*A Blob In A Bed

As lightning strikes and cackles, silver pain against a mournful deep black sky, rockets flare rapidly from my brain to my chin.  Immediately, I recognize and rationalize the signs; I sigh wearily breathe slowly and finally admit that TMJ has come back to stay for the next few days or  a week. At least I love my two options for dinner, peanut butter and jelly or an American cheese sandwich and tomato soup:

 

 

I had a tiny, mild spasm when we had dinner but I was eating the mushiest of foods. A veggie burger that I had to scoop up with a spoon and I didn’t eat the top half of the bun. After that, a small portion of ice cream that I put in the microwave, I was sure I had paid the price for the pain already. Yeah, right. As if fairness counts in this world. I shake my head from side to side.

 

I didn’t “say AHHH” as if I was giving in to a strep test, my mouth was as wide as it could go comfortably (yes, dentists/doctors from all over say I have a child size mouth and face and hands and ring size.) I do remember the tip-toe beginning signs of TMJ and paid heed to them, with further occurrences, I forgot about it and went to sleep and slept well. When I woke up (or did it wake me up?) the first flash of agonizing pain ripped through my brain to my ear and down past my teeth into my wobbly neck.

There is no rhyme or reason for when this happens so I just resign myself to it happening every once in a while and search (I know, I know) for the mouth guard that I should have worn all along. My bad.

 

 

I can’t feel too sorry for myself because I’m the one to blame. I remember yesterday, even before the first pang, opening up the case and finding it empty. I did find it later on, of course, I’ll need to search for it again ( Fibromyalgia Fog) since I forgot where it I found it. I don’t lose things, I just misplace them ( repeatedly.) I look outside at the cold, crystallized window and I find a little comfort in the fact that I can nurse myself back to health today without (a lot of ) help from anyone. (PS I found it and have been wearing it.)

 

I slip back into bed with my five layers of blankets and heating pad, it is the second day and I am still in so much pain that I can’t even go down a flight of stairs to make my cherished mug of coffee. I hate asking for help but this morning I knock on my daughter’s door and ask her to help me. In a second, she goes downstairs to make me coffee and warms my heart. I am so grateful for her.

English: steaming hot mug of coffee

The coffee barely cheers me up which is unusual. I try to gulp it down quickly but the pain interrupts me. I’m doomed. I’m not allowed to use most pain medication because of my kidneys so I reach for one Tylenol, two.  I automatically click the heating pad that lives beside me on the beige carpet. Please help me soon….

 

I don’t know how other people can get motivated to get dressed and race out of the door when it is below freezing outside. I truly wonder. I don’t believe I was like this when I was young, but then again, I didn’t have Fibromyalgia or Hashimoto’s Thyroiditis.  Maybe I did have it all along but never knew?

 

My mother calls and she hears “the slight off pitch” of my voice.I can never fool her, my mother and my son are the only ones I can’t fool. She zeros in for the kill. “What’s the matter?” she inquires directly bypassing all courtesy. I answer truthfully yet less urgently “I just have a little TMJ thing going on, that’s all.” She sighs, she feels helpless, I totally understand. My 22-year-old son had the flu last week and I certainly felt the same way, “what can I do, do you want something to eat, tomato soup with mashed up crackers? no? NO?!)

Mothers love to mother and when we can’t or when our kids grow up, at first we don’t know what to do. Mothering is our job, one we always will love. Without it, we just feel a little lost. Many people, including myself, ask themselves the question “Who am I now” when our youngest child is in college.

I know the feeling. After my daughter’s two wisdom teeth were extracted during a summer holiday and the medication wore off, she got up and gently woke me up at 3 AM. She scowled and said through muddled cotton mouth “it hurts.” For me, as bad as I felt for her, I felt happy I could help her, I could mother her and make her feel better. I didn’t want her to have pain, I wanted to make any type of pain go away.

My daughter and son have left to go out, my husband will be home shortly. I will go down and make my own soft American cheese sandwich and drink some Yoo Hoo, I don’t want to bother my husband who has worked all day. I understand pain, I’ve lived with so many different forms (too numerous to list), I don’t need people near me, I have all of you.

