The Songs I Sing

Music ~ Be There For You (Photo credit: Daniel CJ Lee)

I have written songs in my dreams for many years. I don’t write songs every night, but once in a while I write the lyrics in my sleep, beautiful words are strung together that blend into a harmonious chorus. Upon wakening, I forget everything. It’s time to take out the notepad and put it right next to me for these times, to try to force myself to remember my dreams and to remember the words to a song that needs to be sung.

Consciously, I don’t know what the songs are about although anything that has to do with me must have love in it and probably conflict too. They generally go together, don’t they? Love spreading it’s wings, love in nature too: the ocean’s symbol for how unpredictable life can be, the sun, darkness, tragedies, the magic of birth, love, that unite us all.  It only takes one lit candle to give light to another. When I was young I thought the world was a friendly place, united and peaceful but I have given up hope. I’m not innocent anymore; I’ve seen too many senseless tragedies to believe that the world is good, too many jaded memories, too many senseless killings.

Physically, my body aches, I can tell when I have a fever when my legs hurt and my skin is sensitive. The throbbing in my head has been constant, aspirin and allergy pills have done nothing. My dog is having a barking competition with the dog next door and that is making my head ache even more. Music, which always soothes me, doesn’t help, even on the lowest volume so I turn it off and lay flat on the bed. My blankets cover me, I try to close my eyes but my arms shake and there is something uncomfortable about me, an illness I cannot define.  Is it Fibromyalgia? Is it a virus? Is it a reaction to the flu shot? Is it my auto immune disease, Hashimoto’s Thyroiditis? Whatever it is when will it go away?

It turns out it takes the better part of the week but it is leaving my body now and for that I am grateful.  I realize, however, that I am saddled with two difficult diseases that make anything hard to live with and to diagnose. Sorry, I don’t mean to be disrespectful but that part alone sucks. I try not to dwell on the chronic illnesses they just pop up in situations like these, I know I have to live with them, co-exist, not in peace but in acceptance.

I look around my bedroom and I feel uneasy, it is the one room I would like to organize and fall in love with again but I certainly don’t have the energy to do it now. I need to love my bedroom, but I can’t, there is too much clutter. Clutter everywhere, this room used to be my sanctuary, a place I would go to be at peace. Now, it represents too much garbage and disorganization, books, perfume, two kinds of deodorant, an old coffee mug, a bottle of water, a flashlight, a phone, old photographs and that is just in one space. I know this is not good for me, I realize it.

I need to clean, to put things in their proper places, to organize my space, my world, inside and out. Whether or not I capture the words of my songs on paper, I need to sort things out in all aspects of my life.  I know that once the physical space is clear, I will make the choice, that the music will be a wonderfully complicated, song with a lot of tenderness, love, warmth, grief and of course, a touch of the blues. It’s real life, after all.

photo credit to above named photographer

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Did I Say There Was HOPE For Fibromyalgia? WRONG.

Flower alone (Photo credit: @Doug88888)

9/13/13

Earth to me. Earth to me. Calling all hallucinogenic hopefuls down to reality please. Yes, I know, I was one of them. Me, optimistic, me. Funny, quirky, stupid, friggin  me. What the hell did I know? DId you believe me? I believed me. I really did until I woke up in reality which was just recently. I used to think of the world as a good place but that stopped a long, long time ago, probably with September 11th. That shook me up and the world still keeps shaking me up and not with good things. I know, I’m a late bloomer and gullible as all heck. There will always be two different “Me’s.” Before and after.

I’m jaded, Jaded and faded and disillusioned. Know what my mother’s advice was to me? “Lower your expectations, “I did. No rah-rah speech from her which is not exactly her style to begin with. My dad used to be Mr. Educational Talk when he was alive, think positive, be optimistic, you can do it if you THINK you can do it. He gave “pep” talks to anyone who would listen and yes he believed it and I tried to believe it too, tried to change. But, at the end of his life he was terribly sick and depressed and didn’t want to get out of bed or listen to his favorite Viennese waltzes that had delighted him all of his life. He was a shadow of himself, a shell of a man, it went so quickly and so slowly at the same time. It’s hard to remember when he was last really happy, I have a photo of his birthday, I treasure that photograph. The birthday candles were lit, he was beaming with joy, but it was many years before his death.

I’ve gone to the dark side. Plain and simple. Life is about love and love is about abandonment. Gone. Hello, I am here. I love you. I now will leave you. Good-bye. You are born alone and you die alone. You should pretty much plan to be alone a lot in your lifetime because no one loves you like your mother or father does, or your spouse/partner. You love your kids more than anything, they are your heart and soul, the true essence of your being but it is not reciprocal. It can’t be. Their children will be the lights of their eyes, you need to stand back and make room for the next generation. You may still be in the picture but not upfront, from now on you are in the background and that is where you will stay, forever.

Remember that post I wrote on feeling blessedly numb and peaceful? Yes, that’s gone, it left as fast as it came. Had to do with children and my dead father and abandonment issues.  Just saying the word in my head brings tears to my eyes. Good old abandonment, am I the only nut job that has this umbrella issue? I would bet not. Life is scary sometimes, it’s the truth.

Many limitations from chronic illnesses: Fibromyalgia, Hashimoto Thyroiditis, I can not walk a straight line, my balance is worse than ever, my stamina is non-existent. I need to go into the city for an appointment to see my rheumatologist and I don’t have the strength to get there. Taking the train and a cab seems impossible, hiring a car service is ridiculously expensive and I can’t afford that. So, I keep postponing it which is the worst thing I can do.

I have to suck up my pride and ask my best friend for help, she’s already offered but I am not good at asking for things. I rather help than ask for help. So, today I have to promise myself that I will ask her for a ride to the city, pay for everything and appreciate that I have a friend I can ask albeit begrudgingly. I know I won’t get better, if anything I’m getting worse.

photo credit:@doug88888

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