Dear Stupid Pesky Migraine,

BACK OFF. No, Really, Back the flippin bleep off. Got it? Good. I’m pretending that you are just a regular, tiny headache and I’m still in full control of my life. Sure, I’ve dimmed the lights, for a cozy, romantic look but that proves nothing.  I just have a minor headache and even though I am squinting, it’s because I took off my glasses so I could see better. You understand, I’m sure.

I’m new to this world of migraines so I don’t have a whole lot of experience, do I take that preventive medicine now or am I wasting it? I don’t know. I really don’t, I guess I’ll wait, in an hour it will be better or much worse.

I know I am tired, I have been tired all day because I didn’t get enough sleep and I wish I could tell you that I had a great time last night drinking and dancing at some fab party but frankly I haven’t been to a party since my sister’s surprise party which really wasn’t that much of a surprise.There was no drinking or dancing there (at least for me) just Jane’s quinoa salad which I hate to admit, I really liked, because she had raisins and craisins and dried apricots in it. Fruity quinoa, who knew?

Why have I recently developed migraines at the advanced age of 57 years of age? I have no flippin’ idea. I got through the first one at the ER after hours of agonizing pain

and finally they gave me a shot of something wonderful so I could get some sleep and the pain eased away so very slowly. I discharged myself after the first round of medication because I wanted to be home in my own bed. My counterpart in the next bed, with the same exact diagnosis, chose to stay in the hospital and get another dose of pain relief.

Can’t say that I blame her, looking back, If I had known then what I knew now, I’d still be in that bed smiling in my safe slumber. I wish they had given me a strong medication to take with me but they don’t trust us normal pain people with “abusive substances” as if one Percocet would put us over the edge. Anyway, all I wanted was to get out of the hospital, infestation hotel of germs and creepy-crawley things.

So, do you really think I needed ANOTHER INVISIBLE ILLNESS to add to my plethora of symptoms because frankly, I thought I had enough. I KNOW I had enough. Is this some cruel joke or do you think this is wildly hysterically funny?

I’m not laughing, I’m disgusted, fed up and sick of all these unrelated illnesses that I keep dreaming about a miracle cure or at least ONE interested doctor that will take it upon him/herself to try to figure it out. Got no volunteers except the mother of a son (who used to be friends with my son) in elementary school. That’s the closest I have and I truly appreciate her interest. Nobody cares, anymore. That’s what it feels like, that’s what it is.

All those one in a million doctors that take the extra time to try to solve the puzzle, I haven’t found one yet and yes, I’ve been looking. Any volunteers?  I will beg if you want me to but nobody is sending me emails or sending me SOS messages that spell out ” I WOULD LOVE TO HELP YOU ANSWER THIS MYSTERY, LEAN ON ME.”

In the end we each have our own shit we have to go through. I sure have mine. Apparently, It will stay mine forever. All mine. Because, in the end, nobody cares, let me introduce you to Medicine 101.”IT’S JUST NOT THEIR JOB, DEAL WITH IT, IT’S ALL UP TO YOU. LOOK WHO IS LAUGHING NOW, IT SURE ISN’T ME!”

Same Old Pain, Now With Migraines

I’m used to the pain I have from Fibromyalgia, it’s not bad most days, no pain killers needed. Sure, there are a few days, mostly weather-related, that it gets worse but I can  stand that too, most of the time. It was under control until one day when I started having a headache that would not go away.

 

 

 

 

I’ve had plenty of headaches before mostly in the middle of my head and that’s how this one started so I thought nothing of it. I took Tylenol, the only medicine I am allowed  (Chronic Kidney Disease) to take, but it did not help. It was a mild headache for two days, I thought nothing of it.

Suddenly, the pain started crawling up on the left side of my face. It settled there like a jumbo jet that had just landed at the airport and was pulling straight into the proper gate. Passengers came off the plane then airline crew, the plane was cleaned and this baby was not going anywhere tonight. The headache had landed.