Thanks, Facebook Friends for always being there for me.

*DON’T WORRY ABOUT ME, PLEASE.
 

 

 

 

 

 

 

 

 

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Dear Stupid Pesky Migraine,

BACK OFF. No, Really, Back the flippin bleep off. Got it? Good. I’m pretending that you are just a regular, tiny headache and I’m still in full control of my life. Sure, I’ve dimmed the lights, for a cozy, romantic look but that proves nothing.  I just have a minor headache and even though I am squinting, it’s because I took off my glasses so I could see better. You understand, I’m sure.

I’m new to this world of migraines so I don’t have a whole lot of experience, do I take that preventive medicine now or am I wasting it? I don’t know. I really don’t, I guess I’ll wait, in an hour it will be better or much worse.

I know I am tired, I have been tired all day because I didn’t get enough sleep and I wish I could tell you that I had a great time last night drinking and dancing at some fab party but frankly I haven’t been to a party since my sister’s surprise party which really wasn’t that much of a surprise.There was no drinking or dancing there (at least for me) just Jane’s quinoa salad which I hate to admit, I really liked, because she had raisins and craisins and dried apricots in it. Fruity quinoa, who knew?

Why have I recently developed migraines at the advanced age of 57 years of age? I have no flippin’ idea. I got through the first one at the ER after hours of agonizing pain

and finally they gave me a shot of something wonderful so I could get some sleep and the pain eased away so very slowly. I discharged myself after the first round of medication because I wanted to be home in my own bed. My counterpart in the next bed, with the same exact diagnosis, chose to stay in the hospital and get another dose of pain relief.

Can’t say that I blame her, looking back, If I had known then what I knew now, I’d still be in that bed smiling in my safe slumber. I wish they had given me a strong medication to take with me but they don’t trust us normal pain people with “abusive substances” as if one Percocet would put us over the edge. Anyway, all I wanted was to get out of the hospital, infestation hotel of germs and creepy-crawley things.

So, do you really think I needed ANOTHER INVISIBLE ILLNESS to add to my plethora of symptoms because frankly, I thought I had enough. I KNOW I had enough. Is this some cruel joke or do you think this is wildly hysterically funny?

I’m not laughing, I’m disgusted, fed up and sick of all these unrelated illnesses that I keep dreaming about a miracle cure or at least ONE interested doctor that will take it upon him/herself to try to figure it out. Got no volunteers except the mother of a son (who used to be friends with my son) in elementary school. That’s the closest I have and I truly appreciate her interest. Nobody cares, anymore. That’s what it feels like, that’s what it is.

All those one in a million doctors that take the extra time to try to solve the puzzle, I haven’t found one yet and yes, I’ve been looking. Any volunteers?  I will beg if you want me to but nobody is sending me emails or sending me SOS messages that spell out ” I WOULD LOVE TO HELP YOU ANSWER THIS MYSTERY, LEAN ON ME.”

In the end we each have our own shit we have to go through. I sure have mine. Apparently, It will stay mine forever. All mine. Because, in the end, nobody cares, let me introduce you to Medicine 101.”IT’S JUST NOT THEIR JOB, DEAL WITH IT, IT’S ALL UP TO YOU. LOOK WHO IS LAUGHING NOW, IT SURE ISN’T ME!”

It’s Not Just Peanut Butter And Jelly Anymore (Food Cop)

I’m hungry, borderline starving. I know that’s a fairly regular experience for me but tonight I am ravenous AND I have to be careful ABOUT the texture of what I eat.

     

    a peanut butter and jelly sandwich, top slice ...I’m having a flare-up of everything that could possibly hurt, especially now with my jaw, teeth, head and neck.

