Life With Fibromyalgia And Hashimotos Thyroiditis 12.20.2014


I really had no plans to write this but I noticed a few people were reading an update of mine from 2011 on this very topic and I just couldn’t let that happen. Believe me, not much has changed but I thought I owed it to you to at least change the date and update you with my thoughts.Hashimotos Thyroiditis is an autoimmune disease of the thyroid. Many people have this condition in conjunction with other illnesses.

Having Fibro and Hashimoto still sucks. Big time.

No surprise there, right fellow sufferers? My number one complaint is not having any energy and if one more person tries to tell me to exercise more (including my new Rheumatologist) I will want to slap them silly. I should have stayed with my old Rheumatologist,  he loved me best but I just couldn’t go see him in the city anymore. I didn’t have the energy to take

English: Common signs and symptoms of fibromya...

 

trains and buses and taxis and walk up two flights of stairs and down two flights of stairs. It’s not as if I dropped him, he was so sweet and understanding, Fibromyalgia did.

I now see a not so nurturing Rheumatologist in town and her motto is basically “Get over yourself and exercise.” She must know my mother.

I KNOW exercise is good for me, for us, but it sounds better than it is. Fibro Flare, really? I hope you have more discipline than I do because I need tips on how to haul my hurting rear out of my bed and on to the treadmill.

Anyone?

I KNOW it is not good for us but I COULD stay in bed 24/7 because of the exhaustion. Couldn’t you?

I’m on Savella twice a day, I was given a choice between Savella and (Fibro Fog, can’t remember the other one’s name but it is widely used and known to put on weight) so I chose Savella. It helps. Is it a cure, ha ha ha. NO. There is no cure, as we all know.

I’m now considering myself LUCKY that I got these illnesses when I was 50 when I hear stories of young when who get these illnesses in their twenties. I feel for you young ladies, I truly do.

What’s the worst part (parts) of Fibro for me? No memory and no energy!

No memory. None, Nada, Zilch. It scares me to pieces. It really does. I go upstairs to get a sweater and as soon as I go up a short set of stairs I am turning around in one room and then another NOT KNOWING why I came upstairs.

Yes, it freaks me out. Anyone else have this too? I need reassurance.

That, and having no energy except for one or two errands ( if I am lucky) every day or every other day. Buy the way, between hearing loss and forgetting I have young adult children (especially my daughter) who still makes me feel like dog shit when I don’t remember what she told me. “I TOLD you that…” and she may be referring to a year ago or two weeks.

I feel bad about myself as it is, but wow, I feel worse after one of those angry, “how stupid ARE YOU? looks.”

Researchers say they made a discovery about nerve pain, but to tell you the truth, it’s just words on a page. There has been no further development to HELP US. If you have found something, please let me know.

As for now, do the best you can, give each other support, I’m here, lots of Fibro Friendly people are on-line. Some of my best friends started with a now defunct Fibromyalgia group but we have stayed friends, close friends. (There is no image for a group of people in pain and smiling, I tried.)

I wish you all good health, good luck and better things to come in 2015.

With love and empathy,

Always.

 

Free Write Friday, Kellie Elmore: Tulips

English: Cultivations of Tulips in South Holla...

English: Cultivations of Tulips in South Holland Italiano: Coltivazioni di tulipani dell’Olanda Meridionale (Photo credit: Wikipedia)

“Today you have been granted the opportunity to go anywhere, do anything, meet anyone, travel in time…whatever you wish, it is yours. Now, there’s a catch. (Isn’t there always?) When you wake up tomorrow… you will not remember any of it.Would you still choose to take the offer? Can you drink in the moment and enjoy it knowing you will have no recollection of what happened? Think about it?  How important is a memory?”

Part 1:

I would hop on a first class plane, sipping orange juice and amaretto on my flight to Holland. I stretch my legs and marvel at how wonderfully everybody treats you when you are sitting in first class. I have a menu in my hands and I need to pick what I want to eat for dinner. I decide on the Surf and Turf for my entrée, happy not to have to pick just one item. After the flight attendants take everyone’s order they pass around trays of appetizers: mini lobster rolls, Brie or St. André cheese and crackers, pulled pork sliders and chicken salad with chutney in phyllo dough. Loving food, as I do, my tastebuds are dancing with joy loving the different sensations in my mouth.

I sleep for three hours and by that time the pilot announces our descent which brings me right into the airport/and waiting limousine to take me to the Tulip Festival, now in full bloom. I bask in the beautiful scenery, the rows of color: red, pink, rose, orange, green that stand in line like tiny soldiers. I drink up the sight and as fresh, cold bubbly spring water quenches my thirst, these rows of tulips fill another need. The primordial need to see beauty .  Rows upon rows of beautiful tulips, in every color, so vast that you think it is a prop from a movie. Yes, it is real and the gigantic proportions make me feel like an insect crawling on the freshly mowed grass. The scent of the grass tickles my nose and I laugh.

I am here, at the tulip festival, a place I have always wanted to see. I am giddy, my cheeks are pink from the excitement, like the color of one of the rows of tulips, my body trembles. I sit down on one of the many benches they provide for tourists, wooden slated benches, simple, nothing overdone, they mustn’t out-do the beauty ahead of them. Looking around me there are other people, each one, staring at the beautiful scene in front of us. There is no litter here, just rows of flowers, tilting their heads to the sun. Some tourists try to take photographs but you can’t capture an entire field in a photograph. Or the smell. The smell in the air is clean, fresh, with a hint of sweetness, freshly moved grass, and sunshine.

There is nothing else I want to do but sit back, stare and breathe, long, take long, deep breaths.  I do not want to sit on a bus like some of the other people, seeing churches  and old houses and attractions. I am where I want to be, in the garden of beauty, nature’s beauty and I, a quiet admirer, overwhelmed by this magnificent sight. There is nothing else I want to do but stare and take in this picture of magnificence and beauty.  I am where I want to be, in the garden of beauty, nature’s beauty and I a shy yet ardent admirer.

****

Part 2:

It’s early morning in our house. My husband, Steve, has already left to go to work by train. He has left me coffee to drink in the machine and I greedily reach for it and drink it in two or three big gulps. I go about my chores as usual. I wake up the children who need to get ready for school. Fortunately, I always make their lunches the night before so I don’t have to do it in the morning. I don’t tell the kids but I hate mornings too. I pour cereal and milk, my two kids, 8 and 11 are loud but we laugh a lot. I rush them outside to wait for the bus, get them on the bus and I wave as the bus leaves. They still wave back to me, I know it won’t last very long, they are growing up so quickly.

I go to the grocery store with my list, a long one for four people in the family. I start checking off items on the list. Milk, bread, chicken, cheese, steak on sale, and about ten other items.  After I am done I wait on a very long line, reading a trashy Hollywood magazine that I refuse to buy but actually love to read. Finally, it is about to be my turn, I start unloading my cart. I add a pack of sugarless gum because I can’t resist those items at the end  of the aisle where their placement seems to stare at you, practically begging you to buy them.  My husband calls me”The ultimate consumer ” because I love to see new products at the store.  At the very last second, I reach over the counter to stretch and grab just one more thing. It’s something I never do, but I didn’t even think about this, it was impromptu. I reached over the counter and I bought tulips.  Pink tulips.

Pink Tulip 2 of 3

Pink Tulip 2 of 3 (Photo credit: krispijn.scholte)