 

It’s hard to imagine I have another pain symptom but I accept it as my curse, this ugly life of mine. At almost 58 years old I now get migraines. “Welcome to the club” I mutter angrily under my breath, asking: “Why me?”

 

The first migraine, which ended me in the Emergency Room of the hospital moaning in pain and begging for a shot of something, anything, to relieve the intense, hammering pain happened a couple of months ago. “Nice to meet you, meet your new doctor, your Nurologist”.

I thought it was a one time thing, A visit to the Emergency Room, a shot and hydration and two days later I was fine. I went home where the lights were dim, I was safe in bed and all I wanted was darkness and no company, no radio, no television, just black solitude. I laid on my back and pulled the covers over my forehead, yes, this was my safe place, I promised myself the pain was over, gone for good.

Unfortunately, it came back with a vengeance twice more. Once a month ago and one two weeks ago.  I tried all the tricks, the medicine to supposedly make it go away before it really hits, a dark room, breathing slowly, ice, pressure points, Reiki, meditation….you name it, I tried it but it is clinging on to my head with traction and beating harder and harder.

It is now moving to the center of my forehead and the hammer is following after the movement, banging away, beat after beat rhythmically while all I can do is shut down and shudder.

Deutsch: "Kopfschmerzen". Die wohl b...

Deutsch: “Kopfschmerzen”. Die wohl berühmteste – stark von James Gillray beeinflußte – Arbeit in einer Reihe von sechs Blättern “medizinischer” Karikaturen, in denen Cruikshank Krankheiten als Teufelswerk brandmarkt. Erstmalig publiziert: 12. Februar 1819. Originalgröße: 210 x 255 mm (Photo credit: Wikipedia)

I know this isn’t fair, I know that life isn’t fair. I have accepted this new symptom because i don’t have a choice. It has joined the family of maladies that already exist, trapped in every limb of my body, from head to toe.

 

Since I was five I’ve always had a very low tolerance for pain, my parents used to tell me that. If one orange baby aspirin worked on other children to get their temperatures down, I needed two. I am still that way, believe me, it isn’t fun.

Recently, a friend told me to push my Internist to check more complicated Lyme Disease tests and I will do that. What are the chances? I don’t know but I will try. I don’t want to get even remotely excited.

Been there, done that, way too many times. I have no hope. I feel battered.

Enough already. This is getting old. Fast.

 

 

NATIONAL SUICIDE PREVENTION DAY

I’m horrified. I knew all about Invisible Illness Week and wrote about my chronic pain and Fibromyalgia but just found out today that its National Suicide Prevention Day? Something is so wrong here. Why didn’t I know this day was coming and if I didn’t know, I bet you many people didn’t either. That’s shameful.

I feel embarrassed and I also feel ashamed for the people who put this together for not advertising it better. This is NOT something to take lightly, I think we need a RE-DO here, maybe another one next month? Actually, how about one every month? Now, that, is a great idea. We need more prevention and mental health funding!!!

I’m here now and I’m begging anyone who is contemplating suicide to please stop for a second or two and take a deep breath. Thanks. I’m not asking for your whole life but how about a minute? Just read one more sentence.

Think about the people who love you, truly love you, who you will leave behind. People  who WANT you in their lives in any shape, in any mood. They love YOU, the way you are, unconditionally. I’m a mom, I know about unconditional love.

Depression is no fun, we know. We’ve all been through it but there is more help now and different medications and I’m positive that you know at least one good friend or one sister or brother, husband, wife, lover or cousin that would stay with you and help you. There better be, because they would have to answer to me if they don’t.

Instead of taking your life, write your thoughts down, put them on Facebook, email a friend. Email ME. I will listen. I will hold your hand, at least through the computer, and I’m no genius or therapist or doctor.

I’m a regular, really nothing special person, that loves dogs more than people, adores jelly doughnuts, hates to exercise, am technically clueless (ask the people at the Invisible Illness Week) but somehow muddle through things, through life. My life hasn’t been easy, you need to trust me on this one. I can’t lie, it shows on my face in a second.