    Having a vicious battle with TMJ  AND a cavity that needs to be filled, I thought I would be cautious and eat soft food. Since I was not feeling well, all day, light-headed, dizzy (reason still to be determined with the dreaded TILT test) my husband was kind enough to bring me a peanut butter and jelly (extra orange marmalade on the side to be mixed in) sandwich. For a side dish there was a tiny amount of mashed potatoes, leftovers from last night yummy restaurant. Oh yes, there was sour cream and butter in those “mashlers” as my dad used to say and as part of my family still says.

    The amount of peanut butter and jelly is crucial to any perfect sandwich, bearing in mind everybody’s personal preference. For me, more jelly and less peanut butter is the way to go. My husband and our friend John in the neighborhood, put staggering amounts of peanut butter on their sandwiches (“There IS NO such thing as too much peanut butter in our house”) John said. My husband, agrees. He slathers on peanut butter and measures it in inches. I disagree. I’m a more jelly than peanut butter kind of girl.

    I was having a bite of mashed potatoes, on the side, following a bite of my sandwich (the color of the jelly and the taste is carefully matched too) when I noticed a wonderful, soothing, comfort spreading taste in my mouth and stomach. After two or three bites of the sandwich and then the mashed potatoes I was sure that a combination sandwich would definitely ease my pain.

    Wait for it, my friend, Maureen, because you KNOW it’s coming….

    Hence, the peanut butter and jelly and mashed potato sandwich was born. Don’t prejudge, it is the ultimate in comfort food. The peanut butter and jelly or jam is cold or at room temperature and the hot mashed potatoes, sans gravy, are warm, buttery and rich.

    It was love at first bite. I finished every creamy morsel and would have eaten more if I had more to eat. I have had in the past peanut butter and jelly with cheddar cheese and once I had a peanut butter and jelly combined with tuna fish sandwich but those are a little too much and way less comforting than my new, favorite combination.

    Mashed Potatoes!!!

    Mashed Potatoes!!! (Photo credit: Manuel Alarcón)

    It’s a win-win situation. How could it not be fabulous? The greatest in comfort food.

    Sure, I make a mean chicken soup, or lentil soup, those are all   eaten mostly in the Winter. But this new combination?  Adding mashed potatoes as an ingredient? A genius idea of comfort in a bite. In every single bite.

     

    Cranky Is As Cranky Does…I’m HUNGRY

    Chicken soup is a common classic comfort food ...

    Chicken soup is a common classic comfort food that might be found across cultures. (Photo credit: Wikipedia)

    HELP WANTED: LOOKING FOR A SCONE ASAP OR EASY RECIPE

    Yes, it’s true. I AM CRANKY and I don’t even need to explain it. I know. That’s enough. I don’t want pity and I can’t change the situations. My physical health, sigh, I have to accept. I’ll live. However, when my life’s joy, (vice,) hobby and life’s work is limited then it gets darned serious. No, I am not on a diet. That would be easy. I wish I was on a diet because there would be a reason and an outcome and a desired result.

    But, with my bad luck, I have to be the one whose jaw blows out whose sound carried through the house leaving me shrieking in unbearable pain and crying that my husband came running. I knew I should have gone to the ER.

    I saw my dentist, an oral surgeon and now I’m supposed to see a TMJ specialist. I’m not surprised, it was just another thing to heap on but for me, this was a personal tragedy. Not being able to EAT?  I don’t like drinking or smoking or anything else, I have no hobbies but one thing I love is food and now that has been taken away from me. I’m yearning for real food that is not mashed, white, banana-like or blended.

    A fresh batch of homemade buttermilk scones.

    A fresh batch of homemade buttermilk scones. (Photo credit: Wikipedia)

    And even if I tried to like drinking I have recently been informed that my kidneys are in bad shape too. Surprise!

    I’m sick of chicken soup, vanilla milkshakes, rice and bananas. I long for warm, crunchy French bread dripping with butter, a large sandwich, basically anything I am now denied. I still want scones, pizza and a great big salad and did I mention scones?

    I can’t bear to call another doctor tonight. I’m in no mood. It’s almost time for dinner, home-made chicken soup with mashed up Saltines in them, I learned that from my kids. Luckily, we have cupcakes from yesterday, they better taste good. I need something before I start to scream.

