so, so tired i’m not looking at the keyss

this is one of those random, no punctuation, stream of consciousness blog posts that i sometimes do with my eyes closed. thanks to my junior high school teacher who taught me how to type and bribed me with multi colored jelly beans.

A bunch of Jelly Belly jelly beans resting com...

mu head is back lying on the pillow and i just finished a lot for dessert, chocolate covered cherry and small lorna dunes.. i am so tired that mh ehes are thickenening with sleep and conjuring up stories’\\that make no sense. christopher robbin and winnie the pooh, a sinister man in a closet and in the background thart i can’t see but i can hear is the ocean, roaaring with an forceful tide.

i know i love the ocean so it doesn’t scare me at all//. tomorrow my baby girl of 20 comes home i can’t wait, her brother coming home on saturday i think. i have to rememver  the  3 day adjustment period we went through over thanksgiving that i totally forgot about. this time, prepared, maybe it won’t happen. i long to see them sometimes, my heart aches and yet  dan and i are happy to be alone together which is nice.

another year ending, i won’t be wsorry to see it end, it was a rather tough year but i i guess we didn’t notice that when you re young but, likr s rainbow after a thunderous cloud and rain storm, we get through the storms, one afrer another yet the rainbows are hard to find now.  rainbows are very rare, but if one day you see one it will stayu with you forever.

i’m tired so i need to go to sleep on my newly washed old flannel sheets that i haven’t used in yers.they have a dog and cat pattern on them and they are cheerful. they have been sitting in my closett scrunched in a ball,aching to be used. i thought theyw ould be too warm for mme…what on erth was i thinking? maybe that was pre fibromyalgia or pree aging but to me now they are a gift of softneww. i rub my feet against their  velvety surface.

now i must go, my eyes will remain shut. i will open them just to shut down the computer to turn off my pjone and my bedside light. i’m looking forward to putting m y head on my dancing dogs and cats pillow aand tht first cup of my morning strong cup of coffee with cocoa powder mised in. anothers night brings nother day. there’s hope.

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Convo With Myself, A (Changeable) Libra

I’m the first one to admit that I have often overlooked that I have options in life because I have been crippled with nervousness or anxiety. (Well, sometimes I have but not always.) Just recently, out of nowhere, the thought that I DO have a choice popped into my head.

(Apparently, this new thought has happened many times before) And, of course, I have written about this choice again and again.(Ad nauseum.)  I will try over and over until I get it right.(It’s not looking too good.)

It’s the toughest lesson for me to learn.( Really? I hadn’t picked up on that yet?)  I know it in a cerebral way it’s just not reaching my body.( oh please, what utter garbage, it hasn’t reached anything, anytime, anywhere.) Let’s face it, take the damn healthy drug.(Was there ever another option that worked?)

This may not be shocking to many but for me, it was an awakening.( yes, again for the umpteenth time.) Circumstances will change that we will have NO control over, that’s a given. How you look at those changes( I could seriously slap myself)

and how you react are things you can (hopefully) control. (slapping harder.)

After endless years of worrying, obsessively worrying, about the future past or present  it came to me in one clear moment,( I really doubt my sanity sometimes) out of the blue, (again) when I was not even thinking about it, that I can choose my reaction (sometimes, probably while medicated) how I look at my reactions given the same situation.

It’s true, I can choose to make something a tragedy or an opportunity, deal with it,  get hysterical or just let it sit for a while. (an amazing amount of bulls–t right here.)

I think meditation (last time I tried I could only do two minutes before I got antsy) and yoga ( during the class) and being aware of my breath has helped me, I try, (emphasis on TRY)  before I panic, to take a few, long, deep breaths. Inhaling slowly, ( now THAT really would relax me, oh just kidding) settling my brain, forcing it to neutral even if it is only for one minute has helped me (this part is true).