So, do me a favor, take a few deep breaths, walk away from wherever you are and call a friend, or a hotline, listed below, TELL SOMEONE YOU NEED THEM. ASAP.

Communicate and reach out. But, please, don’t harm yourself, it won’t solve anything and will destroy those that love you. I don’t know you but I know you are worth it, you are worth another day, and the day after  and many days after until you can wake up one day and think back and say “Wow, that was close but I’m so happy I didn’t go through with it.” Then, you too, can help people step away and to live their lives as they should. You will be their hero. I can see it now. I just know it.

National Suicide Prevention Lifeline

National Suicide Prevention Lifeline (Photo credit: Wikipedia)

 1-800-273-TALK

It’s Really Okay

Nothing could console me the other day. I was heart-broken about life in general and dear family friends whose demise was absolutely shattering. There didn’t seem to be much happiness in our lives (with the exception of our kids) and not one blessed thing could cheer me up.

I initially thought I should try to shake myself out of this mood but the world was an evil place, life was not fair. I thought things were supposed to work out in the end, I had believed that all my life, not anymore. Things don’t work out many times and even though I may root for the underdog, they don’t always win. There was is way too much random sadness, unhappiness and sickness, things, often, don’t work out.

First, I tried to justify things, to try to explain them to myself. That didn’t work, there were no answers.  There was also no need for me to try to cheer myself up. So, I stopped.

I realized it was perfectly okay not to try to make myself feel better. It is really okay to feel bad.  What’s wrong in feeling crummy once in a while? I never got dressed, I wore my long black V neck T-shirt that falls to my knees and didn’t even take a shower. I stayed in bed not that I felt particularly sick or winded, I just felt blah. No one ever said  life was perfect so I decided to have a mental health day and be alone with my crankiness and cuddle with my sweet dog, Lexi.

Lexi didn’t care if I was in bad mood, she still jumped up on the bed right next to me.  She always keeps me company. I can count on her to be there for me, that’s the wonderful thing about dogs. Unconditional love. She doesn’t have to give me pep talks or call me on the phone like a friend would have to do, she knew I needed her and she put her head on my stomach, even our breathing was in sync.

I’ve noticed lately that my friends don’t even call anymore. They text. I find this horrifying. When did my generation start doing this? I make my kids call so I can hear their voices but my friends now text? Insulting.  They can’t be bothered, either? What’s next? I’m sure I won’t like it.

It’s a very hard world out there and I used to be such an optimistic person but I’m not anymore. Life, as we know it now, has changed me. Part of me feels like bursting into tears this very second and the other part won’t let myself. I’m not sure if I could stop if I let myself cry….. I keep trying to hold it in and hope it goes away. I know that won’t last. Life is tough, really tough and the older I get, the more difficult it becomes.

I have no more expectations that things will get better. Why should they? They haven’t been good for a really long time and yet still I try to be grateful for the good things I do have.

It doesn’t change the world but I don’t want to become a bitter, cold person. I know it won’t change my circumstances or any one else’s but it keeps me focused on the good not the evil, most of the time, it’s hard work.

When I was young, my mother used to sing this song:

She never did promise me a rose garden, but I always thought there was one anyway.

We Are Warriors, Not By Choice INVISIBLE ILLNESS WEEK

I’m not going to lie. If I had a choice of having Fibromyalgia, the umbrella tree illness and all its branches and not having it, I would drop it in a hot fire-searing second. But, like any illness, we don’t have a choice. We have it and the more we fight it the less happy we are.

I do think it takes a long time to finally accept this chronic illness, beyond anger and months of crying, not to mention countless clueless doctors and the raised eyebrows of many who think we are all nuts. I don’t know about you but I want to slap that question mark look right off their smug foreheads.