    The oral surgeon also said that this pain will come back that some internal bleeding happened when the disk in my jaw slipped. He’s a nice guy, a really nice guy, he didn’t even charge for the five-minute consult but I wish he hadn’t said what he did.

    I’m hungry, I want to eat real food, Last night I rebelled and tried (the operative word) to eat teeny, tiny bites of pizza with fork and knife (a la Diblasio ) which really was no fun at all and of course the pizza WAS BURNED.

    Out of pure desperation I ate my husband’s filet of sole drenched in egg and butter:  I don’t even like fish but it was something different.

    BUT, I want scones, surely I could eat those, sweet scones made with love and wild blueberries, I see them dancing beneath my eyes.

    I wish I could bake with ease. With all my illnesses I just may have to acquire a new skill: baking. No more liquid diet. ‘Eat as if you were a three-year old” the charming doctor said. I will listen to him, cutting everything up into tiny pieces, everything for a taste of variety.

    I’m stuck on muffins and stones. Any kind. Soon. Help me. Please?

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    I Need Help: Fibromyalgia-TMJ

    closed TMJ

    It’s a pain like no other, hard to describe, impossible to treat, at least for me. Falling under the Fibromyalgia umbrella, TMJ is like lightning striking your ear and jaw straight through your brain and head. It kept me up all night; no pain-killer helped it, no heating pad, ice, soft foods.

    The pain shoots, there is no warming and no treatment that helps; I didn’t eat any hard foods yesterday. My jaw usually pops and goes back into its socket; I live with that. I was a bit worried about the Presidential election but not enough to be awakened all through the night in utter agony as if I had been shocked by electrical wires, moaning and groaning all night long. I was restless, weary and I hurt so badly; I toss and turn to see if lying a different way will help. Nothing works.

    Even though I have had Fibromyalgia for years, the varied symptoms (maybe because of the cold weather?) are worse now. I wish I could scream out loud and get it all out of my system but I can barely open my mouth. I try not to speak, to hold my lips a certain way; I pretend I am a model who is posing for a sculptor who is doing an impression of me in burnt-red clay. I can’t move my lips or my mouth for him to get the correct shape so I try to relax my mouth, my muscles until I find a single spot that doesn’t make me cry out loud. I try desperately to hold that same place so I don’t scream; I am just asking for tolerable not even for feeling good.

    I have dealt with many of the other symptoms of Fibromyalglia in an accepting way as possible but nothing has been as urgently painful as this. I’ve been to ENT’s (Ear, Nose and Throat Specialists) convinced I have had flaming ear infections until the diagnosis was always the same. TMJ.  Now, I no longer go to the doctor, I know what it is and I huddle under blankets, drink liquids through a pink striped straw and pray for the pain to subside.

    Those of us with this chronic pain disease have so many different symptoms, yet there is usually one or two that affect us the most. This is one of them for me. Pain, out of nowhere, unexpected, usually starting in the middle of the night and continuing as long it takes. I’ve tried the mouth guards (sort of), I’ve tried heating pads, I’ve tried deep breathing and meditating. TMJ lurks in the quiet of my brain and body and jumps out of the darkness to scare me with its razor-sharp accuracy. It attacks with no warning, no signals. Unlike migraines, there are no warning signs. This, I find hard to deal with, hard to surrender to so much pain for however long it decides to stay. For once, i am helpless in this situation, I feel disempowered and small, the pain has caught up to me and it is winning.

    *Where MY Wild Things Are

    mischievious max

    mischievious max (Photo credit: massdistraction)

    Just call me Max, because tonight I live in my own storybook. I’m in a cranky, bad mood and while no one sent me to my room, I almost wished they had. It started off with not knowing where my husband was, he was missing. He didn’t leave a note but he could have left one word on a napkin and that would have been fine. He also left our whining dog, prowling around the house while I was trying to rest and get a little sleep because I felt extra crummy. It wasn’t fair.