Believe me, I’m not saying it will never happen again,( ha, ha, ha) I may slip back into my old sloppy, slovenly ways sometime ( now) when I am deeply overwhelmed (as in half an hour ago) but at least now I know I have the capacity to make a choice, (once in a while) that it is up to me. I am not a victim, I am in charge of my life. (Yes, I should definitely be in charge, and NOT a victim -nice try) A trait known to many but unknown to the same amount of people, the worriers of the world, the anxious, the timid, the frightened.( I’m here, in the left hand corner with my peeps.) I can change my reactions or my ability to perceive the news( As if…) It’s not always easy, I’m the first one to agree with that but we do have potential to try. (Yes, we do have the potential …)

I take a class once a week called”chair yoga” which I absolutely love. It keeps me centered, it gives my body some exercise and gives me something to look forward to every week. Picture something relaxing to you if you need an image, anything that you think is relaxing or beautiful is perfect. It can be of your newborn baby, cheese cake with luscious strawberries on top, flowers, the ocean, anything you love that is peaceful and that brings you happiness:

English: A slice of Strawberry Cheesecake from...

Trust me, if I can do it, ANYBODY can…and

don’t judge me or anybody else…we are in this together.

Haiku Horizons, Space

Crowd me with clutter

Gasping, struggling for white air

Give me space to dance.

English: Photo of the living room of a compuls...

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Ocean, Spacious, Sky

Diamond peaked waves twinkle, stars

Be One with Nature.

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She struggles for space
cloying boyfriend glued, shadow
Try to rip layer.

 

 

 

 

 

Loving The Ocean, Settling For A Lake?

Dear Fibromyalgia,

Another loss, another dream dashed, this one really hurts. All my life my dream was to live in a small house near the ocean. It was my fantasy, the one thing that I could think about when I felt a little down or when the Winter seemed unending.

Rainbow Waves

Rainbow Waves (Photo credit: The Uprooted Photographer)

Someday…I told myself, I will live in a beach house, and swim in the ocean. To me, the ocean is life, it is majestic, magical. It is the one source of pleasure I can count on, always.

Ever since I was a child my favorite activity would be to collect shells, to feel their shape between my fingers. What were the dominant colors? I used one as a “worry stone” others shaped like hearts I would give to my children. Another one with a little hole on top, I used as a necklace.

Seashell

Seashell (Photo credit: Moyan_Brenn (back soon, sorry for not commenting))

When I was hot, I would drift into the ocean between the two green flags and submerge my whole body and head into the oncoming waves. I was not a timid swimmer. I loved to jump wave after wave, it was thrilling for a scaredy-cat like me. It was adventurous and bold for someone scared to take chances.

In the water I was brave, confident, and happy. It was hard to get me out of the water but when I came out, usually under protest, I was out only until my swimsuit was dry, and then I went back in. I never had the patience to lie in the sun just to get a tan. Never. If I was in the sun for more than three minutes, it was far too long.

The beach was MY place. My secret place. I can’t even allow myself to have the fantasy anymore which saddens me. I have no balance and no strength since I got Fibromyalgia, seven years ago. My life was stolen from me, little by little. The last time I went into the ocean was in Florida, three years ago, with my daughter, and I couldn’t get up out of the water. I kept getting thrown under, again and again until I couldn’t breathe.

Fibromyalgia Eye

Fibromyalgia Eye (Photo credit: Vinally2010)

I needed her to help me get up. It took several times.

I lost part of myself that day and every day since. I know now that it IS a progressive disease, I feel it. I know with time I have gotten worse; my dream will never come true.

Beautiful, Tranquil Water

Beautiful, Tranquil Water (Photo credit: BrotherMagneto)

If I ever get to live close to the water it will have to be a lake but that’s not nearly the same as the ocean, not even close. Dreams die, health fades, burdens multiply. We cannot do anything else but accept. Accepting graciously is one option. I’m not there yet.

So, Thanks Fibromyalgia, you not only messed with my body this time, you messed with my dreams and emotions too. Way to go.

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Haiku Horizons, DRIFT

 

Fiery red ants climb

 

A human leg three days after coming in brief c...