One of my doctor’s, a well-known person, left me sobbing in her exam room, after diagnosing me with a thyroid condition. I was already on synthroid and still in agony when she clicked her expensive heels, saying “there’s nothing I can do for you” and marched out. She hadn’t diagnosed Fibromyalgia, she didn’t have a clue.  This was eight years ago and the image still is clear in my head.

We are warriors, all of us, invisible illness warriors. You probably have heard of us but you may not know who we are and how we suffer. We don’t offer up the information, and if you know we have a chronic illness you ask in a perfunctory manner only. Our answer to all of you when you casually ask ” how are you?” is “fine.” We always say “fine” at least I do. Not many people really want to know the details and if you think about it you will agree. That’s okay, it takes too long to answer, doesn’t it? “Fine” works for both of us.

If you REALLY want to know there are always  follow-up questions or even a cup of coffee or lunch. We tend to be independent, close to other people who have the same ailment, the ones who know what chronic pain feels like. Some of my closest friends are women  who I have never met yet I love and trust implicitly, met on a Chronic Pain/Fibro group on-line. THESE women and I are here for each other even if only by e-mails, messages or by phone. I thank G-d for these women who are more loyal, supportive and loving than some of my so-called “friends.”

Radical illness

Radical illness (Photo credit: Wikipedia)

We know that there are more cloudy days than sunny days. We don’t expect sunshine all the time but even when the sun is weaving through the clouds, in and out, we appreciate the moments. We whisper our thanks in a hushed silence, trying not to let those dark clouds come further down and overwhelm us. It takes effort, I know.

 

 

It’s the in-between season now, we haven’t had that first bite of crispness in the air yet, like the bite of a fall Macoun apple, but, as evening comes rolling in, and darkness shrouds the trees, you feel the rain that is soon to come. You feel it in your bones, they ache due to broken wrists or ankles, the weather forecasting of having Fibromyalgia.

We can’t change our world, we can barely change our body. What can we change? A few things, our diet (no, I won’t give up coffee and ice cream) and our attitudes, different doctors. I could write a book on the doctors and methods I’ve tried. Let’s face it we are stuck, but we are alive to see our children grow up, a dog to love and for the dog to love us back. Having my dog rest her head on my knees or stomach makes me incredibly happy when I have to lie down. She is a rescue dog but really she also rescued me.

 


Dedicated to my dear friend, Judith.

 

 

 

 

 

 

 

One Of Our Own

When the sudden death of Robin Williams became known on Sunday night, slowly at first, you could hear people gasp as they looked at their phones or their televisions or answered a phone call from a friend. Nobody expected this and many, including myself, said out loud “Robin William is DEAD?” As if this was not entirely possible.

For those of us in the baby boomer age range we took it harder than most, Robin Williams was one of our own, he was in our age group, we felt we knew him a tiny bit, having grown up with him and the shows he was on.

Robin Williams and Pam Dawber as Mork and Mindy

Robin Williams and Pam Dawber as Mork and Mindy (Photo credit: Wikipedia)

We started with Mork and Mindy but that never impressed us as much as future roles because then, we thought he was just acting, remembering lines, doing physical comedy to perfection. Only later did we find out that he was improvising the entire time, words bouncing off him like soccer balls on a field.

Many people have died, many actors and actresses, and later, the same day the beloved Lauren Bacall died but yet she was barely mentioned. “She had a good, long life” people said, almost as if her death was not as important as Robin’s. Robin’s death was a choice, some would say, he committed suicide but I don’t think if he was in his right mind that he would have made that same choice. Maybe that’s just wishful thinking on my part.

Robin was ill, mentally ill and apparently he was diagnosed with Parkinson’s disease years ago but had suffered with that diagnosis in silence. He was not yet ready to share this new pain with the world. I don’t know what kind of therapists or medications he was on when he died but I am sure he had access to the best doctor’s anywhere. Yet, even they could not help him.

English: Robin Williams, U.S. actor, at the 20...

