eat tomorrow night or the day after. Mind you, I do not even pretend to be a good cook.

 

 

 

The lack of appetite must be leftover (no pun intended) from the horrific migraine I had on Thursday night (see: Thursday, While I Was In The Emergency Room) because I am still forcing myself to eat.

 

 

 

I bet my friends would even prefer if I was eating pizza with grape jelly (or banana slices!! as I just saw photographed.)

 

 

 

 

 

Also, and this seems tragic, I can’t even play the food fantasy game. One of my all-time favorites:

 

 

 

You are seated in an expensive restaurant with a person of your choice. The restaurant is known for it’s superb dining skills, everything from scrambled eggs to the highest quality beef wellington and exquisite sea food. What do you order” Three meals minimum:

 

 

 

Usually my answer would be something like this: Warm, Just Baked Bread with Butter, Room Temperature, I hate cold butter, (Shrimp Cocktail, Deviled Eggs, Beef Wellington/ Filet Mignon with sauteed Mushrooms and Brussell Sprouts AND the berry pie that explodes in your mouth with a slice of chocolate layer cake that has raspberry jam in between the layers. An Americanized version of a Sachertorte. Home made whipped cream or as we know it, Schlaag,(no Reddi-Whip) is essential on the side.

 

 

 

I play this game often and with ease and sometimes just with myself but today, the closest thing I can come up with is a graham cracker. That is pretty pathetic. I know, now you are jumping up and down in your seats screaming “NO D ???”

 

 

 

 

 

 

 

And I would have to shake my head, lower my eyes and sadly say “No, I don’t even want dessert.” This is the strongest indicator that something is wrong wiith me that I can come up with. I am so sorry. I have no doubt that my appetite will come back any day now with relish (eew not that kind)

 

 

 

 

 

 

and I will be sure to write about the very first meal I get ridiculously excited about. I don’t want to let you down. I think I have, forgive me. Maybe if you give me your fantasy meals I’ll get some inspiration?

PS  And, Judith, dear, Judith ice cream for all three is cheating.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Swedish Fish Are Mood Elevators

2.28.09

Image by absenthero via Flickr

Sometimes all we need is a change of attitude. Or a good night’s sleep or the morning light that makes evening’s horrific problems seem not so bad after all. It’s hard to wake up grumpy after nine hours of sleep. My back is a little better so that’s an improvement and I  hear the cardinals tweet their beautiful songs right outside my window. It’s raining but the light gray skies look hopeful, almost as if they were encouraging the sun to come out and play.

I found a diner that serves carrot cake by the slice but ever since I saw it I haven’t been back to buy it. Just knowing its available is good enough, well, until tomorrow when I go back, hand them my cash and run.

Writing about my narrow angled glaucoma last night made me feel relieved. It had never occurred to me to write about it before and I find that strange. I can post about Fibromyalgia but this horror, this reality, had subconsciously become my scary secret.  It’s as if before I had avoided a part of my own reality: I’m scared to death of going blind and the procedures themselves are excruciating. Help me. Please.

Tonight I will break apart the multi-grain French loaf that I bought at the store yesterday, warm it up and eat it with olive oil or butter and a chunk of sharp white cheddar cheese, and honey and that will be my dinner. I will drink diet vanilla Coke out of  a wine glass and celebrate being alive, celebrate yesterday being over.

My headache throbs incessantly and will not go away. Weather? Stress? Fibromyalgia? Life? These days I’m a single mother of two active and self-involved teenagers that dance around me. There is no real communication or help, because they are only concerned about themselves and their private worlds of friends.  I lost it today, saying I was not “their maid” and they need to help out. At 16 and a half and almost 18 and a half they should really know better but they don’t. Age appropriate? Probably. Annoying? Definitely.

I am looking forward to watching Modern Family tonight on television while eating Swedish Fish. Yesterday was the first time I ever had a Swedish fish, I took a few out of the bags I had bought my children and tried them. I now know why they love them. The texture is smooth, slimy, sugary sweet and strawberry? I eat them gingerly not wanting to tempt the pain of TMJ. Even so, Swedish Fish (and no, they are not paying me) truly are a delicacy, because other than ginger-lemon cookies, they are all I’ve got.  Sugar therapy. Works for me.

say narrow-angled glaucoma 5x fast on pain meds

Eye of horse.
Image via Wikipedia

my head is aching, laser like thunder striking inside my brain and down the right side of my face in a fast repetitive motion. don’t move, there, up, left, stay still. darts are being thrown directly into my eye by this rapid fire machine gun. a special hateful drop is given to me at the end for my shattered eye, throwing me, head first, down the crooked, chipped stairs straight to a migraine in progress.  doctor had to cut iris, no anasthesia and it was right near the nerves of my eye. lucky us fibromyalagia patients come prepared, had one old pain pill in my crusty, gray bag that has too many confusing pockets. the medicine did nothing. i have been suffering for too long,  in twenty years, my dr. boasts he has never had a patient like me before. i feel like i should at least win a prize or break down and cry uncontrollably. maybe both.

i am finally home in bed now but my right eye is glued shut and i am not allowed to open this eye tonight. i am cold and have winter blankets trying to protect me from pain and chills but they don’t do a great job, yet they are trying so hard. blame me, i cry, blame me. i am the arbiter of all diseases chronic and unknown and erratic, unusual, the  “rarely happens to……” it is not surprising that i don’t i feel special; tonight i have plenty of pity. problems with my eyes, ears, tmj, chronic pain, joint pain, foot pain, all the time. struggling not to become one with the symptoms but i feel like i’m wrestling with myself in thick, mixture of quicksand and mud. once in a while i want to just sink deep and let my breath come out slowly and simply float on top. i am tired of fighting, i’m tired of the pain.  i just want the pain concerto to cease playing. tonight i feel pain on my pain. if my head wasn’t above the blankets i would hide beneath them, though crying is difficult with just one eye.

who is this young stranger i ask from three feet and thirty years back. the one that used to shimmy in tight jeans and black leotards and confidence amid conversations of the psyche and e.e.cummings and the book review section of the ny times. i was a traveling girl until they clipped our wings; but most of all i was a dreamer.

my dog is sleeping peacefully on my feet. i woke up at 4 am today, perhaps with nerves but also with an incredibly optimistic attitude. optimism kicked me again in the face like a feisty pony named speed. i didn’t see the pain coming, speed kicked me from behind and sent me flying to the ground bruising every bone. every already aching bone and muscle.

i have all these strange, out of the ordinary afflictions but special is not something i feel. now i feel sad and sulky and in miserable pain. music which usually calms me grates on my raw nerves. stop complaining, i admonish, this is not life-threatening but it is painful and lonely as all hell. i miss my husband’s reassuring voice and soft, gentle hugs. i know i can survive on my own, always knew that, but it is nicer when he is there beside me, and not on a business trip, gently reaching for my hand. i miss normalcy if i even remember what that feels like.

i look forward to slow down the grumbling monster that is the pain in my head and shooting  down half my face. why am i not normal. why are there bizarre afflictions attracted to me like bees to golden honey. i am too tired to shoo them away because i have been robbed of energy. so they stay, circling me, viscious black buzzards landing only for their meal and my life.