A human leg three days after coming in brief contact with a fire ant colony (Photo credit: Wikipedia)

 

 

 

 

 

 

 

 

 

 

drift into tight follicles

 

 

 

 

 

Scratching pink skin raw.

 

 

 

 

 

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Die, near ecstasy

Mother Ocean

Mother Ocean (Photo credit: belindah-Thank You!-200.000 Views Now)

 

 

 

 

roar, overpowering Life

 

 

 

 

 

Waves, sand, drift away.

 

 

 

 

 

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Driftwood & pebbles

Driftwood & pebbles (Photo credit: Jerzy Durczak)

 

Driftwood, lies in dirt

 

 

 

 

 

Shaped like a  young bucking foal

 

 

 

 

 

 

 

Trying to escape.

 

 

 

 

 

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Kellie Elmore, FWF

Clear Lake

Clear Lake (Photo credit: DBerry2006)

'Crashing Waves' - Porth Swtan, Anglesey

‘Crashing Waves’ – Porth Swtan, Anglesey (Photo credit: Adrian Kingsley-Hughes)

I’ve been calm all my life, I have kept things inside me, perhaps there was turmoil that I never knew about but just felt it in an eery way. Some say it came out in different ways that were unconscious, maybe it was always there, life is not a perfect place to be but I had to be it.  I was smooth, calming, dependable because that was my role. Nobody said anything; they didn’t have to, I understood with a blink of an eye or a shadow cast by the sun or the moon. I was stripped down to nothing, you could see through me on calm days, right down to my little toe pebbles where you would daintly swim.

As I got older, I tried hard to separate from all of you, it took time and strength. Yes, strength to cut those ties that were strangling my neck. I pushed and shoved and every time you pushed back I was getting stronger and stronger to not allow you to bully me. I pushed back with my self-confidence, with blustery forces, with big white foamed currents, rolling waves and when I felt like it I would knock your ass to the rough,sharp, uneven ocean floor. If you had been really mean to me as soon as you got up, I pushed you down again making you gasp with uneven breaths. I could do that now, no longer was I a calm little secret, holder of all things peaceful and gracious.

I was confident filled with self-worth, I was in charge now, chuckling at your ineptitude. I was right, not you. My importance and intuition was unbelievably sound. Yes, you were wrong, battling your head against me again and again. But, I stayed sturdy, hitting you back over and over until I had punished you all day and a little of the night when the sun had set and I could relax in the joy of my last accomplishment of the day. Finally, you understood, that tomorrow and every day afterwards, I would never back down and be your puppet again. I knew me, and I knew all of you and you could burn in hell as far as I cared. It was harder for you to say you were wrong, all along, wasn’t it? I know, but I no longer care. Because I do KNOW the truth I always have, you pitiful, self-involved, selfish beings, the scum, green, slippery left-over seaweed that we all avoid.

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Haiku Heights

English: Flying Herring Gull (Larus argentatus...

English: Flying Herring Gull (Larus argentatus) on the baltic sea (4) (Photo credit: Wikipedia)

CADENCE

Seagull, seagull, see

Wisps of foam gathering speed

shells drift to the shore.

*     *     *    *    *     *     *    *

Time, passes, sun shines

Children leave in their own time

Wisdom and breathing.

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My Top 20 (Food Pop, Pop Cop, Odd Cop)

English: A jelly donut that was bought at Dunk...

English: A jelly donut that was bought at Dunkin’ Donuts in Brooklyn. (Photo credit: Wikipedia)

20 RANDOM THINGS I LIKE:

The year is slowly coming to an end, the weeks are flying by. I’ve put together a current list of things that make me happy. Life can be hard, you need to appreciate the little things, here are twenty of mine:

1) Alex and Sierra (From the X Factor)

2) Miniature Almond Joys

I love these and their cousin Mounds but here you get an added crunch of the almond. I LOVE coconut, the taste lingers on your lips after you finish it. Don’t tell my dentist but if I have one of these before I go to bed I “accidentally” forget to brush my teeth. It’s so worth it. The only reason I added Mini is because if I have the regular size I start to feel guilty. ( You can’t possibly feel guilty after eating one of those.) Win-Win.

