Eppiglottitis: Do I Dare Ask How We Fared?

Fellow eppiglottitis sufferers, you KNOW what I am talking about, don’t you?   How WAS your Winter? I know it’s still July but I am already on high alert just anticipating the cooler temperatures approaching.

This murderess, inexplicable disease comes quickly from one day to another landing at any time, in one very specific place, beyond the throat, with no warning whatsoever.  All the patients are sure of is at least ten to fourteen days of hell and the most excruciating pain we have ever felt. Am I wrong?

Acute catarrhal pharyngitis. The oropharynx is...I just crossed my fingers so I will not jinx anybody, including MYSELF. Many people have written and asked me about this disease and while I have always followed up on each e-mail, now I want to ask how everyone did this Winter? I narrowly escaped it this year but I’m sure it’s on my To Do: List for this Fall. It’s hard to believe that you would be lucky twice in a row.

Does anyone care to share?  All “jinxes” are off and if they are on, I will be the one to get it because I initiated this damn blog. We share the same, horrifying experience, we feel the same excruciating pain and for all the pills to swallow and liquid to gargle it takes a long time to even feel the beginning of recovery.

pillsAs I mentioned in my earlier blog, “Calling Eppiglottitis A Bitch Is A Vast Understatement” the first time it happened, my ENT scoped me and said out loud “How the hell did you get THAT?” My answer, in my head, was “isn’t that your job, Bozo?” Which of course I didn’t say (basically because it was too painful to talk.)

Worst. Pain. Ever. Childbirth is like a little cramp compared to this misery of hell. There are no pain pills that can keep up. Literally, none. Be thankful if you can still breathe and get yourself to the Emergency Room ASAP.

It starts as a simple, little sore throat and then our alarm bells are on alert…we are always aware that this could be an invitation to the deadly Eppiglottitis instead of just a regular old-fashioned cold. If a sore throat lasts more than a few days/ gets progressively worse, I haul my behind to the ENT where he will insert a tube (sorry) through my nose to look at the usually ulcerated gap beyond where the throat lies.

Swallowing is torture. Pure torture. I did read of a trick that, while it may sound disgusting, has a definite advantage: don’t swallow. How, you ask? Lie on your stomach and have a spit bowl. Next time I have it I am definitely trying that. What could be worse than that razor blade swallow. Nothing.

Also, get your behind to an infectious disease specialist, I have never been but I plan to go the next time this horrible disease stops by to visit.

Person washing his hands

I hope you have a wonderful  rest of the summer and do keep in touch with me in the Fall and of course in the dreaded Winter. Keep washing your hands as much as you can (it will make YOU feel better) but no matter what you will get through it if it should creep up on you again. Trust me, I know.

 

The Cranky Defense

It’s early Monday morning and I was woken up by the screech of the buzz saws right below our bedroom window jarring me from sleep straight into a miserable, throbbing headache.  Before I even began my day the hammers pounded in my head along with the screeching of the electric saws in high decibel, extra-loud volume, like the shrieking sounds of an inconsolable child.

I am cranky because the work being done on the house is to fix a big (sic: expensive) problem that meant digging under the house, replacing wood and floor tile. Two square feet of floor tile was replaced and now I have a dark and dismal two- toned, mismatched kitchen floor and I hate it. I think it is symbolic of all that I feel.

I am miserable because neither my husband or I have a job and that scares the hell out of me. Our two teenage children are winding down their school days and will be in summer camp for 8 weeks. I am happy for them but let’s face it being in a house with your beloved spouse, 24/7 is not good even in the best of times. I tug at the collar of my shirt, to indicate present and future hyperventilating; I know he must feel the same way.

I’m cranky about many different things: that we weren’t invited to a barbeque, that we don’t quite fit in with the “in crowd” that we are in a bad place because of the economy. Little things make a difference:  I was looking forward to watching the finale of Survivor with my husband but of course, the second I opened my computer I saw who the winner was. Really? Can they not just wait 24 hours before they plaster the spoiler all over the internet?  As an act of great love and kindness I did not tell my husband who the winner was; he deserves the pleasure of surprise.

I feel ill at ease and at night, before bedtime, I try to think of  jobs to do but that just causes me to get agitated and then I can’t fall asleep. When I finally fall asleep, I sleep restlessly and have nightmares about my mother every single night. I am always angry at her and she is mean and doesn’t seem to care.

The only positive side to my crankiness is that at least I am not eating an excessive amount of food to cheer myself up.  In the past, I would have been at Mr. Donut Man ordering raspberry jelly doughnuts. Oprah and her friends would be so proud.

My health is unchanged, I have no energy and the new drug, Cellcept, used for auto immune diseases hasn’t kicked in yet. I don’t know if it will even help. My guru Dr. keeps telling me to be patient; that’s easy for him to say. He hasn’t had Hashimoto’s Thyroiditis and a myriad of other illnesses continuously for the last 3 years.  I am tired of being patient. I am tired of being tired.

I went for a blood test again today  at Quest Labs that hurt as the needle wiggled and skipped to find its way to my bluish-gray vein.I made the mistake of glancing over and seeing the dark red blood filling up tube after tube.  I noticed that their linoleum in the lab was identical to the dreaded beige-brown fiasco that now lives in my kitchen.

I’m lonely. I ache for my father who passed away eight years ago and I miss him, Father’s Day is looming ahead of me like the extended weather forecast for thunderous storm clouds. It’s a lengthy invitation to depression. I think the only place I should  go to is the cemetary where my father is buried. At least there, I am allowed to cry; I am allowed to mourn, and all my pent-up emotions will explode and I will place a perfectly round, white stone on his gravesite and allow myself to grieve.