    It was a bad day for Fibromyalgia and chronic pain, my jaw hurt so much, I had ear pain and TMJ and a headache and no one cared. I wasn’t able to sleep because my dog was annoying me. She wouldn’t even settle down on the bed, up and down, up and down she jumped and I was too tired and achy to get out of bed to put her in the crate. Friends tell me I’m in a Fibro Flare but all I know is that I feel worse, much worse. The weather gets damp and now it’s pouring buckets like my expectations and mood, dumping down on the roof, bypassing the dirty, leaf-filled gutters and ending up in big, thick, muddy puddles. I don’t have rain boots and I can’t play anyway anymore.

    I ended up eating a tuna sandwich standing up, alone, in the kitchen, with one foot crossed over the other and I ate it so fast that I didn’t enjoy it one bit. I even gave the dog, “the whining one” some of it. Just as I am shoveling down the sandwich, Mr. Last Minute Ambulance Aider comes strolling in with his fake, perky voice and I feel even angrier. I march up the stairs with the rest of my crappy dinner and the dog follows me for food, not for compassion. My only hope at feeling better is getting to eat the two last bites of the brownies that we saved and I am NOT going to share.

    The last two weeks haven’t been good at all, okay, they sucked.  I had the hospital procedure and the horrific mammogram both done this week and I know it’s over but maybe not over one hundred percent because now I’m fuming inside like a chimney with an angry orange fire.  A new friend that I met over the summer,” sisters in spirit,” never sent me a birthday card when I thought for sure she would and I miss not having a dad. I believe in the good in people and then they disappoint me. At the same time a new friend thinks I should self-publish my blogs into a book with photographs. What? It came out of left field for me too. I guess we need to learn about balance sometimes.

    My daughter is away at college and is sick again and I hate that. I offer to come up there or asks if she wants to come home but she says “No” and I worry, no matter how old they are and then I say out loud ” I wish you weren’t in college so far away.” I probably should have kept my mouth shut too but I couldn’t.

    I am going to sneak down to the kitchen and at the end, I do announce taking the two brownie bites because after all, my husband wasn’t exactly doing a bad thing. They didn’t even taste good. I know that this stupid, horrible, unjust day will look much brighter in the morning when the sun shines, when my jaw stops hurting, after a good night’s sleep. All I’ve been doing is whining, I guess my dog and I have a lot in common.

    *Based on the enchanting book:Where The Wild Things Are by Maurice Sendak

    Clown Underpants

    Hospital Bed

    Hospital Bed (Photo credit: Indiana Public Media)

    Last week, when the nurse in the hospital gave me a warmed blue blanket I thought she was an angel from heaven. I had already been waiting three hours for my 15 minute procedure in the outpatient unit in our local hospital. I was there for a Cystoscopy, having a camera, pretty much shoved up your bladder and beyond. I had already been given 10mg of Valium orally; (why do they tell you, you aren’t supposed to take a sip of water or anything at home when they offer you these drugs with water in the hospital like candy at a Halloween party?)

    The nurse did get permission from the arrogant anesthesiologist who took my disclaimer of incredibly painful TMJ, another side effect from Fibromyalgia, with a shrug of his shoulders and a basic “not my problem” attitude. Kudos to my doctor who apparently switched anesthesiologist so a lovely Doctor replaced him and she used a different drug and didn’t have to wire my jaw open wide, thank you! You were kind, gentle and I remember your sweet, assuring smile that I would be dopey and sleepy in about……..and that was it.

    Next thing I knew I was in some hall with my name being called way too loudly. “Laurie, Laurie” are you awake, wake up!” the nurses shouted and I had no idea where I was or even who I was. After saying “Where am I?” not at all original, I remember I uttered my husband’s name and someone went to get him. Apparently the procedure was over and I was in the hallway.  The same nurse brought me huge, mesh “clown” underpants which, I found hysterical. Let’s just blame it on the drugs. (but really they were SO funny!) I wish I hadn’t thrown them away!

    Oh, those memories just come flooding back, pun intended. No one told me or prepared me that after a cystoscopy I would get cramping and pain and bleeding and would need the same supplies I needed when I still had my cycle; that pain was familiar. It’s funny how when we try to recreate happiness it’s hard to do but pain? We remember it vividly.