3) My Christmas (Thanksgiving) Cactus

Every year at Thanksgiving our Christmas cactus starts to sprout beautiful, bright red flowers. I guess our cactus is always early (like my whole family) and shows up ahead of schedule. Seeing some bright red color when the winter is so gray makes me happy.

4) Ferris Bueller’s Day Off (the movie) The one movie that divides sisters! I love it and my sister hates it.

5) The time 8:32. On the way to junior high school, I would always look out the window while I was standing in the overcrowded, adolescent, odorous teenage filled bus. We passed a bank near our school and there was a big sign with the time, every morning we passed,it said 8:32. For some reason, that number when seen, still makes me happy.

6) Believing in messages from those who have passed on and getting them for me or a friend. Powerful. Spiritual: “Love Does Not Die” ( Post)

7) I like the way my husband orders his french fries: “Can you make them extra crispy please?”

8) My friend Denise’s nut tarts. I have a friend who bakes the most delicious, bite size nut tarts, she could sell these professionally, they are like a work of edible art. Bite sized carmelized pecan heaven, I’m almost glad I don’t see her often. Addictive.

9)  Avegelemno soup, from our local Greek restaurant. Tangy, lemony with pieces of chicken and rice. Served with soft, puffy pita bread.

10) Goldfish (the living kind not the crackers) I had a goldfish named Frank that I loved dearly, umm, it died and it was all my fault. I overfed it. I still feel guilty and this was many years ago. I’m so sorry, Frank. R.I.P.

11) The sun and the color Yellow (see my weekly posts on Yellow Magic Madness)

12)  A body of water (any kind) ocean, lake, stream, pond…This is where I feel happiest, close to water.

13) Nature. As I get older I want to spend more and more time outside surrounded by mother nature. It was not that important to me when I was younger. Age gives you experience, wrinkles too but it also gives you wisdom. I like to be outside, weather permitting, as much as possible. Even with Fibromyalgia, I try to force myself outside when I can.

14)  Vacation:  For the last few years I haven’t had anything to look forward to in a major way. Sure, I look forward to see my friends or to go out to dinner but having something special to look forward to months from now is incredibly joyful. We are planning a trip with my mom in the Spring and I am looking
forward to that, more than I can explain. I definitely need something once a year, it will be my New Rule for myself. It doesn’t have to be anything big but it does have to be SOMETHING.

15) Jelly Doughnuts: We have them on New Year’s Eve, a European Tradition but I had one the other day while my husband had a Boston Creme Pie doughnut just for the fun of it. Delicious. Thank you, Dunkin Donuts.

16) Singing out loud (and off-key) to music streaming from my computer (classic 70’s pop rock, Bruce,

17) Listening to my husband whistle, happily. My father used to whistle happy tunes all the time, when my husband whistles it also reminds me of my dad, and that’s a good memory.

18) Pizza (There is no such thing as bad pizza, when it is leftover pizza and is too dry or it loses its taste, add strawberry jam.) I’m serious.

19) Books (Real books that I hold in my hand, no techno devices) Call me old-fashioned.

20) Flashlights.

English: Evening sunshine, Rutland Water. Just...

English: Evening sunshine, Rutland Water. Just to the SW of Lodge Farm, this part of the shoreline looks most inviting. It’s just a pity that the beach is mud and there is blue-green algae in the water! (Photo credit: Wikipedia)

Haiku Heights: Ocean

Sea and Moss Green

Sea and Moss Green (Photo credit: Masahiko Futami)

Dizzy, magic swirl

labyrinth, green moss, blue sky

Sun, heat, lipstick red.

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Innocent devil

mesmerizing calm, rage, one.

water, sun, spirit.

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Mom and Baby

Mom and Baby (Photo credit: BenjaminThompson)

Pink flip-flops, sunscreen

blue popsicle, grainy sand

cuddle, mom and me.

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