English: Robin Williams, U.S. actor, at the 2008 BBC World Debate. (Photo credit: Wikipedia)

My own father had open heart surgery, a quadruple by-pass operation in the city over twenty years ago and no one at that time told us of that depression would be a likely side effect down the road.  He went to one of the best doctors in NYC. While the operation itself “was a success” we had no idea what was happening years after when he sunk into a deep depression. Yes, he did see a professional and he did swallow pills. He wasn’t always depressed, it came and went in spurts but I don’t think he was ever the same.

Deep inside I know he wanted to die but I made him promise me not to ever take his life. He promised. He had physical problems as well and they became more pronounced as he got older and more frail. I knew, through instinct, that he would die in three months time from a variety of reasons. I felt it, I am an “empath intuitive,” I knew from the way my dad showed it to me, the things he said. I confirmed it with a person I trusted.

Let’s try to take care of each other, not only when we seem overtly sad or depressed but also, when we don’t. Look behind the laughter, watch out for each other, be kind always.

 

Fibro Life, Friday


Please, just let me sleep, don't find me...

I am too tired to keep my head up, I tried to make good on advice to get out more. As Fibro patients know, I’m paying the price. Minus two spoons. I owe two spoons from tomorrow, not that it really works that way, right fellow spoonies? We really can’t win either way.

I generally never complain about Fibromyalgia, Savella and Tramadol usually do the trick but then again, I haven’t pushed myself this hard in a long time. I really have to ask myself if it is worth it? When I am racing around town, doing errands, getting my hair cut, drinking a strong cup of coffee, going non-stop I am NOT able to handle it because apparently now, I am a wreck, a demolished car on the side of the road, Not one part left, it’s sitting up an embankment totally crushed.

I have given the same advice to my friends “don’t do too much” but I didn’t listen to myself today because I was on a new mission to “live, to explore, to get out of the house.” Yep, I overdid it.

I might be so tired that I can’t even eat dinner. Nah. Who is kidding whom? I’m sure I will perk up after food, I smell chicken breasts on the grill, the salad is on the table already, I’m chopping tomatoes for bruschetta. But, really, all I want to do is to curl up in a ball and somehow loosen the muscles in the back of my neck and fall asleep. I don’t see that happening nor do I see myself cleaning my room and organizing it.

Let me stay here, in the midst of my bed, covered with clothes and freshly washed laundry, next to my calendar and my phone and a pink and blue pen. I will push things aside in a corner, I won’t complain, not a sound will come out of my exhausted mouth except the sweet snoring sounds of an overtired, head-throbbing, weak patient.
Don’t tell anyone I am here, I am so broken I don’t want to be found. I just want to sleep. Shhh, please just let me.
* Two images should have appeared, if no images appeared, I will let zemanta support know again, feel free to join me. Thanks in advance. If they both appear, I will be delighted!

Dear Body,

I know you have been trying to listen to me and I appreciate the effort but now, finally I think you have seen the light, pardon the pun. You have known what to do all along but with your being stubborn (and not letting your sister be right) you have negated every suggestion from everyone else. That’s not bad, you need to listen to yourself.

At the same time, I am proud of you, so very proud that you have decided NOW to,( on your own ), to do something entirely different. You went into a bad slump for a day and a half the “I can’t do this anymore” cry

but you realized you really don’t have to give up. What a mood elevator that was!

Suddenly and slowly like each ray of a sunshine blooming like a petal you decided to do completely different. Instead of adding another med, you were going to stop them all. Yup, each and every one except for Synthroid which is medically warranted for your health. The others, well, you’re not stupid, you won’t go cold turkey, but you can talk (if you want) with each medical doctor and believe me there are way too many and discuss getting off the meds with ease. You are not asking IF you can do it but HOW. Hear that Doc? I am not asking your permission, this is my body and I’m taking it back.