    I wasn’t hungry anymore or thirsty, I was just tired and the only thing that interested me was a cup of coffee.  My pounding head felt as if a boomerang was bouncing between each lobe of my brain, what’s left of it that is. With Fibromyalgia comes “Fibro Fog” I don’t need to define if for those of you who have it, but for others who don’t know what it is: it’s an extended brain freeze. It bothers us much more than you, even if you have to hear repeated stories. It makes us feel stupid, old, daft and like we have dementia. We forget what we have done five minutes ago, it’s sad. Forgive us and try to be kind.

    Finally home, I crawled into our bed, Lexi, my dog, climbing on and lying across my feet, her way to say she cares, not leaving my side. She licked each finger, I stroked her fur. Grateful to be home, to be in bed, I thanked my guardian angels for keeping me safe, I held one silver guardian angel key chain in my hand. Most of all, I told my husband how much I love him and how grateful I am for all that he does for me and to the nurse that brought me the warm blue blanket: thank you, it’s the little things that make all the difference. I appreciate all of my friends, especially, my on-line friends who support me and care for me without ever meeting me. You mean the world to me too!

    Begging For A Diagnosis

    Sad Little Girl

    Sad Little Girl (Photo credit: Wikipedia)

    I found myself in the waiting room of my Ear, Nose and Throat Specialist this afternoon actually praying for an inner ear infection. Yes, that’s what I said. I was praying for a diagnosis that would be fixed with a quick supply of an antibiotic, preferably a Z-pack. Done! No such luck. My ears have hurt me on and off for weeks. This was the second time I had been to the doctor in two months. Not only did my ears hurt but my entire face, under my eyes, my head, my forehead, my entire body was aching, as if I had the flu but I knew I didn’t.

    Please, I groaned to myself, let me have an ear infection, or a throat infection, even eppiglottis, the dreaded disease that I have received so much mail about when I posted a blog about it. (* Calling Eppiglottitis A Bitch Is A Vast Understatement) Even that I could take if I have a diagnosis but no, my throat was fine, my ears were “perfect” I felt like I was five years old, alone, horrible and to the doctor I looked “good.” I’ve felt worse and worse and I don’t know why. The doctor told me it was probably my Fibromyalgia/TMJ……Nothing I didn’t know already. “Gee, I’m sorry,” he said “wish I could do more.” He patted me on my shoulder as he stared at my breasts and promised to call in a prescription strength type of Advil (which, he never did.)

    My only hope is that I have my physical next week with my Internist ( a woman who does not even BELIEVE in Fibromyalgia) but at least she can run some blood tests and send them to my Rheumatologist. This is SO FRUSTRATING. Everyone just wants to throw different drugs at me and I don’t really want to take them. Take this, says the Rheumatologist and this, says the ENT,  but you need energy so take this, and there is nothing for pain so just live with it. I am tired of living with it and I can’t discuss this with my sister (or even have her READ THIS ENTRY) because it is not a safe topic for us. We can talk about many things, this is not one of them. Unless she can give me concrete examples of what exactly she would like me to try and how I can pay for it.

    All I know is that I have been diagnosed with Fibromyalgia for six years now and after it got better, it has now gotten worse. Does Fibromyalgia get worse? Is this something new? Can I live like this? Is it the weather? An anxiety attack? I feel so vulnerable and so lousy that I cried in the waiting room from feeling so poorly.  I noticed a father with his teenage daughter; I missed my father who would have known how to kid me like that father did. I missed mine so desperately. Do emotions come to play in all of this? I think it’s probably all of the above and none of it is pretty. Not for me, not today, not until I feel better. I’m complaining, in writing. I should just shut up.

