Same Old Pain, Now With Migraines

I’m used to the pain I have from Fibromyalgia, it’s not bad most days, no pain killers needed. Sure, there are a few days, mostly weather-related, that it gets worse but I can  stand that too, most of the time. It was under control until one day when I started having a headache that would not go away.

 

 

 

 

I’ve had plenty of headaches before mostly in the middle of my head and that’s how this one started so I thought nothing of it. I took Tylenol, the only medicine I am allowed  (Chronic Kidney Disease) to take, but it did not help. It was a mild headache for two days, I thought nothing of it.

Suddenly, the pain started crawling up on the left side of my face. It settled there like a jumbo jet that had just landed at the airport and was pulling straight into the proper gate. Passengers came off the plane then airline crew, the plane was cleaned and this baby was not going anywhere tonight. The headache had landed.

 

It’s hard to imagine I have another pain symptom but I accept it as my curse, this ugly life of mine. At almost 58 years old I now get migraines. “Welcome to the club” I mutter angrily under my breath, asking: “Why me?”

 

The first migraine, which ended me in the Emergency Room of the hospital moaning in pain and begging for a shot of something, anything, to relieve the intense, hammering pain happened a couple of months ago. “Nice to meet you, meet your new doctor, your Nurologist”.

I thought it was a one time thing, A visit to the Emergency Room, a shot and hydration and two days later I was fine. I went home where the lights were dim, I was safe in bed and all I wanted was darkness and no company, no radio, no television, just black solitude. I laid on my back and pulled the covers over my forehead, yes, this was my safe place, I promised myself the pain was over, gone for good.

Unfortunately, it came back with a vengeance twice more. Once a month ago and one two weeks ago.  I tried all the tricks, the medicine to supposedly make it go away before it really hits, a dark room, breathing slowly, ice, pressure points, Reiki, meditation….you name it, I tried it but it is clinging on to my head with traction and beating harder and harder.

It is now moving to the center of my forehead and the hammer is following after the movement, banging away, beat after beat rhythmically while all I can do is shut down and shudder.

Deutsch: "Kopfschmerzen". Die wohl b...

Deutsch: “Kopfschmerzen”. Die wohl berühmteste – stark von James Gillray beeinflußte – Arbeit in einer Reihe von sechs Blättern “medizinischer” Karikaturen, in denen Cruikshank Krankheiten als Teufelswerk brandmarkt. Erstmalig publiziert: 12. Februar 1819. Originalgröße: 210 x 255 mm (Photo credit: Wikipedia)

I know this isn’t fair, I know that life isn’t fair. I have accepted this new symptom because i don’t have a choice. It has joined the family of maladies that already exist, trapped in every limb of my body, from head to toe.

 

Since I was five I’ve always had a very low tolerance for pain, my parents used to tell me that. If one orange baby aspirin worked on other children to get their temperatures down, I needed two. I am still that way, believe me, it isn’t fun.

Recently, a friend told me to push my Internist to check more complicated Lyme Disease tests and I will do that. What are the chances? I don’t know but I will try. I don’t want to get even remotely excited.

Been there, done that, way too many times. I have no hope. I feel battered.

Enough already. This is getting old. Fast.

 

 

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In Between Love and Loss

Love Hands

Love Hands (Photo credit: Luvinshots)

Love is not easy, but it is essential. Why do we all go on with our lives? Day after day shuffling our feet, not smiling sometimes for weeks or months, nothing to look forward to, nothing special on the horizon? With so much misery, disease, tragedy, war, incurable illnesses why do we accept it?  It comes down to one thing and one thing only: Love. You don’t need a crowd of people to love you, it can be one person or one quirky brown dog, or a petulant cat, maybe a goldfish named Frank, or wildflowers in a garden. We live for love. That is the ultimate dream and if you love one friend and the person loves you back you are incredibly lucky. Everything counts.

Love keeps us going when we want to give up, there’s a thread of love that inspired this blog from my friends. There is love between a group of friends and we have never met, there is a closeness, whose hearts and souls connected on a higher level. We may have originally gotten to know each other by our chronic illnesses, auto-immune diseases or fibromyalgia but that is the last thing we talk about now. If we lived closer to one another, they would be my safe place, my soul sisters.  We offer peace, love and kindness to each other, there is no judgment, just support.

I’m not unrealistic I know love isn’t always about happiness, when you love someone so much and they die or move away or just because they grow up and relationships change. Nobody tells you that when you are pregnant, that love also hurts, that love is also loss. Even if they told you, you wouldn’t believe them anyway. When you love your children so much and they walk away as strong, independent adults you are very proud but sometimes, if you are honest, it really hurts. Is it rational? No. It’s purely emotional.

I respect and admire both my children. But, part of love brings with it a searing unavoidable pain and there is nothing you can do about it. Without pain, we wouldn’t know how wonderful love really is.  The thread of love, twists and changes, every single day and night. You can’t control it, you can only change yourself and how you deal with the changes, like the waves of a turbulent ocean, strong, beautiful, unpredictable. Unconditional love is for children, it never ends, and I’m sure our children will not understand until they have grown up children of their own.

One day you are holding their hands to cross the street, trading toy cars or having a tea party, watching a shiny red fire truck, or playing dress-up and the next day, or so it seems, they are adults. They are adults you are proud of and cherish but they have their own lives now, and you are not the biggest part of it.  “Home” is someplace different now and just because they have a week off doesn’t mean they want to see you. First it’s a shock, then it’s a change but you get used to everything. This was never about guilt. I don’t want you to change for “the next time.”  I wanted you to let it go. Growing up sometimes means you can’t always have the last word and sometimes it means letting things go, if not for you, than for me.

“End of conversation. No new conversation.”

I love you, unconditionally with all my heart

Matchbox Toy Cars

Matchbox Toy Cars (Photo credit: sarflondondunc)

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