You’ve had it in your germ-filled hands for exactly seven minutes each time. SEVEN MINUTES !!! I have (barely) seen you. My body, outside and inside deserves more than seven minutes. I need love, I need  respect and I deserve it. I know my body much better than you do. My instincts have never steered me wrong. Never. Can you say the same, that you have never given me the wrong diagnosis or the incorrect prescription. I thought not.

The other thing I will do and believe this is harder for me than the above is try to eat healthier foods and that means less processed foods. I can’t promise to throw my Kraft American Cheese Slices, individually wrapped, away, just yet, but I will only eat them when all other comfort foods are exhausted. I do make a mean chicken soup, all natural.

Chicken soup is a common classic comfort food ...

But, again, I’m not going to make myself feel bad if I go slowly in my process. And, I refuse to make quinoa on principle, kale too just because they are “popular.” I’ll wait six months to see what the new food trend is.

I’m not saying I wouldn’t order it for lunch at a cute local farm- to- land sweet restaurant my friend Sarah and I go to but I’m going to take just one step at a time.

There you have it, my intentions, to be healthier, naturally and stop throwing back these ridiculous pills the doctors have given me because that’s what they do. Maybe I’ll send this to Michael Finkelstein at the Sunraven Center and we will go full circle. Meditation instead of medication. (Love that !) At least when Danny finds a job or if he has a sliding scale. It’s worth a shot. ANYTHING is worth a shot. Be Grateful, Be Kind even more than you have been. Heal Yourself. The time is now.

Love,

Soul

ps: Dedicated to my new friend, Ken

Thursday, In The Emergency Room…

I’m fine now. Okay, maybe not one hundred percent fine but so much better than I was on Thursday. I just FEEL like I’m alright in comparison with…you get the idea.

The left side of my head was wracked with searing pain, I could only describe it (and again this makes NO sense)  as oozing green jello on crack cocaine wearing a choker collar, fastened way too tight. The black collar was sharp, with metal triangular studs bursting through it about to swallow my skin. I have never had a headache, a one-sided headache, that bad, deep and unrelenting before in my life. And yes, in my imagination, there was blood, messy, crimson, creepy blood dripping from all my veins into my wide open mouth.

It was the headache that went on and off for weeks but got progressively worse.  Anyone living with Fibromyalgia is no wimp, let me start by telling you that. I’ve known all kinds of chronic pain but this was new. “Join the club” did not seem like an appropriate greeting. This stabbing, shooting misery aimed directly at the left temple and whole left side of my face were like launched missiles hitting their target every single time.

I've had a migraine/headache for 6 days straig...

I was also nauseous and my left arm tingled. I was my in my war zone. Finally, after a few hours of this non-stop torture, I agreed, I even urged, to go to the Emergency Room where luckily there were no lines of people waiting ahead of me. I was so grateful that there was only one family before me that I could have started sobbing at the registration desk.

I was already dizzy, so that when the security guard on duty started asking me questions,  I just had to pry my aching head, from my folded arms on the counter, and squint to answer what my name was, my address etc. that was all I could handle.

“Have a seat” never sounded so good to me before. My husband rushed in after parking the car and with his arm around me, my head nestled into his neck, I tried desperately to hold on to my sanity with all the pain.

When they finally called my name they led me to a room which happened to house another patient with the same symptoms, it was so odd. The nurse, the lovely and sweet nurse, was amazed at both patients’ similarities and if we could have laughed, we would have but at that time we still hadn’t received  pain relief and we had no sense of humor.

Grey's Anatomy (season 1)

Grey’s Anatomy (season 1) (Photo credit: Wikipedia)

After what seemed like hours, the ER doctor breezed in and while questioning a few things on my chart (not confidence inspiring At ALL)” What’s a stapedectomy mean? What does the drug Savella do?” 1) ear operation 2) a drug for Fibromyalgia.

Finally, FINALLY they gave me shot of some heavenly drug with a dose of benadryl and a huge bag of saline solution. They took me for a CAT scan and insulted my brain and my age which were not the same (never mind)  as they should be and left me to doze.