    *https://hibernationnow.wordpress.com/2011/02/03/calling-epiglo…understatement

    The Papoose Of Pain

    papoose, Otavalo, Ecuador

    papoose, Otavalo, Ecuador (Photo credit: lumierefl)

    We carry our illnesses like a papoose; they clutch us firmly yet we can’t put them down for a minute to rest. There is no relief from chronic pain. I used to think that sleeping was my cure; it used to be but not for a long time. Sleep was my escape for any emotional or physical pain, now it just adds to my frustration. I can fall asleep easily enough (with medication) but then I go through long periods of time when I wake up at 3:30am and am up to at least 6:30am if not longer. Sometimes I fall back asleep for a few hours but it is restless and fitful, with anxiety dreams, tossing and turning.

    Who are we, these invisible people of pain? We are mothers and daughters, sons and fathers, sisters and cousins. We were not born this way but one day our “normal” lives changed, forever. For me, my life changed with menopause at age fifty. My body fell apart and it hasn’t been the same ever since. I developed thyroid problems and body aches and pains that left me limp, in bed, groaning in pain. No doctor could help me, my internist looked disgusted as she left the examining room, leaving me inside, alone, weeping with pain. “There’s nothing more I can do for you” she said and slammed the door. I felt bad that I had bothered her, actually she made me feel bad; it was NOT my fault.

    I’m not saying I ever ran marathons but I didn’t have to wait to plan the day’s activities until the very last moment. I could plan going to Central Park to meet a friend a week in advance, or to see a new Woody Allen movie with a friend, or go drink a mimosa with brunch. Now, I always have to add: “but I will call you in the morning to see how I’m feeling.” My true friends understand; I’m the one with the problem. I feel ninety years old and handicapped, actually my eighty-five year old mother is in much better shape than I am, for that I am grateful.

    I’ve given up hope on a cure for the future, I’m happy that the Rheumatologist I have not only believes in Fibromyalgia but takes it seriously and wants to help me. He also appreciates me because I understand the parameters, there is no cure and when he asks me how I feel I tell him “that under the circumstances I have been doing fine.” I am not bitter, I am sad once in a great while, and enormously uncomfortable. I thought losing weight would help but I lost twenty-five pounds and the pain is still the same.

    For the last two weeks I’ve been lying down in the back of our car for four to six hours per day; tomorrow after a grueling tour visiting my daughter’s second college choice, I will sit for another four hours going home. Once home, I will take a hot bath and put on the jacuzzi jets and there I will stay until I can stop screaming silently with pain.

    The Separation Between Pain And Pain

    snake

    Pain woke me up from a deep sleep, as if someone was crossly shaking me awake. It started in the middle of the night, doesn’t it always? I felt sharp, stabbing pain that started behind my ears and shot down to my jaw line like bursts of fireworks you want to watch but not feel. I  moaned out loud; the pain was unbearably familiar but I hadn’t had it in a long time. Labor pains, during childbirth, at least give you a couple of moments rest in between contractions and a beautiful new baby as an award but this did not. I would try to sleep for a minute or two and be awakened by searing pain, inside my head, like a steak being branded on an open fire. TMJ had come back with a vengeance.

    I have noticed that my Fibromyalgia symptoms, soreness of legs, feet, joints, muscles, pain everywhere on my body, have been at an all time high. I wonder if it has anything to do with the weather changing since it started so suddenly, or all the stress building up in the last three months or is it just random torture? Maybe it’s all of them, together. I can take medicine for the pain but we all know it just doesn’t help. Nothing does.

    I know it doesn’t seem to make sense but I don’t have the energy to take a train to see my Rheumatologist, I’m sorry, I’m just too tired. Patients with other type of  illnesses may not be able to relate to this but chronic pain patients understand. They understand all too well about Fibromyalgia Flare-Ups. “What’s a Flare-UP” you ask? Ah, obviously you don’t have Fibromyalgia and I am jealous of you now. I understand though, it happens all the time. I would not be a good Fibromyalgia Ambassador right now because I tell the truth. Physical and emotional pain are closely connected, they join together like two vapid snakes curled around each other. You can’t have one without the other. Pain is here to stay, it never goes away for long, it comes back like the univited guest that crashes a party with drunken rowdiness. Pain is here to stay; wrap your mind around that.