The medicine wore off quickly and while all I wanted was to get out of the hospital, away from potential staph infections (I watch way too much Grey’s Anatomy) my neighbor chose another shot (not that I blamed her) and slept it off. At one point I actually wore small blue hospital gloves that embarrassed my husband, shocked the ER doctor and amused me immensely.  I left to just get out of the hospital germ zone and they gave me a Percocet to swallow on the way out. All of this is true.

We left at 1:30 am and I stumbled to bed. The next day I had three, yes, three doctor appointments: First with the Rheumatologist that my husband was hell-bent on me keeping (I regretted that. 2) My Internist (follow up from the ER and 3) New (bad-ass) Neurologist because I had no choice and I lucked out with a great doctor!!

She was an impressive, straight forward, to the point and very, very nice and I begged to be her patient to which she smiled and said she didn’t care who I made my post office appointment with and half winked….We love her. (A big thank you to my friend Phyllis.)

So, now I wait, until eleven pm, a more decent time to go to bed than 8pm. I’ve been waiting for this time, this pain pill, and my pillows all day and night. I think of it this way, nothing could be worse than the headache of yore. It won’t happen again, I hope.

*All typos and grammatical errors are due to prescription drugs that I am NOT abusing.

Eppiglottitis: Do I Dare Ask How We Fared?

Fellow eppiglottitis sufferers, you KNOW what I am talking about, don’t you?   How WAS your Winter? I know it’s still July but I am already on high alert just anticipating the cooler temperatures approaching.

This murderess, inexplicable disease comes quickly from one day to another landing at any time, in one very specific place, beyond the throat, with no warning whatsoever.  All the patients are sure of is at least ten to fourteen days of hell and the most excruciating pain we have ever felt. Am I wrong?

Acute catarrhal pharyngitis. The oropharynx is...I just crossed my fingers so I will not jinx anybody, including MYSELF. Many people have written and asked me about this disease and while I have always followed up on each e-mail, now I want to ask how everyone did this Winter? I narrowly escaped it this year but I’m sure it’s on my To Do: List for this Fall. It’s hard to believe that you would be lucky twice in a row.

Does anyone care to share?  All “jinxes” are off and if they are on, I will be the one to get it because I initiated this damn blog. We share the same, horrifying experience, we feel the same excruciating pain and for all the pills to swallow and liquid to gargle it takes a long time to even feel the beginning of recovery.

pillsAs I mentioned in my earlier blog, “Calling Eppiglottitis A Bitch Is A Vast Understatement” the first time it happened, my ENT scoped me and said out loud “How the hell did you get THAT?” My answer, in my head, was “isn’t that your job, Bozo?” Which of course I didn’t say (basically because it was too painful to talk.)

Worst. Pain. Ever. Childbirth is like a little cramp compared to this misery of hell. There are no pain pills that can keep up. Literally, none. Be thankful if you can still breathe and get yourself to the Emergency Room ASAP.

It starts as a simple, little sore throat and then our alarm bells are on alert…we are always aware that this could be an invitation to the deadly Eppiglottitis instead of just a regular old-fashioned cold. If a sore throat lasts more than a few days/ gets progressively worse, I haul my behind to the ENT where he will insert a tube (sorry) through my nose to look at the usually ulcerated gap beyond where the throat lies.

Swallowing is torture. Pure torture. I did read of a trick that, while it may sound disgusting, has a definite advantage: don’t swallow. How, you ask? Lie on your stomach and have a spit bowl. Next time I have it I am definitely trying that. What could be worse than that razor blade swallow. Nothing.

Also, get your behind to an infectious disease specialist, I have never been but I plan to go the next time this horrible disease stops by to visit.

Person washing his hands

I hope you have a wonderful  rest of the summer and do keep in touch with me in the Fall and of course in the dreaded Winter. Keep washing your hands as much as you can (it will make YOU feel better) but no matter what you will get through it if it should creep up on you again. Trust me, I know.